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Center for Disability Leadership

Partnership for People with Disabilities

Virginia Commonwealth University

The Partnership for People with Disabilities is a university center for excellence in developmental disabilities at Virginia Commonwealth University.

VCU is an equal opportunity/affirmative action university providing access to education and employment without regard to age, race, color, national origin, gender, religion, sexual orientation, veteran’s status, political affiliation or disability. If alternative formats of this document are

needed, please contact the Partnership for People with Disabilities at 804/828-3876 or 800/828-1120 (TDD Relay).

www.vcu.edu/partnership/CenterforDisabilityLeadership

This project is funded by grant number 90DN0226 from the Administration on Developmental Disabilities, US Department of Health and Human Services.

The contents do not necessarily represent the policy of the U.S. Department of Health and Human Services, and you should not infer endorsement by the Federal government. Please include this disclaimer when copying or using all or any part of the materials in dissemination activities.

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Developing Healthcare Advocacy Skills

“Inclusion occurs when we invite others to understand our perspective.”

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Developing Healthcare Advocacy Skills

 Advocacy Basics

 How to Communicate with

Professionals for Yourself or Others

 Developing Communication Skills

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First, it’s important to know:

Not every service provider has the benefit of your perspective

The way you choose to communicate can tell people that they are respected

The way you choose to communicate can inspire people to listen to your concerns respectfully

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Advocacy Basics:

Advocacy means speaking up for yourself or someone else

Advocacy takes careful thought and preparation

When you recognize that there’s a need for advocacy, you may feel strong emotions

and have to make difficult decisions

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Advocacy Basics:

Effective advocates are confident,

motivated, knowledgeable, and tactful.

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Self-Advocacy

 You are the best qualified to assess your own needs.

 You should be treated with dignity and respect.

 You have the power to make your own decisions.

 You are responsible for your own welfare.

 You can pursue the best healthcare available.

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Supportive Advocacy

When you advocate for another person, you are supporting an individual’s rights

Above is a picture of a person gently holding the hands of another person as if listening compassionately

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Supportive Advocacy

Advocating for someone is a privilege that comes with great responsibility

Above is a picture of a flowchart with the word “risk” and arrows to the words “yes”

and “no”

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Supportive Advocacy

It is important to first listen carefully to the person you’re advocating for to be sure that you can

communicate their priorities and concerns well

Above is a picture of a woman looking another person in the eye and smiling, listening carefully

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Supportive Advocacy

Do your best to involve the person you’re advocating for because it promotes their independence & their ability to advocate for themselves

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Supportive Advocacy

By demonstrating advocacy, you are a role model

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Advocating for a Service

 Identify the need or the problem

 Gather data to document the need or problem

 Identify the people or organizations that make the decisions about the issue

 Gather support

 Develop recommendations that may solve the problem

 Make your case to the decision-makers.

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Common Advocacy Mistakes

Failing to effectively communicate needs to healthcare providers

Above is a picture of a group of people sitting around a table each pointing in different directions

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Common Advocacy Mistakes

Taking an “all or nothing” approach

Above is a picture of a child with his arms crossed and his eyes closed, refusing to eat his dinner

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Common Advocacy Mistakes

Not being willing to try another solution to the problem

Above is a picture of a person explaining an idea while another person listens

unwillingly

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Common Advocacy Mistakes

Focusing only on unproductive approaches to the problem

Above is a picture of two people looking in opposite directions, each through their own handmade tunnels

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Common Advocacy Mistakes

Not documenting everything

Above is a picture of a note with the words “Don’t Forget” at the top of the page

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It Takes Teamwork

Remember that each person involved in healthcare brings important knowledge &

information to the process

Maintain realistic expectations of service providers

Respect individual & cultural preferences

Remember that trust is based upon mutual respect, honesty, & equality

Trust can lead to constructive solutions

So, how can you communicate effectively with healthcare providers?

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Negotiating

Negotiation is not about getting your way or about sacrificing things that are important to you.

Negotiation is about reasonable compromise to bring everyone closer to their goals.

People are able to negotiate when they can identify the goals they have in common.

The most important trip you may take in life is meeting people half way

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Effective Advocacy Requires Organization

Preparation

Communication

Mutual Respect

Realistic

Expectations

Collaboration

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How can you get organized to advocate?

 Ask the healthcare provider about side effects and adverse reactions to new medications

 Disclose your allergies and current medications in case of potential drug interactions

 Know your insurance coverage

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How can you get organized to advocate?

Maintain a contact list of healthcare provider staff & know who to call for specific issues

Maintain comprehensive personal healthcare records

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And finally, who can help you

become an effective healthcare advocate?

Partnership for People with Disabilities @ VCU (804) 828-0352 http://www.vcu.edu/partnership/

Virginia Board for People with Disabilities (800) 846-4464 http://www.vaboard.org/

Virginia Office for Protection and Advocacy (804) 225-2042 http://www.vopa.state.va.us/

Virginia Bureau of Insurance

(800) 552-7945 http://www.scc.virginia.gov/division/boi Senior Navigator

(804) 827-1280 www.seniornavagator.com

References

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