Shining a light on the future

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Shining a light on the future

Complex Neurodevelopmental Disorder Service (CNDS) for Children and Young People

The Complex Neurodevelopmental Disorder Service (CNDS) is a specialist tertiary service working in collaboration with local multi-agency services to provide second opinions about children and young people who may have Autism Spectrum Disorder (ASD) and other complex mental health neurodevelopmental problems, regionally and nationally. CNDS provides outpatient, day patient and outreach services.

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust

• Uncertainty about an ASD diagnosis for whatever reason because of complex

presentations such as attachment disorder, looked after children, forensic history and children in special circumstances

• Uncertainty about additional complex neurodevelopmental, mental health or psychiatric disorders

• Questions about the management of ASD and any related co-occurring problems

• Concerns about lack of progress or failure to respond to specific therapeutic interventions, pharmacological and non-pharmacological

• Other complexities such as family relationship difficulties and adult psychiatric disorder in the family

The Complex Neurodevelopmental Disorder Service (CNDS) provides assessment and specialist intervention for children and young people up to the age of 18 years where there is:

For further information please contact:

Complex Neurodevelopmental Disorder Service (CNDS) Walkergate Park, Benfield Road

Newcastle upon Tyne NE6 4QD

Tel: 0191 287 5260 / 5262 Fax: 0191 287 5261 Email: [email protected] Web: www.ntw.nhs.uk

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust The Complex Neurodevelopmental Disorder Service (CNDS) provides:

• Detailed and expert assessment of children and young people to inform the development of a skills and needs based intervention plan

• Second opinions in cases of diagnostic uncertainty or complexity

• Consultation and liaison for local ASD multi-agency care pathway team

• Specialist ASD training such as Autism Diagnostic Observation Schedule (ADOS)

• Diagnostic Assessment

» Standardised developmental history taking

» Autism Diagnostic Observation Schedule (ADOS)

» Neuropsychological (cognitive) assessment

» Speech and language assessment

» Occupational therapy assessment

» Specialist advice and information for families and professionals from Specialist ASD Parent Advisor

» Mental state examination

• Treatment and Interventions

» Advice on the use of Pharmacological Interventions

» Advice on the use of Psychological Interventions

» Therapeutic and educational advice

» Intensive group intervention for Early Years children including specialist teaching and intensive parenting work

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust The multidisciplinary team includes:

• Consultant Child and Adolescent Psychiatrists for children and young people with and without a learning disability

• Consultant Neurodisability Paediatrician

• Trainees in Child and Adolescent Psychiatry and Paediatrics

• Consultant Clinical Psychologist

• Clinical Psychologists and Assistant Psychologists

• Occupational Therapist

• Speech and Language Therapist

• Nurse Specialists in ASD

• Specialist Autism Spectrum Disorder Teacher

• Regional Parent Specialist Adviser in Autism Spectrum Disorder

• Support staff

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Shining a light on the future

Complex Neurodevelopmental Disorder Service (CNDS) referral process

Who can refer

Referrals are accepted through a single point of access from specialist Child and Adolescent Mental Health Services, Community Child Health and Paediatric Teams or from any member of the multi-agency ASD care pathway. Referrals are also accepted from GPs when accompanied by evidence of completion of a local ASD assessment.

Who to refer

• NHS funded, insurance and private patients

• Children and young people under 18 years of age with:

» Uncertainty about diagnosis of Autism Spectrum Disorder (ASD)

» Uncertainty about additional complex neurodisability, mental health or psychiatric disorder(s)

» Uncertainty about an ASD diagnosis because of complex presentations e.g.

Attachment disorders

How to refer

Referrals are accepted in writing, by hard copy, fax or e-mail. Informal enquiries about the service are welcomed by telephone prior to referrals.

Referral criteria:

• Referrals are accepted from across the North East with referrals from outside the region considered on a case by case basis

• Where possible, referrals should include:

» The clinical question(s) to be addressed

» Summary of developmental and recent history and previous diagnostic process

» Copies of previous assessments and diagnostic reports

» Information regarding current concerns and difficulties experienced

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust Comments from a young person and their parents about the Complex

Neurodevelopmental Disorder Service (CNDS):

“ I have achieved very good results in my Higher Education Foundation exams and have successfully secured a place at University. This would not have been possible without you, so I wanted to say a big thank you for all your support and advice”

“ The diagnostic assessment helped us to think more positively about our daughter’s needs. The team’s realistic opinions about her skills and difficulties will allow us to go forward.”

Comments from professionals about CNDS:

“ I would like to thank you for all the effort you have taken to keep me informed about the assessment and reactions of the family”

“ On behalf of our service we would like to thank you for providing such a thoughtful opinion and giving feedback to the family and our team”

Comments from parents who have worked with the Early Years Intensive Group:

“ I cannot thank the staff in the Early Years Intensive Group enough for what they have helped my son and family through and I can honestly say they saved a family from falling apart.”

“ Thank you all so very much for the care, patience and understanding you have shown our son during his part-time placement in the group. He has changed so much, and improved more than we could have ever imagined. We are so very grateful to you for all your help – it has made a huge difference to all our family.”

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Shining a light on the future

Biographies and team profile

Ann Le Couteur, Professor and Consultant of Child and Adolescent Psychiatry

• Clinical Lead for CNDS Team, experienced in Assessment and Management of ASD including transition needs into adult services and severe mental health disorders

• Research interests include development of assessment measures, understanding transition needs and evaluation of interventions and co-occurring mental health disorders

• Member of the NICE Guidelines for the Management of Children and Young People with ASD

Vicki Grahame, Consultant Clinical Psychologist

• Chief Investigator on a New Parent Group to manage repetitive behaviours in young children with ASD

• Co-author of a treatment manual helping children with ASD and learning difficulties to understand and manage their emotions

• Has specialist training in Neuropsychological Assessments in children and young people

Jeremy Parr, Consultant in Paediatric Neurodisability and Senior Lecturer at Newcastle University

• Experienced in assessing and advising on the management of

children with a range of complex neurodevelopmental disorders and neurodisability

• Works with the regional neurodisability service

• Research interests include formation of ASD databases and genetics of ASD

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust Clare Dover, Consultant Psychiatrist for Children with a Learning Disability

• Leads the Regional Training Programme on the use of Autism Diagnostic Observation Schedule (ADOS)

• Chair of Newcastle ASD Multi-Agency Strategy Group

Linda Dixon, Specialist Teacher, Newcastle Bridges School

• Experience of working with Autistic Children within specialist and main stream settings

• Has international experience training community based staff in ASD early intervention work

• First author of a Treatment Manual to help parents of Young Children with ASD

Deborah Garland, Regional Specialist ASD Parent Advisor

• North East Regional Resource Manager for National Autistic Society (NAS)

• Expert in supporting parents and facilitating local networks

• Member of the Database for Children living in the Northeast (Daslne) and Regional ASD Research Studies Steering Groups

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Shining a light on the future

Service location

The Complex Neurodevelopmental Disorder Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle.

How to get there

• By car – CNDS is easily accessible from both the A19 and A1. Follow the A193 and take the signs signposted to Walkergate Park Hospitals.

• Car parking – There is car parking available on site. Please note car parking is chargeable.

• Satellite navigation – use postcode NE6 4QD when using a satellite navigation system.

• By bus – The service is easily accessed by bus see www.nexus.org.uk for further information and timetables.

• By train – Newcastle Central Station is located in the centre of Newcastle and easily accessed from other areas. The CNDS service is a short taxi or bus journey from the station.

• By metro – The nearest metro station is located at Walkergate. Walkergate Park is about a 5 minute walk.

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www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust

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