• No results found

Exploring peer-mentoring for community dwelling older adults with chronic low back pain: a qualitative study

N/A
N/A
Protected

Academic year: 2021

Share "Exploring peer-mentoring for community dwelling older adults with chronic low back pain: a qualitative study"

Copied!
8
0
0

Loading.... (view fulltext now)

Full text

(1)

Exploring

peer-mentoring

for

community

dwelling

older

adults

with

chronic

low

back

pain:

a

qualitative

study

Kay

Cooper

a,

,

Patricia

Schofield

b

,

Susan

Klein

c

,

Blair

H.

Smith

d

,

Llinos

M.

Jehu

a

aRobertGordonUniversity,SchoolofHealthSciences,GarthdeeRoad,AberdeenAB107QG,UK bAngliaRuskinUniversity,BishopHallLane,ChelmsfordCM11SQ,UK

cRobertGordonUniversity,FacultyofHealth&SocialCare,GarthdeeRoad,AberdeenAB107QG,UK

dUniversityofDundeeNinewellsHospital&MedicalSchool,TheMackenzieBuilding,KirstySempleWay,DundeeDD24DB,UK

Abstract

Objectives Toexploretheperceptionsofpatients,physiotherapists,and potentialpeermentorson thetopicofpeer-mentoringfor self-managementofchroniclowbackpainfollowingdischargefromphysiotherapy.

Design Exploratory,qualitativestudy.

Participants Twelvepatients,11potentialpeermentorsand13physiotherapistsrecruitedfromphysiotherapydepartmentsandcommunity locationsinonehealthboardareaoftheUK.

Interventions Semi-structuredinterviewsandfocusgroups.

Mainoutcomemeasures Participants’perceptionsof the usefulnessand appropriateness ofpeer-mentoringfollowingdischarge from physiotherapy.Datawereprocessedandanalysedusingtheframeworkmethod.

Results Fourkeythemeswereidentified:(i)self-managementstrategies,(ii)barrierstoself-managementandpeer-mentoring,(iii)vision ofpeer-mentoring,and(iv)thevoiceofexperience.Peer-mentoringmaybebeneficialforsomeolderadultswithchroniclowbackpain. Barrierstopeer-mentoringwereidentified,andmanysolutionsforovercomingthem.Nosingleformatwasidentifiedassuperior;participants emphasisedtheneedforanyinterventiontobeflexibleandindividualised.Importantaspectstoconsiderindevelopingapeer-mentoring interventionarerecruitmentandtrainingofpeermentorsandmonitoringthementor–menteerelationship.

Conclusions Thisstudyhasgeneratedimportantknowledgethatisbeingusedtodesignandtestapeer-mentoringinterventiononagroup ofolderpeoplewithchroniclowbackpainandvolunteerpeermentors.Ifsuccessful,peer-mentoringcouldprovideacosteffectivemethod offacilitatinglonger-termself-managementofasignificanthealthconditioninolderpeople.

©2016TheAuthors.PublishedbyElsevierLtdonbehalfofCharteredSocietyofPhysiotherapy.ThisisanopenaccessarticleundertheCC BY-NC-NDlicense(http://creativecommons.org/licenses/by-nc-nd/4.0/).

Keywords:Chroniclowbackpain;Peer-support;Peer-mentoring;Self-management;Olderadults

Introduction

Chronicpainaffects25to76% ofcommunitydwelling olderadults[1].Prevalenceoflowbackpainincreaseswith age [2], with many older adults experiencing chronic or recurrentsymptoms[3].Chroniclowbackpain(CLBP) is

Correspondence:Tel.:+4401224262677.

E-mailaddresses:k.cooper@rgu.ac.uk(K.Cooper), patricia.schofield@anglia.ac.uk(P.Schofield),s.klein@rgu.ac.uk (S.Klein),b.h.smith@dundee.ac.uk(B.H.Smith),l.m.jehu@rgu.ac.uk (L.M.Jehu).

complexandchallengingtomanage,andthehealthcarecosts forpeoplewithCLBParedoublethosewithout[4].The grow-ing population of older adults will inevitably increase the prevalenceandimpactofCLBPfurther;therefore,effective methodsofmanagingCLBPinolderadultsarerequired.

A range of methods is recommended for CLBP man-agement [1,5], commonly including physiotherapy and self-managementstrategies[1,6,7].Self-managementcanbe challenginggiventheindividualnatureofCLBP,and differ-entself-managementapproachesmaysuitdifferentpeople, thereforearangeofself-managementinterventionsmaybe required.

http://dx.doi.org/10.1016/j.physio.2016.05.005

0031-9406/©2016TheAuthors.PublishedbyElsevierLtdonbehalfofCharteredSocietyofPhysiotherapy.ThisisanopenaccessarticleundertheCC BY-NC-NDlicense(http://creativecommons.org/licenses/by-nc-nd/4.0/).

(2)

Self-management can be clinically effective and cost-effectiveinolderadults[8],andadultswithCLBParekeen to participate in self-management activities [9,10]. How-ever, several barriers to self-management exist including: timeconstraints;fear ofpain/re-injury, andtheabsence of aself-managementstrategy[10–12].

Peer-support might provide a strategy for overcoming someofthesebarriers,enablingolderadultstoengagewith CLBPself-management.Definedas“...thegivingof assis-tanceandencouragementbyanindividualconsideredequal”

[13],thetypeof assistanceofferedbypeer-supportis typ-ically “emotional, appraisal and informational” [13]. Peer volunteersarelaypeoplewhoreceiveamoderateamountof trainingtoenablethemtodeliveranintervention[14],but nottotheextentthattheywouldbeconsidereda “parapro-fessional”[13].

Peer-supportcantakemanyforms,andiscommonly deliv-ered in a group format, with chronic pain groups being widespread[15].However,supportgroupsarenot appropri-ateforor acceptabletoall[16],suggestingthatalternative forms such as one-to-one peer-mentoring [17,18], should also be explored. Throughout this paper the term peer-supportrefers to any form of peer-to-peersupport, whilst peer-mentoringreferstoitbeingconductedonaone-to-one basis.

Peer-supportcanenhancethemanagementandoutcome of severalconditions [13,19–21], including low back pain

[22].Toourknowledge,nostudieshaveexploredthe effec-tivenessofpeer-supportspecificallyasawayoffacilitating self-managementof CLBPfollowingdischargefrom phys-iotherapy,andnonehasfocusedonpeer-mentoringforolder adultswithCLBP.Theaimofthisresearchwasthereforeto exploretheperceptionsofcommunitydwellingolderadults withCLBP, physiotherapists,andpotential peervolunteers in relation to peer-mentoring for CLBP self-management followingdischargefromphysiotherapy.Theknowledge gen-eratedwillinformthedesignofapeer-mentoringintervention forolderadultswithCLBPfollowingdischargefrom phys-iotherapy.

Methods

Studydesign

Thiswasan exploratory,qualitative study onthe views ofolderadultsandphysiotherapistsontheconceptof peer-mentoring to facilitate self-management. As the research wasappliedinnature,themethodologyandmethodswere adopted from appliedsocial policy researchto informthe developmentofanintervention.Ratherthanadheringtoa par-ticularqualitativemethodology,thisapproachisgroundedin aspectsofbothinterpretivismandpragmatism,andakey fea-tureistheresearcher’sobjectivity[23].Thestudytookplace intheGrampianregionofScotland,andethicalapprovalwas

grantedbythelocalcommitteeoftheUKNationalResearch EthicsService(StudyNo:13/NS/0094).

Participants

Werecruitedthreeconveniencesamples:(i)Community dwellingolderadultswithCLBPwhoweredischargedfrom physiotherapy3to6monthsbeforethestudy;(ii) Physiother-apistswhoroutinelytreatcommunitydwellingolderadults withCLBP;(iii)Communitydwellingolderadultswith self-reportedexperience of successful CLBPself-management, definedaseithermanagingtheirowncondition,or suppor-tingsomeonewithCLBPtoself-manage.Forclaritywehave termedthisthirdgroupofparticipants“potentialpeers”.The potentialpeershadmuchincommonwiththefirstgroupof participants.However,thedurationofsuccessfulCLBP self-managementdistinguishedthemfromthosewhohadreceived physiotherapyintheprevious3to6months.Inkeepingwith previousresearch,olderadultsweredefinedasaged65years andaboveandCLBPas12weeksdurationorlonger.

OlderadultswithCLBPwererecruitedbytheir physio-therapist,whoidentifiedpotentialparticipantsfromdischarge filesandmailedthestudyinformationpackstothem. Inter-estedparticipantssentareply-sliptotheresearchteam,who contactedthembytelephonetodiscussthestudyandconfirm eligibility.Eightphysiotherapydepartmentsparticipated.We also recruited participants with CLBP and experience of physiotherapyfromachronicpainsupportgroup.

Physiotherapistsinonehealthboardareawererecruited viaane-mailinvitationsentbytheirleadphysiotherapiston behalfofthestudyteam.Interestedparticipantscontactedthe researchteam,andwerethenrecruitedasfortheolderadults. Potentialpeerswererecruited bydistributingpostersin communityvenues,circulatingstudy informationto volun-taryandstatutoryorganisationsinvolvedwitholderpeople, and speaking directly with older people participating in variousgroups.Allparticipantsprovidedwritten,informed consent.

Datacollection

OlderadultswithCLBPandpotentialpeerstookpartin semi-structuredinterviewsconductedbytheresearch assis-tant at alocation of each participant’s choosing; a public venueortheirhome.Allinterviewswereaudiorecorded,and fieldnotestakenduringorimmediatelyaftertheinterviews wereincludedintheanalysis.

Physiotherapiststookpartinafocusgrouporindividual interviews,bothof whichwere audio-recorded.Interviews were deemed appropriate for the olderpeoplewith CLBP andpotentialpeers,astheuniquenessoftheCLBPexperience mayhavebeenlostinafocusgroupsetting[24].Focusgroups weredeemedappropriateforthephysiotherapistsbyvirtueof theirfamiliaritywithdiscussinganddebatingclinicalissues. Becauseitwasnotpossibleforallphysiotherapiststoattend

(3)

Table1

Areasexploredinsemi-structuredinterviews. OlderpeoplewithCLBP

1.CLBPself-management:Strategiesusedandhowtheywere developed

2.SupportforCLBPSelf-management:Supporttheyareawareofand supporttheymayhavefoundusefulondischargefromphysiotherapy 3.Peer-mentoring:Viewsonpeer-mentoringforolderpeoplewith CLBP

Physiotherapists

1.CLBPself-management:Whatadvicedotheygivetoolderpeople withCLBP

2.SupportforCLBPself-management:Supportthatexistsandsupport theythinkmaybeusefulforpatientsfollowingdischargefrom physiotherapy

3.Peer-mentoring:Viewsonpeer-mentoringforolderpeoplewith CLBP

Potentialpeers

1.CLBPself-management:Strategiesusedandhowtheywere developed

2.SupportforCLBPself-management:Whatsupportcouldthey providetoanolderpersonwithCLBP

3.Peer-mentoring:Viewsonpeer-mentoringforolderpeoplewith CLBP

Key:CLBP,chroniclowbackpain.

thefocusgroups,individualinterviewswerealsoconducted, inkeepingwiththeflexiblenatureofqualitativeresearch.

Theinterviewsandfocusgroupswereinformedbythe lit-erature anddiscussion withorganisations involved inpeer support for people with other long-term conditions and guidedbyaninterviewschedule.Table1identifiestheareas exploredwitheachsample(Thefullinterviewschedulefor eachsampleisavailableonrequest).

Dataprocessingandanalysis

Theinterviewsweretranscribedverbatimandcheckedfor accuracy.Readingandre-readingthetranscriptsallowedthe researcherstofamiliarisethemselves withthe data. There-after theywereimportedtoNVivo 10(QSRInternational, Victoria, Australia). A thematic (coding) index was con-structed,andappliedindependentlytothefirstfewtranscripts bytworesearchers.Becausehighlevelsofagreementwere achieved,oneresearchersubsequentlyindexedtheremaining transcripts. Thethematic indexwas informedby the liter-ature,theinterview schedule,andthemes arisingfromthe data.

Framework analysis [25] was conducted by two researchers. As a systematic and comprehensive analysis process,itallowswithinandbetween-caseanalysisand pro-videsaclearaudittrail[26].Thefirstthreestageshavebeen described(familiarisation,identifyingathematicframework, indexing).Thefinaltwostages(charting,mapping& inter-pretation)wereconductedusingmatrix-basedchartswithin NVivo10,therawdatabeingfrequentlyreferredbacktoat thisstage.Thedataforeachsamplewerefirstindexedand

Table2

Participantcharacteristics. Olderadults withCLBP

PotentialPeers Physiotherapists

N 12 11 13 FemaleN(%) 9(75) 7(64) 11(85) DurationofCLBP(years) <5 1 0 5to10 0 2 11to20 1 2 21to30 6 2 31to40 2 1 41to50 1 2 50+ 1 2 NHSgrade Band5 4 Band6 6 Band7 3

Key:CLBP,chroniclowbackpain;NHS,NationalHealthService.

chartedseparately,thenthedatasetasawholewascharted, mappedandinterpretedtoidentifycommonthemes.

Results

Participants

Thirty-six(27female)participantstookpartinthe inter-views and focus groups(Table2).Eight olderadultswith CLBP wererecruitedfrom physiotherapydepartmentsand fourfromthechronicpainsupportgroup.Nine physiother-apistsparticipatedintwofocusgroups;fourparticipatedin individualinterviews.Elevenpotentialpeersparticipatedin individualinterviews.

Themes

Numerous dimensions were identified from the data, whichcontributedto144categories.Becauseseveral cate-gorieswerecommontoeachofthethreesamples,analysis resulted in 21 classes of data, which contributed to four keythemes:(i)“Self-managementstrategies”,(ii)“visionof peer-mentoring”,(iii)“barrierstoself-managementand peer-mentoring”,and(iv)“thevoiceofexperience”.Thefirstthree themeswerecommontoallthreesamplesofparticipants;the last-namedwasdiscussedbythepotentialpeersonly.Table3

detailstheclassesofdatathatcontributedtoeachofthesefour themes,whicharediscussedindetailbelowwiththe excep-tionof“self-managementstrategies”whichissummarised, duetothestudybeingfocussedonpeer-mentoringandnot thegeneralconceptofself-management.

Self-managementstrategies

Older people withCLBP andpotential peers discussed usingawiderangeofself-managementstrategies(Table4). All three groups discussed the need to take responsibility

(4)

Table3

Classesand themesarisingfromthedata indicatingwhich participants contributed.

Themes Classes

Self-management strategies

Takingresponsibility(PT;OP;PP) Education(PT;OP;PP)

Exercise(PT;OP;PP) Othersupport(PT;OP;PP) Visionof

peer-mentoring

Whatpeersupportcouldprovide(PT;OP;PP) Whatpeersupportcouldachieve(PT;OP;PP) Delivery/modeofPM(PP)

Addedvalue/credibilityofpeer(PT) Barriersto

self- management/peer-mentoring

Peoplebarriers(PP)

Person-specificbarriers(PT;OP) Motivation(PT)

Age-relatedbarriers(PT) Practicalbarriers(PP) Location(PT)

Pain-relatedbarriers(OP) Needfortraining(PT) Matchingprocessvital(PT;OP)

PotentialnegativeconsequencesofPM(PP;PT) Thevoiceof

experience

Knowledge/experienceofdifferentpeersupport relationships(PP)

Knowledge/experienceofdifferenttypes/modes ofpeersupport(PP)

WhatImightsayasapeer-mentor(PP)

Key:PT,physiotherapist;OP,olderpersonwithCLBP;PP,potentialpeer.

fortheircondition.Table4showsthattheself-management strategiesemployedrelatedtoeducation, exercise(general orspecific), andotherstrategies(e.g.medicationuse, con-sultingotherhealthprofessionals,andcomplementary and alternativemedicine).

Barrierstoself-managementandpeer-mentoring

Self-management. Person-specific barriers were discussed by physiotherapists and included: lack of time; low fit-ness levels; patients’ expectations, and the presence of co-morbidities.Thesebarrierswererelatedtoolderpeople’s abilitytoadheretoexerciseasaself-management interven-tion.Somephysiotherapistsrelatedthesebarriersdirectlyto age,suggestingthatolderpeopleoftenhadlowerexpectations oftheircapacityforexercise,orforsymptomatic improve-ment.Thesewerenotsuggestedbyolderpeopleorpotential peersasbarrierstoself-management.

Physiotherapistsfromrurallocations discussedthelack ofresources,(e.g.exerciseclassesandwalkinggroups),and theshort-termnatureof someresources,commonlydueto lackofcontinuedfunding:

...Wedosignposttowhat’savailable,butIdotendtofind inasmallruralarea,there’snotthesamefacilitiesasthere mightbein[Cityname]...”[Physiotherapist13]

Peer-mentoring. Ruralitywasalsoseenasapotentialbarrier topeer-mentoring,duetoarangeoffactorssuchaspublic transportandpoorwinterweather:

Table4

Self-managementstrategiesusedbyolderadultswithCLBPandpotential peers.

Education NHSBackBook Painmanagement Posture Pacing

Exercise Physiotherapyexercises Strength&balanceclasses Swimming

Walking Wii Yoga/Pilates Otherinterventions Heat/Cold

Relaxation TENS

Complementary&AlternativeMedicine Medication Weightcontrol Acupuncture Chiropractic Massage Osteopathy

Adaptingbeds/seating/otheraids Takingresponsibility Self-motivation

Supportfrompeers Supportfromfamily

Key:NHS,NationalHealthService,TENS,transcutaneouselectricalnerve stimulation.

“Peer-mentoringwouldhavetobeverylocal,becausepeople, whenitcomestowintertime,don’twanttobegoingoutand thingslikethat”[Potentialpeer09Female]

Internet-based peer-mentoring was viewed by some as apotential methodofovercoming thisbarrier.However, it wasacknowledgedthatitcouldalsoimposerestrictionsdue tosecurityconcerns,andageneralpreferenceforpersonal contact.

Perceivedbarrierstoface-to-facepeer-mentoringincluded thepersonalnatureofCLBP:

“Ithinkit’squiteapersonalsortofthing,actually.Imean, whatcanworkforsomebodywouldn’tnecessarilyworkfor me.AndIthinkit’s,it’salmostlike ajourney.Youhaveto findoutwhatworksforyou.[Potentialpeer08Female]

Physiotherapistsexpressedconcernthatmentorsmayuse mentoring as an opportunityto expresspersonal anxieties or demands for attention, and that mentors may dwell on the problem of CLBP rather than facilitating active self-management. Some expressed concern about the lack of controloverapeer-mentoringrelationship:

“[It’simportant]that peoplearegetting theright informa-tion, and correct information, that they need. It’s not just googledandIfoundx,y,andz...”[Physiotherapist12]

This concern was mainly that peer-mentors may rec-ommend interventions that were not evidence-based or recommended. However,physiotherapistsagreedthat none

(5)

ofthesepotentialbarrierswereinsurmountableandsuggested thatclearguidelines,adequatetrainingandcarefulmatching ofolderpeopletopeer-mentorswereessential.

Someolder peoplewithCLBP expressedthe viewthat supportfrom apeermay notbe valued or ratedas highly as support from “someonewho had an official capacity”. One participant suggested that there may be a sense of obligation to a peer and it may be difficult to elect to discontinue the relationship, whereas with a paid profes-sional:

...if youfeel, if you don’t wantto do it,you canignore them.”[Olderperson8Female]

Conversely,severalphysiotherapistsfelttheempathyand shared experiences that peers could offer would provide “added value” and impart greater confidence in self-managementthancouldbeachievedbyprofessionalsalone, therebybreakingdependencyonhealthcareservices: “...mentorstakingtheonusawayfromthehospitalsideof things, into the realworld.It’s really trying tobreak that chain of them being dependent on hospital...it wouldbe reallygood”[Physiotherapist12]

Oneparticipantfeltthatifapeer-mentoringintervention wasseenas“justfortheelderly”thenitmightputpeopleoff, recallingherexperiencewithbeingrecommendedtoattend anexerciseclass:

“IfeltthatwasforelderlypeopleandI’mnotthatelderly”

[Olderperson5,Female]

Visionofpeer-mentoring. Someparticipants discussedthe relative merits of peer-support withina groupand one-to-onepeer-mentoring.Potentialpeershadnoclearpreference, identifyingadvantagesandlimitationsinboth.One partici-pantprofferedthefollowingsuggestionforone-to-onepeer mentoring:

....Meetingsomeoneover a cupofcoffee andgetting to knowthemjustalittlebit,Ithink,wouldbethewayforward.”

[Potentialpeer11Male].

Therewasgoodagreementacrossallthreesamplesthat peer-mentoringshouldbetailoredtotheindividual’sneeds. Despitetheinternet-basedbarrierspreviouslydiscussed, it wasfelt that theinternet maybea usefulformof peer-mentoringforthosewhowereconfidentinitsuse.Indeed,one participantdiscussedtheimportanceofnotmaking assump-tionsaboutolderpeopleandtechnology:

“Yep, because a lot ofolder people, I knowfromwalking group,theydohavetheinternet,andforthemit’showthey keepintouch withyouknow,their familieswho’ve moved away.”[Potentialpeer04Female]

Most participants agreed that sharing information and giving support and advice could be components of a

peer-mentoringintervention,aswellasempathisingand help-ingpeopleputthingsintoperspective:

“Knowing somebody else is havingthe same problems as you”[Potentialpeer02Female]

“They’remorelikelytolistentoanotherpatient,ratherthan listentoadoctor.Becauseadoctordoesn’tknow...doctors don’tknowthepainyou’regoingthrough”[Potentialpeer10 Male]

Empathywasseenbymanyasthemostimportant dimen-sion – more important than practical advice or support. Participantsusedphrasessuchas“beingbelieved”and “peo-ple notunderstandinghow itcanreallytakeyoudown”to illustratethepoint.

Similarly, physiotherapists agreed that encouragement andreassurancecouldbeanimportantroleforapeer-mentor, particularlyasitwouldoccurinaninformalway.Theyalso feltthatpeer-mentorscouldprovidepositiverole-modelling, thereby reducing anxiety,andsuggested that peer-mentors mightaccompanyolderpeopletoexerciseclasses,whichis somethingaprofessionalisrarelyabletodo.

Whilst most older people were positive regarding the potentialbenefitsofpeer-mentoringthiswasnotthecasefor all.Twofeltthatitwouldnothavebenefittedthempersonally. Thisisinkeepingwithindividualisingpeer-mentoring,and itnotbeing“onesizefitsall”orindeednotappropriatefor allolderpeoplewithCLBP.

Finally,allparticipantsagreedthatoneofthemost impor-tant practicalaspects ofapeer-mentoringinterventionwas thematchingprocess.Ageandgenderwerenotseenbymany asparticularlyimportantattributestoconsider,butcommon interestswere.

The voiceofexperience. Somepotentialpeersalreadyhad experienceofpeer-mentoringormoregeneralpeer-support, including:volunteeringatsupportgroups;supportingfriends orfamilymembers;peer-mentoringduringacademicstudy, andsupportingfellowsportscoaches. Oneparticipantwas asked byhis surgeontospeaktopatients about his CLBP experience.Severalhadexperienceofinformalpeer-support throughtheirrolesaswalkleaders,membersofgroups,and withintheirsocialcircles.

Potential peers were asked what they felt they might contributeinaCLBPpeer-mentoringrelationship.They com-monly discussed the needto supportpeopletobe/become positiveanddetermined:

“Keepgoing,keepgoing.Don’tletitgetyoudown”[Potential peer06Male]

Theyalsodiscussedsupportingpeopletolearnpacingand taking responsibility and the importance of understanding thatnotallpaincouldbemanagedwellallofthetime.The abilitytomanagetheirownpaindidn’tappeartoinfluence their opinionof otherswhose pain management strategies maynotbeaseffective:

(6)

“Fortunatelymineclearedup...butIknowthatotherpeople’s doesn’t...Icanappreciatetheproblemssomepeoplehave”

[Potentialpeer02,Female]

Overwhelmingly,regardless of the nature of their back pain andpersonal circumstances, potential peers felt they could provide empathy and understanding to others with CLBPandthatdespitetheindividualnatureofthepain expe-riencetherewouldbeanelementofcommonalityinpeople’s approachestoself-management.Forthisreason,allthe poten-tialpeersfelttheypersonallywouldhavesomethingtooffer anotherpersonwithCLBPintermsofpeersupport.

Discussion

To our knowledge this is the first study toexplore the perceptions of older adults with CLBP, physiotherapists and potential peers in relation to peer-mentoring to sup-port self-management following physiotherapy discharge. Despitesomedifferencesamongthethreesamplestherewas generalagreementthat;peer-mentoringmightbebeneficial for older adults with CLBP, and whilst barriers to peer-mentoringandself-managementmust beacknowledged,it isconceivablethat theycouldbe overcomeindesigning a peer-mentoringintervention.

The older people and potential peers in this study describedself-management strategies inkeepingwith pre-vious literature [9,27], in which medical management, role management, and emotional management are essen-tial elements. The barriers discussed are also in keeping with previous research [11,12]. The sample may there-fore be viewed as broadly typical of older people with CLBP.

ThefindingsdemonstratedthatolderpeoplewithCLBP, potentialpeers,andphysiotherapistscouldidentifypositive and negative aspects of peer-mentoring. Physiotherapists’ concernsthatpeer-mentorsmayusetheprocesstoexpress their own anxieties or to recommend non evidence-based treatmentsforCLBPcouldbeovercomewithcareful atten-tiontorecruitmentofpeer-mentorsandtheirtraining,with predetermined criteriathat potential mentors mustachieve beforeparticipatinginanyintervention.Previousresearchon peer-mentoringindiabeteshasemployedthisapproach effec-tively [28]. However, the physiotherapists’ concerns may be indicative of their own elevated fear-avoidance beliefs inrelationtoCLBP[29]andperhaps physiotherapistsand peer-mentorsworkingcollaborativelytosupportolder peo-plewithCLBPmightresultinacomprehensiveapproachto person-centredcare.

Arecentqualitativesynthesishighlightingthepotentialfor unevenpowerrelationshipsbetweenmentorandmentee[30], alsosuggestedthatcarefuldesignmightavoidsuchnegative aspects,andthattherelationshipmaybecomemorebalanced withtime.Consequently, theduration ofa peer-mentoring interventionisimportanttoconsider.

Thatphysiotherapists,butnotolderpeople,identified age-relatedbarrierstoself-managementandpeer-mentoringmay relate tophysiotherapists’ perceptionsof olderpeopleand theircapacityforself-management,and/ormaybereflective oftheage-differencebetweenthegroupsofparticipants.In contrast severalolderpeople werekeen toavoid interven-tions that would label themas “elderly” andto challenge commonmisconceptions(e.g.internetusebyolderpeople). Thesefindingshavewiderimplicationsforphysiotherapyin general,andmaybenefitfromfurtherresearchtoidentifythe extentofsuchperceptionsandhowtheymaybealtered.

That peer-mentoring was broadly viewedpositively by participants, andthatsuggestionsfor overcomingpotential barrierswereforthcomingsuggeststhatpeer-mentoringfor CLBPmaybeworthexploringfurther.Importantcomponents ofapeer-mentoringintervention,fromtheperspectiveofour participants,areinkeepingwiththosedeliveredinprevious studiesonotherchronicconditions,whichhaveemphasised information-sharing,practicalsupportandadvice[17,28].

Thatempathywasseenasimportantbybotholder peo-pleandphysiotherapistssuggeststhatallthreedimensionsof peer-support (emotional, appraisal andinformational) [13]

shouldbe incorporatedinanintervention.The importance placedonindividualisingapeer-mentoringintervention rein-forcesthatanyintervention,whetherhealth-professionalor peerdelivered,shouldbepatient-centred.Thus,anelement of flexibilityneeds tobe incorporatedintoan intervention aimedatfacilitatingself-managementofCLBP.

Peer-mentoringwasnotperceivedas beingone particu-larformat;participantsdiscussedone-to-one,internet-based, andone-to-onewithingroupformats,oftenwithno promp-ting.Whilstpeer-mentoringhasbeensuccessfullydelivered inalltheseformats[20–22],someofthe practicalbarriers discussedinourstudymightbeovercomebythedesignofa flexibleinterventionthatcanbedeliveredinvariousformats. The potentialpeersdiscussedexperiences thatcould be termed peer-support, suggesting that some older people may possess relevant knowledge, skills and interpersonal behavioursthataresuitedtoparticipatinginpeer-support.It willbeimportanttoacknowledgethisinanytrainingprovided tovolunteerpeer-mentors,andtotailortraining,aswellas thedesignofanindividualisedpeer-mentoringintervention, toindividuals’needs.

Limitations

Ourparticipantsweremostlyfemaleandourresearchwas conductedinoneregionoftheUK;Consequently,different perceptionsofpeer-mentoringmayexistinthewider popu-lation.Weusedconveniencesampling,andrecruitmentfrom physiotherapydepartmentswaslow.Itispossiblethat purpo-sivesamplingwouldresultinabroaderrangeofviews.Wedid notperformmember-checkingofthetranscriptsordata anal-ysis.However, focusgroupsandinterviewswere recorded and transcribed verbatim, reducing the potential for error, andthedatawereanalysedbymorethanoneresearcher,one

(7)

ofwhomwasexperiencedinframeworkanalysis,inkeeping withrecommendedpractice[31].

Conclusion

Peer-mentoringappearstobeanacceptable conceptfor olderpeoplewithCLBP,andapeer-mentoringintervention could be used to provide support, particularly emotional, to older people following discharge from physiotherapy. In designing such an intervention careful attention should be paid to the: recruitment of peer-mentors; provision of appropriatetraining,andmonitoringthementee-mentor rela-tionship to prevent any negative consequences. Both the trainingandpeer-mentoringinterventionshouldbe person-centredandflexibleinnature,inordertomeetindividuals needs and prior experience. These results are being used toinformthedesignofsuchanintervention,whichwillbe testedonagroupofolderpeoplewithCLBPandvolunteer peer-mentors.Ifsuccessful,itmightprovideacost-effective methodoffacilitatinglonger-termself-managementofa sig-nificanthealthconditioninolderpeople.

Acknowledgements

Wewouldliketothankalltheolderpeopleand physiother-apistswhoparticipatedinthestudy,andthephysiotherapists whoassistedwithparticipantrecruitment.

Ethicalapproval:EthicalapprovalwasgrantedbytheNorth ofScotlandResearchEthicsCommittee.

Funding:ThisworkwassupportedbyTheDunhillMedical Trust[grantnumber:R300/0513].

Conflictofinterest:Therearenoconflictsofinterest.

References

[1]AbdullaA,AdamsN,BoneM,ElliottAM,GaffinJ,JonesD,etal.

Guidanceonthemanagementofpaininolderpeople.AgeAgeing 2013;42:i1–157,http://dx.doi.org/10.1093/ageing/afs200.

[2]WeinerDK,SakamotoS,PereraS,BreuerP.Chroniclowbackpainin olderadults:prevalence,reliability,andvalidityofphysical examina-tionfindings.JAmGeriatrSoc2006;54(1):11–20.

[3]Global Burden of Disease Study 2013 Collaborators. Global, regional, and nationalincidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990–2013: a systematic analysis for the Global Burden of Disease Study 2013. Lancet 2015;386(9995):743–800 http://www.ncbi.nlm.nih.gov/pubmed/26364544.

[4]Hong J, Reed C, Novick D, Happich M. Costs associated with treatment of chronic low back pain: an analysis of the UK General Practice research database. Spine 2013;38(1):75–82, http://dx.doi.org/10.1097/BRS.0b013e318276450f.

[5]PillastriniI,GerdenghiI,BonettiF,CapraF,GuccioneA,MugnaiR,

etal.Anupdatedoverviewofclinicalguidelinesforchroniclowback painmanagementinprimarycare.JointBoneSpine2013;79:176–85, http://dx.doi.org/10.1016/j.jbspin.2011.03.019.

[6]NationalInstituteforHealthandCareExcellence(NICE).Lowback paininadults:earlymanagement.ClinicalGuideline2009,May. Avail-ablefrom:www.nice.org.uk/guidance/cg88[accessed11.03.16]. [7]Scottish Intercollegiate Guidelines Network (SIGN). Management

of chronic pain. SIGN publication 136. Edinburgh: SIGN; 2013, December.Availablefrom:http://www.sign.ac.uk[accessed11.03.16]. [8]BoyersD,McNameeP,ClarkeA,JonesD,MartinD,SchofieldP,

etal.Cost-effectivenessofself-managementmethodsforthetreatment ofchronicpaininanagingpopulation:asystematic reviewofthe literature.ClinJPain2012;29(4):366–75,http://dx.doi.org/10.1097/ AJP.0b013e318250f539.

[9]Kawi J. Chronic low back pain patients’ perceptions on self-management, self-management support, and functional ability. Pain Manag Nurs 2014;15(1):258–64, http://dx.doi.org/10.1016/ j.pmn.2012.09.003.

[10]LansburyG.Chronicpainmanagement:aqualitativestudyofelderly people’spreferredcopingstrategiesandbarrierstomanagement. Dis-abilRehabil2000;22(1/2):2–14.

[11]Lukewich J, Mann E, VanDenKerhhof E, Tranmer J. Self-managementsupportforchronicpaininprimarycare:across-sectional study of patient experiences and nursing roles. J Adv Nurs 2015;71(11):2551–62.

[12]MaillouxJ,FinnoM,RainvilleJ.Long-termexerciseadherencein theelderlywith chronic lowbackpain.AmJ PhysMed Rehabil 2006;85(2):120–6.

[13]DennisC-L.Peersupportwithinahealthcarecontext:aconcept anal-ysis.IntJNursStud2003;40:321–2.

[14]TangTS,AyalaGX,CherringtonA,RanaG.Areviewof volunteer-based peer support interventions in diabetes. Diabetes Spectrum 2011;24(2):85–98.

[15]Dysvik E, Furnes B. Nursing leadership in a chronic pain management group approach. J Nurs Manag 2012;20:187–95, http://dx.doi.org/10.1111/j.1365-2834.2011.01377.

[16]ShresthaS,Schofield P,DevkotaR.Acriticalliteraturereviewon non-pharmacologicalapproachesusedbyolderpeopleinchronicpain management.IndianJGerontol2013;27(1):135–61.

[17]MentalHealthFoundation.Peersupportinlongtermconditions:the basics.Edinburgh:MentalHealthFoundation;2012.Availablefrom: http://www.mentalhealth.org.uk/publications/187654/.

[18]MatthiasMS,McGuire AB,Kukla,Daggy J,MyersLJ, BairMJ. Abriefpeersupportinterventionforveteranswithchronic muscu-loskeletalpain:apilotstudyoffeasibilityandeffectiveness.PainMed 2015;16(1):81–7,http://dx.doi.org/10.1111/pme.12571.

[19]Simmons D, Prevost AT, Bunn C, Holman D, Parker RA, Cohn S, et al. Impact of community based peer support in type2 diabetes: a cluster randomised controlled trial of individ-ual and/or group approaches. PLOS ONE 2015;10(3):e0120277, http://dx.doi.org/10.1371/journal.pone.0120277.

[20]Dale JR, Williams SM, Bowyer V. What is the effect of peer support on diabetes outcomes in adults? A systematic review. Diabetes Med 2012;29(11):1361–77, http://dx.doi.org/10.1111/ j.1464-5491.2012.03749.

[21]CooperK,Kirkpatrick P, WilcockS.Acomprehensive systematic reviewoftheeffectivenessofpeersupportinterventionsforcommunity dwellingadultswithchronicnon-cancerpain.JBIDatabaseSystRev ImplementRep2014;12(5):319–48.

[22]OdeenM,IhlebaekC,IndahlA,WormgoorMEA,LieSA,EriksenHR. Effectofpeer-basedlowbackpaininformationandreassuranceatthe workplaceonsickleave:aclusterrandomizedtrial.JOccupRehabil 2013;23:209–19.

[23]OrmstonR,SpencerL,BarnardM,SnapeD.Thefoundationsof quali-tativeresearch.In:RitchieJ,LewisJ,McNaughtonNichollsC,Ormston R,editors.Qualitativeresearchpractice.Aguideforsocialscience studentsandresearchers.London:Sage;2014.

[24]BarbourRS.Focusgroups.In:BourgeaultI,DingwallR,DevriesR, editors.TheSagehandbookofqualitativemethodsinhealthresearch. London:Sage;2010.

(8)

[25]SpencerL,RitchieJ,O’ConnorW,MorrellG,OrmstonR.Analyss inpractice.In:RitchieJ,LewisJ,McNaughtonNichollsC,Ormston R,editors.Qualitativeresearchpractice.Aguideforsocialscience studentsandresearchers.London:Sage;2014.

[26]Ward DJ, Furber C, Tierney S, Swallow V. Using framework analysis in nursing research: a worked example. J Adv Nurs 2013;69(911):2423–31,http://dx.doi.org/10.1111/jan.12127. [27]LorigKR,HolmanHR.Self-managementeducation:history,definition,

outcomes,andmechanisms.AnnBehavMed2003;26(1):1–7. [28]TangTS,FunnellMM,GillardM,NwankwoR,HeislerM.

Train-ing peers to provide ongoing diabetes self-management support (DSMS):resultsfromapilotstudy.PatientEducCouns2011;85:160–8, http://dx.doi.org/10.1016/j.pec.2010.

[29]DarlowB,FullenBM,DeanS,HurleyDA,BaxterGD,DowellA. Theassociationbetweenhealthcareprofessionalattitudesandbeliefs andtheattitudesandbeliefs,clinicalmanagement,andoutcomesof patientswithlowbackpain:asystematic review.EurJPain2012; 16(1):3–17.

[30]EmbuldeniyaG,VeinotP,BellE,BellM,Nyhof-YoungJ,SaleJE,

etal.Theexperienceandimpactofchronicdiseasepeersupport inter-ventions:aqualitativesynthesis.PatientEducCouns2013;92(1):3–12, http://dx.doi.org/10.1016/j.pec.2013.02.002.

[31]Gale NK, Health G, Cameron E, Rashid S, Redwood S. Using theframeworkmethodfortheanalysisofqualitativedatain multi-disciplinaryhealthresearch.BMCMedResMethodol2013;13(117), http://dx.doi.org/10.1186/1471-2288-13-117.

Availableonlineatwww.sciencedirect.com

References

Related documents

The design and development of the ADHD e-learning resource were based upon a range of instructional design, educational and multimedia principles.. A literature search revealed

Rab7 specifically regulates the trafficking and maturation of vesicle populations that are involved in protein degradation including late endosomes, lysosomes, and autophagic

A 9 mm thick dielectric layer of this material is also placed under the main (1 mm) substrate and finally a 10 mm layer of the same material is placed over the metal to give the

Group (I) was treated with Madhukadi Taila Karnapichu and Rasnadi Guggulu orally and Group (II) with Madhukadi Taila Karnapichu only. Significant results were found in the signs

The microspheres were evaluated for percentage yield, Micromeritic properties, Particle size, entrapment efficiency, shape and surface morphology studies by SEM, mucoadhesivity

We investigated whether neonates re- ceiving breast milk (the joint breastfed and bottle-fed groups) had, on average, a lower PIPP score than those receiving a sucrose solution..

We found that extremely preterm infants of diabetic mothers with IBP have smaller average head circumference and are at higher risk of NEC and LOS but are not at higher risk

PKU, phenylketonuria; AAP, American Acad- emy of Pediatrics; MCHB, Maternal and Child Health Bureau; ARC, Association for Retarded Citizens; MCH, maternal and child health