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Utah Disability Resources

ARTS and CREATIVITY

http://www.vsarts.org/x330.xml VSA arts of Utah

339 West Pierpont Avenue Salt Lake City, UT 84101 Tel: 801-328-0703 TTY: 801-328-0703 Fax: 801-328-9868 ASSISTIVE TECHNOLOGY http://www.uatpat.org/

Utah Assistive Technology Program Center for Persons with Disabilities 6835 Old Main Hill

Logan, UT 84322-6855 Phone: 435-797-3824 TTY: 435-797-7089 Fax: 435-797-2355 Email: [email protected] http://www.adainformation.org/

Rocky Mountain Disability & Business Technical Assistance Center 3630 Sinton Road, Suite 103

Colorado Springs, CO 80907 Phone: 719-444-0268 (Voice/TTY)

In Region VIII (CO, MT, UT, WY, ND & SD) call 800-949-4232 (Voice/TTY)

Fax: 719-444-0269 [email protected]

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http://www.uatf.org

Utah Alternative Financing Program Center for Persons with Disabilities 6835 Old Main Hill

Logan, UT 84322-6855 Phone: 435-797-2025 TTY: 435-797-7089 Fax: 435-797-2355 Email: [email protected] CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/states/UT/support/index.htm Utah Caregiver Support Groups

CRIME VICTIM ASSISTANCE http://www.crimevictim.utah.gov/

Utah Crime Victim Compensation and Assistance Victim Compensation 801-238-2360 Fax: 801-533-4127 Victim Assistance 801-238-2360 Fax: 801-533-4127 http://ovc.ncjrs.org/findvictimservices/Search.asp

Office for Victims of Crime’s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for http://www.safehorizon.org/page.php?page=resources

Safe Horizon’s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: 1-800-799-SAFE (7233) National Resource Center on Domestic Violence: 800-537-2238 Statewide Hotline: 800-897-5465

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http://www.aardvarc.org/dv/states/utdv.shtml

Aardvarc.org’s Utah Domestic Violence contact information by City/County http://www.udvac.org/

Utah Domestic Violence Council 320 West 200 South

Suite #270 B

Salt Lake City, UT 84403 Phone:(801) 521-5544 Fax:(801) 521-5548

EASTER SEALS OFFICES

www.ut.easter-seals.org Utah Easter Seals Office 638 East Wilmington Avenue Salt Lake City, UT 84106-1491 Phone: 801-486-3778

GOVERNMENT OFFICES http://www.utah.gov/

Utah State Website http://gcpd.org/index.html

Utah Developmental Disabilities Council http://www.usor.utah.gov/

Utah State Office of Rehabilitation PO Box 144200

Salt Lake City, UT 84114-4200 Phone: 800-473-7530

http://www.dhs.utah.gov/

Utah Department of Human Services 120 North 200 West, Room 319

Salt Lake City, Utah 84103 Phone: 801-538-4001 Toll Free: 1-800-662-3722 Fax: 801-538-4016

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http://health.utah.gov/medicaid/ Utah Medicaid Office

288 North 1460 West P.O. Box 143101

Salt Lake City, UT 84114-3101 Phone: 801-538-6155

Toll Free: 800-662-9651 Fax: 801-538-6805 http://www.utahchip.org/

Utah CHIP Program (Children’s Health Insurance Program) Utah Children's Health Insurance Program

PO Box 144102

Salt Lake City, UT 84116 Toll-Free: 877-543-7669 1-801-538-6860

http://www.hsdaas.utah.gov/insurance_programs.htm

State Health Insurance Information Program (SHIIP)—for seniors Utah Division of Aging and Adult Services

Department of Social Services 800-541-7735 (In-State Calls only)

801-538-3910 (Out-of-State calls --- Ask for Health Insurance Information)

http://selecthealth.org/portal/site/selecthealth/menuitem.0d8e2a6590fdb634cdb302bee47 44df9/?vgnextoid=7943a01c6dab8010VgnVCM10000029fad49fRCRD

Utah Comprehensive Health Insurance Pool (HIPUtah) 4646 W. Lake Park Boulevard

P.O. Box 30192

Salt Lake City, Utah 84130-0192 Phone: 801-442-5000

Utah High Risk Insurance Plan for eligible people who are unable to get insurance coverage.

http://www.insurance.utah.gov/ Utah Insurance Commissioner Utah Insurance Dept.

3110 State Office Bldg.

Salt Lake City, UT 84114-6901 Phone: 801-538-3800

http://laborcommission.utah.gov/IndustrialAccidents/index.html Workers Compensation

Labor Commission of Utah Phone: 801-530-6800

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http://www.christopherreeve.org/c.ddJFKRNoFiG/b.4518671/k.6ABA/Find_Your_Electe d_Official/siteapps/advocacy/search.aspx

Find your elected officials to contact them on legislation that is important to you. http://www.dol.gov/odep/state/directry.htm#utah

Utah Governor's Committee on Employment of People with Disabilities 1595 West 500 South

Salt Lake City, UT 84104 801-887-9529 (Voice) 801-278-9844 (FAX)

HOUSING

http://www.ilru.org/html/publications/directory/utah.html Utah Independent Living Centers

www.fanniemae.com Fannie Mae

http://www.fanniemae.com/contact/regionaloffices.jhtml Fannie Mae Southwestern Regional Office

International Plaza II 14221 Dallas Parkway Suite 11201

Dallas, TX 75254-2916 972-773-HOME (4663)

Areas served: Arizona, Arkansas, Colorado, Kansas, Louisiana, Missouri, New Mexico, Oklahoma, Texas, Utah

http://www.hud.gov/local/index.cfm?state=ut&topic=offices Utah Housing and Urban Development (HUD)Office Salt Lake City Field Office

Department of Housing and Urban Development 125 South State Street

Suite 3001

Salt Lake City, UT 84138 Phone: 801-524-6070 Fax: 801-524-3439 TTY: 801-524-6909

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http://blindlibrary.utah.gov/

Utah State Library for the Blind and Disabled Regional Library

Utah State Library Division

Program for the Blind and Disabled 250 North 1950 West, Suite A Salt Lake City, UT 84116-7901 Telephone: 801-715-6789 Toll-free (In-state): 800-662-5540 TDD: 801-715-6721 FAX: 801-715-6767 E-mail: [email protected]

PROTECTION and ADVOCACY

http://www.disabilitylawcenter.org/ Utah Protection and Advocacy

CAP/PADD/PAIMI/PAIR/PABSS/TBI/PAVA Disability Law Center

205 North 400 West Salt Lake City, UT 84103 801-363-1347 \ 800-662-9080 TTY: 801-924-3185 Fax: 801-363-1437 E-Mail: [email protected] SERVICE DOGS

Canine Companion Concepts Bob Reid

859 N. 300 E.

Spanish Fork, UT 84660 (801) 794-1225

SPORTS and RECREATION

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Common Ground Outdoor Adventures 290N 400E

Logan, UT 84321

Contact Person: Samantha Macfarlane Phone: 435-713-0288

Fax: 435-753-9008 www.nac1985.org National Ability Center P.O. Box 682799

Park City, UT 84068

Contact Person: Meeche White Phone: 435-649-3991

Fax: 435-658-3992 Email: [email protected] www.splore.org

SPLORE (Special Populations Learning Outdoor Recreation and Education) 880 East 3375 South

Salt Lake City, UT 84106

http://www.unitedspinal.org/pages.php?catid=13&pageid=449#UT United Spinal: Sport & Recreation Programs

UNITED WAY OFFICES http://national.unitedway.org/

National United Way

Enter postal code for a United Way office in your area National Headquarters

701 North Fairfax Street Alexandria, VA 22314 Phone: 703-836-7112

VETERAN BENEFITS

http://www1.va.gov/directory/guide/home.asp?isFlash=1

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http://www.mscpva.org

Mountain States Paralyzed Veterans of America 1101 Syracuse Street Denver, CO 80220-3222 (303) 322-4402 (800) 833-9400 (303) 321-6123 fax [email protected] --- ALS http://www.alsa.org/

The ALS Association (National Office) 27001 Agoura Road Suite 150 Calabasas Hills, CA 91301-5104 Phone: 818-880-9007 Fax: 818-880-9006 BRAIN INJURY www.biausa.org http://www.biausa.org/stateoffices.htm Brain Injury Association of America 8201 Greensboro Drive Suite 611 McLean, VA 22102 Phone: 703-761-0750 Family Helpline: 800-444-6443 Email: [email protected] http://www.biau.org/

Brain Injury Association of Utah 1800 S. West Temple, Suite 203 Salt Lake City, UT 84115 Phone: (801) 484-2240 In State: (800) 281-8442 Fax: (801) 484-5932 E-Mail: [email protected]

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CEREBRAL PALSY

http://www.ucputah.org/ UCP of Utah

P.O. Box 65219

South Salt Lake, UT 84165 Phone: 801-266-1805 Fax: 801-266-2404 E-mail: [email protected] FRIEDREICH’S ATAXIA http://www.ataxia.org/

National Ataxia Foundation 2600 Fernbrook Lane

Suite 119

Minneapolis, MN 55447 Phone: 763-553-0020 Fax: 763-553-0167

NAF’s Utah Support Group Rick Balling

1131 E 965 N Orem, UT 84097 Dr Julian Kleinschmidt Moran Eye Center, U of Utah 50 N Medical Dr

Salt Lake City, Utah 84132 Phone: (801) 585-2213

E-mail: [email protected]

GUILLAIN-BARRÉ SYNDROME/CIDP http://gbs-cidp.org/

Guillain-Barré Syndrome / CIDP Foundation International P.O. Box 262

Wynnewood, PA 19096 Phone: 610-667-0131

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MULTIPLE SCLEROSIS http://www.nationalmssociety.org/chapters/UTU/index.aspx National Multiple Sclerosis Society’s Utah Chapter 2995 S. West Temple, Suite C

Salt Lake City, UT 84115 Phone: 801-493-0113 toll-free: 1-800-527-8116

Phone: National toll-free: 1-800-FIGHT-MS Email: [email protected]

http://www.msassociation.org/contact_msaa/

Multiple Sclerosis Association of America’s Western Regional Office (Arizona, California, Hawaii, Nevada, Oregon, Utah)

1819 Polk Street Mailbox #326 San Francisco, CA 94109 800-532-7667, ext.155 415-260-6420 415-931-2368 Fax E-mail: [email protected] MUSCULAR DYSTROPHY http://www.mdausa.org/

Muscular Dystrophy Association National Headquarters

3300 East Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717

Enter your postal code in the "Find your local MDA" section of the website for MD clinics in your area.

POST-POLIO SYNDROME

http://www.post-polio.org/net/poldir.pdf Post-Polio Health International (PHI) 4207 Lindell Blvd. #110

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Phone: 314-534-0475 Email: [email protected]

Directory lists Health Professionals, Clinics, and Support Groups by state.

SPINA BIFIDA

http://www.sbaa.org/

Spina Bifida Association of America 4590 MacArthur Blvd NW Suite 250 Washington, DC 20007-4226 Phone: 202-944-3285 800-621-3141 Email: [email protected] http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2642345/k.C49F/Clinics.ht m#ut

SBAA Utah Clinics:

Primary Children's Medical Center Spina Bifida Clinic

100 N. Medical Drive Salt Lake City, UT 84113 Phone: 801-588-3382

Shriner's Hospital for Children Intermountain Hospital

Fairfax Ave. at Virginia St. Salt Lake City, UT 84103 Phone: 801-536-3621

SPINAL CORD INJURY www.spinalcord.org

http://www.spinalcord.org/chapters/listing.php?stateid=45 NSCIA Chapters, Support Groups and State Resources in Utah National Spinal Cord Injury Association

6701 Democracy Blvd Suite 300-9

Bethesda, MD 20817 Phone: 301-214-4006 800-962-9629

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Fax: 301-881-9817

Email: [email protected] No chapters listed for Utah.

STROKE http://www.cdc.gov/DHDSP/state_program/ut.htm CDC’s Utah Cardiovascular Health

http://www.strokeassociation.org/ American Stroke Association National Center

7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653

Call them for the stroke support group in your area

http://www.americanheart.org/presenter.jhtml?identifier=10000018&state=UT American Heart Association office:

144 South 500 East

Salt Lake City, UT, 84102

Primary Stroke Care Centers-accredited by the Joint Commission on Accreditation of HealthCare Organizations (JCAHO):

http://www.jointcommission.org/CertificationPrograms/PrimaryStrokeCenters/ University of Utah Hospital and Clinics

30 N. 1900 E 3R226 Salt Lake City, UT 84132

SYRINGOMYELIA/CHIARI MALFORMATION

www.asap.org

American Syringomyelia Alliance Project PO Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079 800-ASAP-282 Fax: 903-757-7456 Email: [email protected]

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TRANSVERSE MYELITIS

http://www.myelitis.org/

Transverse Myelitis Association State Support groups http://transmyelitis.meetup.com

TM MeetUp

Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants.

GENERAL DISABILITY RESOURCES

http://www.disabilityresources.org/UTAH.html Disability Resources.org: Utah

http://www.familyvillage.wisc.edu/comm/utah.html Family Village Resources for Utah

www.nichcy.org

http://www.nichcy.org/Pages/StateSpecificInfo.aspx?State=UT

Utah NICHCY: National Dissemination Center for Children with Disabilities

http://www.yellowpagesforkids.com/help/ut.htm Utah Yellow Pages for Kids with Disabilities

Utah Administration on Developmental Disabilities http://www.acf.hhs.gov/programs/add/

http://www.uotaonline.org

Utah Chapter of the American Occupational Therapy Association Utah Occupational Therapy Association

Jeanette Koski

Public Relations Chair P. O. Box 58412 Salt Lake City, UT 84158-0412

Phone: 801-636-3036

Email: [email protected] President: Katherine Bruner, OTR/L

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www.uapta.org

Utah Chapter of the American Physical Therapy Association Utah Physical Therapy Association

Diane Buma

2102 East 3780 South

Salt Lake City, UT 84109-3346 Phone: (801) 278-4016

Fax: (801) 278-2752 Email: [email protected] www.apse.org

http://www.apse.org/chapters/details.cfm?id=31

Association for Persons in Supported Employment (APSE)-Utah Chapter

http://www.healthboards.com/boards/index.php

Healthboards.com - message boards on health related topics. Topics include SCI, CP, Stroke, and more.

http://www.211.org First Call 2-1-1 Phone: 211

Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided,

location, hours of operation, and any other relevant information for the inquiry. All calls are confidential.

Hint: Can only be dialed from a land line. If you dial 211 or your state’s 211 800 number and you are not connected, this service has not yet been provided to your area.

www.abilityfound.org Ability Found

Attn: Ernest Robison Ph.D. 5236 S. Greenpine Drive Salt Lake City, UT 84123 1-877-231-4567 Toll-free 801-505-0529 phone [email protected]

Helps individuals with disabilities (who are in financial need) purchase equipment such as power wheelchairs, power scooters, manual wheelchairs with custom seating,

handicapped vans, walkers, gait trainers, standing frames, bath equipment, continence supplies, braces hospital beds and pressure relieving mattresses. Please contact Ability Found for details on qualifying for their assistance.

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ThinkFirst National Injury Prevention Foundation 29W120 Butterfield Rd., Suite 105 Warrenville IL 60555 Phone: 630-393-1400 800-THINK56 Fax: 630-393-1402 Email: [email protected]

ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter

information in your area, please go to their website and click on the “Chapter Site” tab.

The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.

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