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Pediatric Development Clinic. An Integrated Model to Support Nutrition and Early Childhood Development of Vulnerable Infants and Children

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Pediatric Development Clinic: An integrated Model to Support Nutrition and Early Childhood Development of Vulnerable Infants and Children --- Presenter Hema Magge of Partners In Health:

Forty percent 40% of child deaths occur in the neonatal period according to RDHS 2010. The project goal is to create a clinic to provide needed services targeting low birth weight children and track and evaluate the outcome. The services include follow-up clinic for early intervention for the nutritional, medical and developmental needs of at-risk infants. An objective is to provide high-quality care through screening, simple interventions, and caregiver counseling to support ECD. The project aims to demonstrate feasibility of model implementation with potential for national scale-up

The primary population served includes infants with prematurity/low birth weight and birth asphyxia. Secondary population includes those withTrisomy21, Cleft lip/palate, Hydrocephalus and other developmental delay, neuromuscular disorder, suspected genetic syndrome

Monitoring indicators include program monitoring, growth and feeding, medical danger signs, developmental screening and counseling, alerts, reminders and automated patient-level and aggregate reports generated from the EMR system. Outcomes of at-risk neonates after 1 year of implementation will be compared to those at baseline and results will be used to inform potential national scale-up with NCD service expansion.

(2)

Pediatric Development Clinic

An Integrated Model to Support Nutrition and

Early Childhood Development of Vulnerable

(3)

Co-Authors

• Hema Magge, MD, MS, Partners In Health

• Jean Claude Uwamungu, MD, Partners In Health • Leonce Mwizerwa, MD, Rwanda Ministry of Health

• Thacien Twagirumukiza, MD, Rwanda Ministry of Health • Evrard Nahimana, MD, Partners In Health

• Gedeon Ngoga, Partners In Health

• Francis Mutabazi, Rwanda Ministry of Health • Cheryl Amoroso, MPH, Partners In Health

(4)

Improving Neonatal Survival in

Rwanda

• Significant neonatal mortality with 40% of childhood deaths occurring in neonatal period (RDHS 2010) • Since 2010, national strategies focus on improving

immediate neonatal survival with neonatal special care units

• Emerging group of vulnerable infants at higher

nutritional, medical and developmental risk (ex. LBW, preterm)

• No systematic way of providing long term nutritional support, medical care, or ECD opportunities for these at-risk infants

(5)

Early Childhood

Development in Rwanda

• Early childhood (0-5 years) is critical period of brain growth and affects long-term outcomes

• Adequate nutrition is essential to ensuring healthy brain growth and development during early childhood • Challenges to early childhood development

• 44% of children in Rwanda are stunted (DHS 2010) • Few have access to ECD opportunities

• Minimal opportunities for parental education and support

• Infants with perinatal complications have even higher biologic and social risk

(6)

Alignment with National

Strategic Plans

• Rwanda Health Sector Strategic Plan

Scale-up of post-natal services

Post-natal service capacity development

Community-centered ECD services

• Ministry of Education Integrated Early

Childhood Development Strategic Plan

Need for caregiver training

(7)

Implementation Setting

• Southern Kayonza: 1

District Hospital, 8

health centers, 926

CHWs

• Population: 188,363

people (2012 Census)

• 3 health centers that

provide

non-communicable disease

(NCD) services with

(8)

Pediatric Development Clinic

Goal 1

• Create follow-up clinic for early

intervention for the nutritional,

medical and developmental needs of

at-risk infants

Provide high-quality care through

screening, simple interventions, and

caregiver counseling to support ECD

(9)

Goal 2

• Prospectively track and evaluate

medical and developmental

(10)

Goal 3

• Demonstrate feasibility of model

implementation with potential for

national scale-up

District Hospital and Health

Center levels

(11)

Program Overview

• Weekly nurse-led clinic housed within outpatient

non-communicable disease services

• Training in basic nutritional, medical and

developmental protocols

• Setting: 3 health centers in year 1, 2 additional

health centers in year 2

• Timeframe: 24 months

• Initiative led by MCH with NCD support

• Protocols approved by Rwanda Pediatric

(12)

Populations Served

• Primary:

Infants with prematurity/low birth weight

Birth asphyxia

• Secondary:

Trisomy 21

Cleft lip/palate

Hydrocephalus

Other developmental delay, neuromuscular

disorder, suspected genetic syndrome

(13)

Program Services

• Nurses and social workers provide:

• 1. Condition-specific medical screening • 2. Monitoring of growth and nutrition • 3. Developmental screening and care

• Screening using Ages and Stages questionnaire adapted to Rwanda (developed by CARE)

• UNICEF package for developmental intervention

• Social supports for vulnerable families meeting criteria:

• Transport fees • Food packages

• Home visits by CHW as needed

(14)

Trainings

• Training of NCD nurses in:

• PDC Clinical Protocol (developed by PIH)

• General ECD support (Care for Child Development -UNICEF)

• Specific ECD support based on developmental screening results (UNICEF)

• Training of Social Workers in:

• ECD kit for child-friendly space use (UNICEF)

(15)

Clinic Flow

• Referral from hospital upon discharge and rendezvous

given in Pediatric Development Clinic

Arrival at clinic:

• 1) General ECD counseling provided by NCD nurse during morning group teaching session

• 2) Wait for consultation in ‘child-friendly space’ with SW

trained in ECD facilitating interactive play with children and caregivers

• 3) Individual consultation with NCD nurse providing medical, nutritional, developmental screening and

(16)

Monitoring and Evaluation

• EMR monitoring indicators in process and

outcomes for:

Program monitoring

Growth and feeding

Medical danger signs

Developmental screening and counseling

• Alerts, reminders and automated patient-level

and aggregate reports generated from the EMR

system

(17)

Monitoring and Evaluation

• Early qualitative assessment after 3 months of

implementation to assess:

Caregiver perceptions, value, and feedback to the

clinic

Nurse feedback on training effectiveness and

protocol use

• Outcomes of at-risk neonates after 1 year of

implementation will be compared to those at baseline

• Results will be used to inform potential national

(18)

Thank you

(19)

Pediatric Development Clinic

An Integrated Model to Support Nutrition and

Early Childhood Development of Vulnerable

(20)

Co-Authors

• Hema Magge, MD, MS, Partners In Health

• Jean Claude Uwamungu, MD, Partners In Health • Leonce Mwizerwa, MD, Rwanda Ministry of Health

• Thacien Twagirumukiza, MD, Rwanda Ministry of Health • Evrard Nahimana, MD, Partners In Health

• Gedeon Ngoga, Partners In Health

• Francis Mutabazi, Rwanda Ministry of Health • Cheryl Amoroso, MPH, Partners In Health

(21)

Improving Neonatal Survival in

Rwanda

• Significant neonatal mortality with 40% of childhood deaths occurring in neonatal period (RDHS 2010) • Since 2010, national strategies focus on improving

immediate neonatal survival with neonatal special care units

• Emerging group of vulnerable infants at higher

nutritional, medical and developmental risk (ex. LBW, preterm)

• No systematic way of providing long term nutritional support, medical care, or ECD opportunities for these at-risk infants

(22)

Early Childhood

Development in Rwanda

• Early childhood (0-5 years) is critical period of brain growth and affects long-term outcomes

• Adequate nutrition is essential to ensuring healthy brain growth and development during early childhood • Challenges to early childhood development

• 44% of children in Rwanda are stunted (DHS 2010) • Few have access to ECD opportunities

• Minimal opportunities for parental education and support

• Infants with perinatal complications have even higher biologic and social risk

(23)

Alignment with National

Strategic Plans

• Rwanda Health Sector Strategic Plan

Scale-up of post-natal services

Post-natal service capacity development

Community-centered ECD services

• Ministry of Education Integrated Early

Childhood Development Strategic Plan

Need for caregiver training

(24)

Implementation Setting

• Southern Kayonza: 1

District Hospital, 8

health centers, 926

CHWs

• Population: 188,363

people (2012 Census)

• 3 health centers that

provide

(25)

Pediatric Development Clinic

Goal 1

• Create follow-up clinic for early

intervention for the nutritional,

medical and developmental needs of

at-risk infants

Provide high-quality care through

screening, simple interventions, and

caregiver counseling to support ECD

(26)

Goal 2

• Prospectively track and evaluate

medical and developmental

(27)

Goal 3

• Demonstrate feasibility of model

implementation with potential for

national scale-up

District Hospital and Health

Center levels

(28)

Program Overview

• Weekly nurse-led clinic housed within outpatient

non-communicable disease services

• Training in basic nutritional, medical and

developmental protocols

• Setting: 3 health centers in year 1, 2 additional

health centers in year 2

• Timeframe: 24 months

• Initiative led by MCH with NCD support

• Protocols approved by Rwanda Pediatric

(29)

Populations Served

• Primary:

Infants with prematurity/low birth weight

Birth asphyxia

• Secondary:

Trisomy 21

Cleft lip/palate

Hydrocephalus

Other developmental delay, neuromuscular

disorder, suspected genetic syndrome

(30)

Program Services

• Nurses and social workers provide:

• 1. Condition-specific medical screening • 2. Monitoring of growth and nutrition • 3. Developmental screening and care

• Screening using Ages and Stages questionnaire adapted to Rwanda (developed by CARE)

• UNICEF package for developmental intervention

• Social supports for vulnerable families meeting criteria:

• Transport fees • Food packages

• Home visits by CHW as needed

(31)

Trainings

• Training of NCD nurses in:

• PDC Clinical Protocol (developed by PIH)

• General ECD support (Care for Child Development -UNICEF)

• Specific ECD support based on developmental screening results (UNICEF)

• Training of Social Workers in:

• ECD kit for child-friendly space use (UNICEF)

• Training planned for March 2014 followed by immediate

implementation and supervision

(32)

Clinic Flow

• Referral from hospital upon discharge and rendezvous

given in Pediatric Development Clinic

Arrival at clinic:

• 1) General ECD counseling provided by NCD nurse during morning group teaching session

• 2) Wait for consultation in ‘child-friendly space’ with SW

trained in ECD facilitating interactive play with children and caregivers

• 3) Individual consultation with NCD nurse providing medical, nutritional, developmental screening and

(33)

Monitoring and Evaluation

• EMR monitoring indicators in process and

outcomes for:

Program monitoring

Growth and feeding

Medical danger signs

Developmental screening and counseling

• Alerts, reminders and automated patient-level

and aggregate reports generated from the EMR

system

(34)

Monitoring and Evaluation

• Early qualitative assessment after 3 months of

implementation to assess:

Caregiver perceptions, value, and feedback to the

clinic

Nurse feedback on training effectiveness and

protocol use

• Outcomes of at-risk neonates after 1 year of

implementation will be compared to those at baseline

• Results will be used to inform potential national

(35)

scale-Thank you

References

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