2004 Report of the Surgeon General

2004 Report of the Surgeon General

The creation of the NBHA stems from two major activities:

2004

:

Bone Health and Osteoporosis: A Report of the Surgeon

General

called for public and private stakeholders to join forces to

develop a national action plan on bone health

2008 National Action Plan for Bone Health

2008

: Following up on the recommendation in the

Surgeon General’s Report

to develop a National

Action Plan on bone health, the

Summit for a

National Action Plan for Bone Health

was

convened in June 2008, which involved more than

150 individuals representing:

•

individuals and families

•

health care professionals

•

health systems

•

health care purchasers

•

Communities/community-based organizations

•

government

•

voluntary health organizations

•

professional associations

•

academic institutions

Late 2010 - NBHA launched

•

A public-private partnership that brings together the expertise and resources

of its public, private and non-profit sector partners

•

50 organizational participants

•

13 member companies

•

33 member non-profits/specialty societies

•

4 government agency liaisons (CDC, FDA, NASA, NIH)

•

Common goal

: to improve the overall health and quality of life of all

Americans by enhancing their bone health

•

“20/20 Vision” – 20% reduction in hip and other fractures in the US by

2020

•

Addressing the priorities of the Bone Health Summit

National Action Plan:

•

Promote bone health and prevent disease

•

Improve diagnosis and treatment

NBHA provides a platform for:

•

Using its

collective voice

and

diverse membership

base to weigh

in on subjects important to bone health, particularly:

o

Vitamin D

o

Calcium

o

DXA reimbursement and utilization

o

Benefits/risks of the use of bisphosphonates and other therapies

•

Ongoing communication

among individuals and organizations

interested in bone health

•

Shared priorities/projects

to become reality through pooled funding

•

Working together

towards the goals and recommendations of the

Members (50)*

4 Bone Health

Alliance for Aging Research

American Academy of Nurse Practitioners Foundation American Academy of Physician Assistants

American Association of Clinical Endocrinologists American Academy of Orthopaedic Surgeons Amgen

American Orthopaedic Association

American Society for Bone and Mineral Research California Hispanic Osteoporosis Foundation Eli Lilly and Company

The Endocrine Society

Fibrous Dysplasia Foundation, Inc. FORE/American Bone Health GE Healthcare Lunar

Gerontological Society of America Global Healthy Living Foundation Health Monitor Network

HealthyWomen Hologic, Inc.

Immunodiagnostic Systems

International Society for Clinical Densitometry Kaiser Permanente

Lymphangiomatosis & Gorham's Disease Alliance Marian Osteoporosis Center, Santa Maria, California Medtronic

Merck and Co., Inc.

MHE Research Foundation Mindways Software, Inc.

National Association of Nurse Practitioners in Women’s Health National Council of Women’s Organizations

National Osteoporosis Foundation Novartis Pharmaceuticals Corporation Optasia Medical, Inc.

Osteogenesis Imperfecta Foundation

Osteoporosis Medical Center, Los Angeles, California OWL – The Voice of Midlife and Older Women

The Paget Foundation for Paget’s Disease of Bone and Related Disorders

QuantiaMD

Roche Diagnostics Corporation Soft Bones, Inc.

United States Bone and Joint Initiative Warner Chilcott

Washington Osteoporosis Coalition Women in Government

XLH Network, Inc.

* 46 organizational members as well as liaisons from 4 government agencies: Centers for Disease Control and Prevention, Food and Drug Administration, National Aeronautics and Space Administration and National Institutes of Health

Initial Activities

2Million2Many Awareness Campaign

Secondary Fracture Prevention Initiative – Focus on Medicare

Bone Turnover Marker Standardization Project

Cost of Fractures (Medicare)

•

The national cost of osteoporosis and fractures in the Medicare

population was $22 billion in 2008

•

Osteoporosis was the

9th most costly major illness among the

top 5% highest cost Medicare beneficiaries

(12% of all

Reducing the Rate

of Secondary Fractures

•

Only 21% of women age 67 and above are tested or treated for

osteoporosis after a fracture

•

Those that fracture are usually not treated with calcium, vitamin D or

a prescription medication

o

Also, little attention is paid to preventing future falls

•

This lack of commitment to fracture prevention is a major failing

of the U.S. health care system and leads to increased health

NBHA 2Million2Many

•

The campaign is a story about

BREAKING.

•

Break

is a word consumers understand;

fracture

is not.

•

Osteoporosis

:

-

Underdiagnosed

-

Undertreated

-

Lacks relevance

.

-

Lacks urgency

.

The only way to make a difference is to:

BREAK THROUGH.

•

To break through, we can’t be warm and fuzzy,

or pretty and polite.

For the campaign to succeed, we have to break some things

We have to break the news

Every year, there are 2 million bone breaks in the USA that are no accident.

A break is a sign of osteoporosis. We need people to feel that impact.

We have to break stereotypes

Osteoporosis is not a “little old lady” problem. Anyone over 50, woman or man,

active or not, young thinking or not, can have osteoporosis. We need people to

see their own reflections.

We have to break the pattern

Two million breaks occur every year, yet only 2 in 10 get follow-up. For the rest,

breaks are treated like accidents, not signs of osteoporosis. We need people to

connect breaks to getting a bone density test.

The antidote for a vague,

invisible, passive condition is

to be

specific, clear

and

The campaign centers around

“Cast Mountain”

– a visual

installation represents the number of fractures that occur in just 1

day due to osteoporosis (USA 5,500 fxs)

Supporting materials:

Healthcare Professional Fact Sheet

Consumer Postcard

Healthcare Professional Office Poster

NBHA’s “20/20 VISION”

Reducing the rate of hip and other

fractures by 20% by the year 2020

Plan A: Medicare Health Care Innovation

Challenge Award

NBHA submitted a

$29 million, 3 year

grant request which would have implemented a

FLS in the Medicare (and Medicaid age 50+) population:

•

The CMS Innovation Center will award up to

$1 billion in grants

•

Awards to be made will range from

$1 million to $30 million

over a 3 year period

•

Application submitted on January 27;

first batch of awards totaling $122.6 million

announced last week

(second batch to be announced in June)

This project request would have supported

up to 80 sites (training 80 NPs/other allied

health care professionals) and 165,000 fracture patients

It is estimated this project would have

saved between $29 and $40 million

over the 3

year grant period and

reduced the number of secondary fractures by more than 3,600

Would have

built on the successful U.S. and international programs

and leverage the

American Orthopaedic Association

Own the Bone

infrastructure for rapid implementation

Plan B: No Medicare Innovation Center Award

•

200+ sites want to join the effort

•

Implement FLS sites - NOF/AOA

Own the Bone

• NOF helps train FLS staff (

NPs/PAs/RNs)

• All data on fxs sent to

Own the Bone

registry

• Monthly progress reports

•

We need a network of champions to help

We Need

Your Help!