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SPECIAL NEEDS TRUSTS. THE BASICS: What you need to know

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Presenter

 Karen Currie

 Trust Associate at Commonwealth Community Trust  MBA from Clark University

 Commonwealth Community Trust (CCT)

 National nonprofit pooled trust organization that administers

pooled third-party and self-funded special needs trusts for individuals with disabilities. CCT has served over 950 clients since 1990 and is currently managing over $30 million dollars in trust funds for its clients.

 Charitable Fund Award Program for financially needy

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Introduction

 Financial planning is always challenging for families,

particularly when planning for an uncertain future. For families who have a loved one with a disability,

additional considerations should be taken into account to ensure the best possible outcomes.

 In this presentation, we will cover the basics of special

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Agenda

 Why consider a special needs trust?  SNT Terminology

 Third-party funded v. self funded special needs trusts  Choosing the right trustee

 The Pooled Trust option  How does it work?

 What now…?

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Why consider a special needs trust?

 When might an individual receive a large sum of money?

 Inheritance,

 Personal injury award  Other situations…?

 Special concerns when that individual has a disability:

1. They may need help managing the funds

2. They may need to qualify for means tested benefits

3. You may want to leave specific instructions as to how the trust will be utilized by/for your loved one

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Why consider a special needs trust?

Benefit #1. Fiduciary Oversight

If you are concerned that your loved one may need help managing funds, a special needs trust (SNT) will put into place a trustee who has responsibility over making sure funds for your loved one are: (among other things)

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Why consider a special needs trust?

Benefit #2. Public Benefits Eligibility

An SNT will allow for funds to be available for supplemental needs for the benefit of your loved one that will not count as a resource for means tested benefits. SSI and Medicaid are the main benefits that will be protected by a properly drafted and administered SNT. To qualify for these benefits, an individual cannot have over $2,000 in assets. Sometimes, an SNT will also protect access to benefits such as food stamps, subsidized housing, and other similar services. Can these public benefit programs be a beneficial tool for providing

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Why consider a special needs trust?

Benefit #3. Advocacy/Instructions

Establishing an SNT is an opportunity for you to seriously

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SNT Terminology

 Beneficiary: the trust is for the benefit of ______  Grantor: authorizes transfer of funds into the trust

 Trustee: person or entity that has fiduciary responsibility.

The trustee cannot be the beneficiary

 Irrevocable: cannot be revoked. The trust can be

amended or terminated only under specific circumstances provided for in the trust itself

 Remainder: any funds that are left in the trust when the

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Third Party funded v. Self funded SNTs

 The basic difference: Whose assets are funding the trust?

 Example 1: A parent wants to establish a trust for their child

with a disability that will be funded through a life insurance

policy. The parent includes language in the policy to leave funds to the special needs trust for the benefit of their child.

 Funds belong to the parent: THIRD PARTY FUNDED TRUST

 Example 2: An individual who was disabled due to an accident

is receiving funds from a personal injury award settlement.

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Third Party funded v. Self funded SNTs

 The basic difference: Whose assets are funding the trust?

 Example 3: A well-meaning grandparent has left an inheritance

in their will to a grandchild who has a disability and receives SSI and Medicaid benefits. A trust needs to be established in order to retain the individual’s public benefits.

 SELF-FUNDED TRUST. Why?

 Funds belong to the individual - the inheritance was left directly to the

individual. Either an SNT was not set up in advance, or the

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Third Party Funded SNT

 Must be funded by someone other than the beneficiary  Often established by the grantor in advance as a planning

tool, and funded at some later date (when the grantor passes away, for example)

 Often a gift or inheritance, but the SNT must be recipient,

not the beneficiary

 The beneficiary can be any age

 There is no Medicaid payback clause required. The

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Self-Funded SNT

 The assets funding the trust are the beneficiary’s own

assets.

 The grantor must be either a parent, grandparent, legal

guardian, or the Court.

 Self-funded pooled trusts can be established by the beneficiary

 May be subject to Medicaid payback if claims have been

paid on the beneficiary’s behalf.

 Must be irrevocable.

 The beneficiary must be younger than 65

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Choosing the Right Trustee

The ideal trustee will:

 Utilize the funds for the “sole benefit” of the beneficiary  Maintain accurate accounting

 Keep the best interest of the beneficiary in mind

 Understand public benefits and keep up with changing

rules

 Wisely invest the trust assets and follow fiduciary

requirements

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Choosing the Right Trustee

What may impact this choice?

 The amount of assets that will fund the SNT  The type of assets that will fund the SNT

 Is a family member or trusted individual willing to serve

as trustee, or would a professional trustee be a better choice?

Who provides professional trustee services?

 Attorneys

 Financial institutions

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The Pooled Trust option

 A Pooled Special Needs Trust is operated by a nonprofit

organization

 Cross between a traditional SNT and a 401k

 Beneficiaries do not draft their own trust documents, but

instead join the trust by completing a Joinder Agreement

 Funds are pooled for investment purposes, but individual

accounting is kept for each subaccount Benefits of pooled trust:

 Often have low or no minimum funding requirement and

lower administrative fees

 Staff should be knowledgeable about rules regulating public

benefits and stay current on any changes

 Staff are often sensitive to the needs of individuals with

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How does it work?

 Funds must be kept in a specific account

 Any disbursements must be carefully accounted for

 Any non-exempt expenditures or cash to the beneficiary

will be counted as income for SSI benefit calculation Procedure for disbursements at CCT

 Advocate(s) is designated

 One page payment request form  Requests are evaluated

 Approved disbursements are processed as a check

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What now…?

 Consider the future needs of your loved one and their

ability to provide for themselves after you are gone

 Is a special needs trust right for your family?  Determine what resources will fund the trust

 Meet with an estate planning attorney familiar with

special needs planning

 Establish a trust, Letter of intent

 Update all beneficiary designations, notify anyone who

may leave your loved one an inheritance/monetary gift

 Revisit the trust periodically or if your family situation

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Additional Resources

 Special Needs Alliance

 http://www.specialneedsalliance.org/home

 “The Voice”: Great articles about a variety of SNT topics

 “Find an Attorney” tool (or call CCT to ask if we know of an

estate planning attorney in your area)

 Special Needs Calculator Tool (Met Life)

 http://www.metlifeiseasier.com/specialneedscalculator/index.asp

 Social Security Administration Spotlight on Trusts

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Questions?

 Feel free to contact CCT with questions or for more

information.

 CCT enrollment documents, FAQs, and fee schedules are

available at our website:

References

Related documents

The services include special needs trusts (“SNT”) or pooled special needs trusts; Medicare Set Aside consultation/opinion letters; Qualified Settlement Funds; Settlement Trusts

For revocable or irrevocable trusts that are created pursuant to section 1917(d)(3)(A) or (B) of the social security act, the administration shall include the income that is received

• Understanding of the capabilities and needs of people with disabilities and their families • Wills • Special Needs Trusts, other trust options and tax implications •

The court ruled: “By contrast, with the creation of the trust, Jamie will retain his medicaid eligibility and Saunders (the conser- vatrix) can provide for his supplemental needs

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(The child cannot place his or her own assets in a special needs trust without affecting needs-based benefits.) This self-settled trust is the same type of trust that would

non-disabled spouse buy a structured settlement for the disabled spouse, with payments directed to the Self-Settled Special Needs Trust, the disabled spouse is able to maintain

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