Macmillan All Wales Patient Information Project. UROLOGY INFORMATION RESOURCE Kidney

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Wales Cancer Research Network WCRN James Whale Fund for Kidney Cancer JWF

Pathway Stage Information Resource(s)

S o u rc e B o o k le t D o w n lo a d a b le W e ls h A u d io C D C D R o m

Referred for Tests and Investigations

Clinic Appt Letter including hospital intructions, ie. directions, Local information available Local W parking booking Hospital Transport

Intravenous Urogram (IVU) Local information available Local W

Ultrasound Local information available Local W

Image-guided Biopsy Local Information - Gap Identified Local W

Nephrostomy Nephrostomy R03 EIDO _W

Local information available Local W

Diagnosis and Staging Information

Consider rehabilitation care as per National Cancer Rehabilitation Standards - refer to All Cancers sheet. Specific information from Allied Health Professional. Consider psychological needs. Nutritional screening. Consider offering financial information. Refer to All Cancers sheet

Core Information Patient Information Folder / Information Pack Local W

The Cancer Guide MCS W A

Hospital contacts, MDT and/or Treatment Unit Local information available Local W

Cancer Nurse Specialist / Key Worker Contact Details Local information available Local W

Kidney Cancer Understanding Kidney Cancer MCS A

Understanding Kidney Cancer JWF

Unknown Primary Understanding Cancer of Unknown Primary MCS

Advanced see Advanced Cancer and Recurrence Section

Further Investigations

Staging Understanding Kidney Cancer JWF

CT Scan - what to expect and aftercare Local information available Local W A

MRI - what to expect and aftercare Local information available Local W

Macmillan All Wales Patient Information Project

UROLOGY INFORMATION RESOURCE

Kidney

Information Source:

Key:

This resource provides a listing of good quality information, as and when it is needed. Many of the titles listed are available both as publications and as internet downloads; and some also as audio. Please contact the provider directly for more information - see details at the end of this document.

Booklet _Downloadable

_{Welsh Version Available W Audio Version Available A CD Rom only} Macmillan Cancer Support and CancerBackup MCS KYOWA KYOWA Locally Produced Local EIDO Healthcare EIDO Arthrtis Research Campaign ARC Cambridge Laboratories CamLab Wales Cancer Bank WBC Trial Originators TO National Osteoperosis Society NOS

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Bone Scan Local information available Local W Treatment Options

Personalised Treatment Plan Local Information - Gap Identified Local W

Surgery

Pre-Admission Assessment Letter / Ward Details Pre-Admission Assessment Letter / Ward Details Local

Anaesthetic Information Refer to local Procedure

Nephrectomy Understanding Kidney Cancer MCS _A

Laporascopic Nephrectomy Local information available Local W

Embolisation Understanding Kidney Cancer MCS A

Post-Operative Information - to include: contact numbers for Local Information - Gap Identified Local W any concerns, pain relief, mobility, wound management,

nutrition, making progress Cryotherapy

Cryotherapy / Cryosurgery Understanding Kidney Cancer MCS A

Chemotherapy

Chemotherapy Understanding Chemotherapy MCS _W _A

Understanding Kidney Cancer MCS A

Treatment Information Diary Local W

Chemotherapy Regimens - various - to include side effects Regimen appropriate to specific drug(s) Factfile (2011) MCS

Cold Cap Scalp Cooling - Factfile (2011) MCS

PICC Lines PICC Lines - Factfile (2011) MCS

Central Lines Central Lines - Factfile (2011) MCS

Inserting a Tunnelled Central Line for Chemotherapy R10 EIDO _W

Temperature Local information available Local W

Radiotherapy

Radiotherapy Understanding Radiotherapy MCS W A

Radiotherapy Skin Care Local information available Local W

Radiofrequency Ablation Radiofrequency Ablation - Factfile (2011) MCS

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Immunotherapy / Biological Therapy

Immunotherapy Understanding Kidney Cancer MCS _A

Regimen appropriate to specific drug(s) Factfile (2011) MCS

Targeted Therapies

Targeted Therapy Understanding Kidney Cancer MCS A

Regimen appropriate to specific drug(s) Factfile (2011) MCS

Clinical Trials

Clinical Trials Understanding Cancer Research Trials (Clinical Trials) MCS A

Understanding Kidney Cancer MCS _A

Specific Trial Information Pharmaceutical Company / Trial Originators TO

Wales Cancer Research Network www.wctn.org.uk WCRN

Wales Cancer Bank Wales Cancer Bank Information / Consent Sheet WCB W

Supplementary Information

Bone Health / Osteoperosis All About Osteoperosis NOS

Osteoperosis - An Information Booklet ARC

Bone Density Measurement Local information available Local W

Male Fertility Refer to specialist services if appropriate

plus See All Cancers Sheet

Female Fertility Refer to specialist services if appropriate

plus See All Cancers Sheet

Lymphoedema Understanding Lymphoedema MCS A

Consider psychological needs. Nutritional screening. Consider offering financial information. Refer to All Cancers sheet

Follow Up - General Local Information - Gap Identified Local W

Advanced Cancer and Recurrence

Secondary Bone Cancer Understanding Secondary Cancer in the Bone MCS A

Malignant Spinal Cord Compression Malignant Spinal Cord Compression - Factfile (2011) MCS

Spinal Cord Compression CRUK

Secondary Liver Cancer Understanding Secondary Cancer in the Liver MCS A

Secondary Liver Cancer (Treatment Options) UG17 EIDO _W

Palliative Care Refer to Palliative Care Pathway

End of Treatment

See All Cancers Sheet All Stages - Support

Social Services Refer to local Referral Procedure

Feelings, Emotions and Communication See All Cancers Sheet

Fatigue See All Cancers Sheet

Hair See All Cancers Sheet

Travel See All Cancers Sheet

Lifestyle and Diet See All Cancers Sheet

Finance and Employment See All Cancers Sheet

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Complementary Therapies See All Cancers Sheet

Local Support Groups NHS Direct Cymru - signposting to local support services NHS Direct _W

Locally produced Local W

National Support Groups NHS Direct Cymru - signposting to national support services NHS Direct _W

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