Consent Form

Name: ___________________________________

I have read the Information Sheet and have had the details of the study explained to me.

My questions have been answered to my satisfaction, and I understand that I can ask further questions at any time.

I agree to provide information to the researcher on the understanding that I will be identified in the thesis and any published material from it.

I agree to the recording of my interview and I understand that I can request that the recording be stopped during the interview.

I agree to participate in this project under the conditions outlined in the information sheet.

Signed: ____________________________ Date: ___________________

Full Name - printed _________________________________________

Appendix 2

Information Sheet (Participant)

Researcher Introduction

My name is Mathilda Schorer and I am currently working on a thesis for a Master of Philosophy in Social Policy. My supervisors for the project are Dr. Martin Sullivan and Dr. Mary Nash from the School of Health and Social Services.

The contact details are

Researcher: Mathilda Schorer 768 Te Onepu Road RD 4 Hastings 4174 [email protected] phone 06 8749756 text 027 2185661

Supervisors: Dr. Martin Sullivan and Dr. Mary Nash School of Health and Social Services Massey University

Private Bag 11 222, Palmerston North Phone 06 350 5799

My interest in social policy relating to disability issues was instigated by a lived experience of disability of a close family member and led to a Postgraduate Diploma of Arts majoring in Disability Studies at Massey University. Involvement in the governance of CCS Disability Action, interest in the disability rights movements in Aotearoa New Zealand and Germany and social policy development regarding the rights of disabled people nationally and internationally led to the proposed research project.

Project description and Invitation

The aim of the research is to trace the social history of CCS Disability Action, a disability organisation in Aotearoa New Zealand. The preservation of historic voices and the recording of contemporary leaders of the

organisation will be used to examine the societal context in the early years of the New Zealand Crippled Children Society and in the last decade of CCS Disability Action (CCSDA).

The social history of CCSDA - spanning two thirds of the previous century and the first decade of this century - provides an ideal platform for the exploration of social policy in Aotearoa New Zealand. One of the major questions is the extent to which the treatment of disabled people in society and the disability rights movement (DRM) influences the development of strategic priorities in this non profit organisation over time. The project’s importance also lies in the documentation of disability history in Aotearoa New Zealand.

This is an invitation to you to participate in this research project as one of six interviewees who have been selected on the basis of having historical knowledge, cultural knowledge, lived experience of disability and/or working within the organisation.

Project procedures and Data Management

Individual face to face interviews with six participants are planned. This is a social history and participants will be named in it.

Interviews will be held at a location mutually agreed upon by you and the researcher. This might be in your home, office or boardroom of the researched organisation. The interview will be audio recorded with your permission. The interviews will be transcribed by the researcher. A copy

will be sent to you for your comments, additions or alterations before I begin analysis.

Data will be stored at the home of the researcher in a secure office space and disposed of after 5 years. Participants will be kept informed by the

researcher and the completed thesis will be available to them.

Participants’ Rights

If you agree to participate in this research project, you will be asked to sign a consent form. As a participant you have the following rights:

You can refuse to answer questions and request termination of recording at any stage

You can withdraw from the project at any time You can ask additional questions at any time

You can access the completed thesis through CCSDA’s library or through the Massey University library.

Project’s contacts

Please do not hesitate to contact the researcher and/or supervisors with questions about the project. See contact details on page 1.

Committee Approval Statement

This project has been reviewed and approved by the Massey University Human Ethics Committee: Southern B, Application 10/31. If you have any concerns about the conduct of this research, please contact Dr Karl Pajo, Chair, Massey University Human Ethics Committee: Southern B, telephone 04 801 5799 x 6929, email [email protected].

Appendix 3

Interview schedule Interview questions Personal

When was your first involvement in CCS Disability Action, what kind of connection and why?

When was your involvement? Why did you get involved?

Which services were available when you were involved?

What principles do you think CCS Disability Action had in the days when you first got involved?

Do you think the vision has changed and how?

Do you agree with the direction the organisation has chosen?

Societal treatment of disabled people

How do you envisage inclusion of disabled people? What are the main features of inclusion into society?

Has inclusion of this minority group been achieved and aided by the researched disability organisation?

Are you aware of major achievements by this organisation regarding government policy development in Aotearoa New Zealand?

Has the broadening of the client base been able to avoid discrimination on the lines of gender, race, age, sexuality, severity and kind of impairment and social standing?

Do you think that the Disability Rights Movement had a significant influence on the organisation?

Bicultural perspective

Are you aware of a specifically Maori influence on the organisation?

What do you know about bicultural strategies in the organisation?

Are you aware of the discussion regarding biculturalism versus multiculturalism?

General questions

Where do you think the organisation is heading over the next five years?

Do you think it is appropriate that a service provider practises advocacy and promotes social change?

Do you think it is desirable that this organisation extends its activities into social entrepreneurship?

Are there any other comments regarding the research topic you want to make?