QUESTIONNAIRE
SUMMARY
Objectives & Methodology
.
OBJECTIVES OF THE RESEARCH
1.) Collect basic information about national associations in BIF-EC
2.) Briefly describe the situation and the system of care after brain injury in individual
countries
METHODOLOGY OF THE RESEARCH
Research tool: Questionnaire
18 questionnaires were sent to the BIF-EC partners
Returnability: 9 complete questionnaires
(Austria, Czech Republic, France, Iceland, Ireland, Portugal,
Slovenia, Spain, UK)
78
5
2
100
3
12
28
3
5
24
12
41
6
84
95
17
20
10
8
30
6
4
2
20
50
1
2
2
5
35
52
80
35
10
Czech
Republic
UK
Portugal
Sweden
Iceland
France
Spain
Slovenia
Ireland
Other way
Company Sponsorship Foundations - charities Ministry of Health Ministry of Labour Ministry of Social Affairs Government
Member Fees Private Funds
2
FINANCING OF THE BIF ORGANISATION
A5. How is your organisation financed? Could you estimate the approximate percentage of the funding?%
HOSPITAL – FOLLOW UP RHB
RESPONSIBILITY
REFERENT
CASE
MANAGER
KEY
WORKER
FAMILIES
DOCTORS
NO ONE
OTHER
UK
X
X
X
X
FRANCE
X
X
X
SWEDEN
X
X
X
X
IRELAND
X
X
X
X
AUSTRIA
X
X
CZECH REPUBLIC
X
X
SPAIN
X
X
ICELAND
X
SLOVENIA
X
B8. Who is responsible for moving the patient with BI from hospital/in-patient rehabilitation to follow-up care/rehabilitation in your country?
SERVICES OF THE BIF ORGANISATION
AUT
CZ
FR
IS
SLO
SPA
SWE
UK
IR
Help line
X
X
X
x
X
X
X
X
X
Psychological support
X
X
X
X
X
X
X
Social Services
X
X
X
X
X
Supported
Accomodation
X
X
Supported
Employment
X
Reha Centres
X
X
X
X
Vocational reha
X
X
X
Community reha
X
X
X
X
Outreach Team
X
x
X
Other
x
x
x
x
SERVICES OF THE BIF ORGANISATION
AUT
CZ
FR
IS
P
SLO
SPA
SWE
UK
IR
Awareness Campaing
X
X
X
X
X
X
X
X
X
X
Sharing of experience
rehabilitation
X
X
X
X
X
X
X
X
X
Sharing of experience
provision of social services
X
X
X
X
X
X
X
x
Sharing of experience
supported employment
services
X
X
X*
X
X
X
Sharing of experience
vocational rehabilitation
X
X
X*
X
X
X
X
Cultural events
X
X
X*
X
X
X
X
Capacity building
X
X
X*
X
X
How system of
care/rehabilitation should be
organised
X
X
X
X
X
X
X
X
X
Research
X
X
X
X
X
X
X
X
x
A4. What fields of cooperation with other EU/international associations is your association interested? (possible projects)
STATE ASSESSMENT OF
THE SERVICES
EARLY REHABILITATION
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
AUSTRIA
X
ICELAND
X
SLOVENIA
X
FRANCE
X
IRELAND
X
UNITED KINGDOM
X
CZECH REPUBLIC
X
SPAIN
X
REHABILITATION (FOLLOW UP)
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
AUSTRIA
X
FRANCE
X
IRELAND
X
SLOVENIA
X
CZECH REPUBLIC
X
UNITED KINGDOM
X
ICELAND
X
SPAIN
X
LONG-TERM CARE
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
FRANCE
X
IRELAND
X
UNITED KINGDOM
X
AUSTRIA
X
CZECH REPUBLIC
X
ICELAND
X
SLOVENIA
X
SPAIN
X
RESPITE CARE
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
AUSTRIA
X
FRANCE
X
SPAIN
X
CZECH REPUBLIC
X
ICELAND
X
IRELAND
X
SLOVENIA
X
UNITED KINGDOM
X
SOCIAL SERVICES
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
FRANCE
X
SPAIN
X
AUSTRIA
X
CZECH REPUBLIC
X
ICELAND
X
SLOVENIA
X
UNITED KINGDOM
X
IRELAND
X
EMPLOYMENT SERVICES
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
CZECH REPUBLIC
X
FRANCE
X
IRELAND
X
SLOVENIA
X
SPAIN
X
UNITED KINGDOM
X
AUSTRIA
X
ICELAND
X
SUPPORT ACCOMODATION SERVICES
VERY WELL
ACCESSIBLE
WELL
ACCESSIBLE
POORLY
ACCESSIBLE
VERY POORLY
ACCESSIBLE
FRANCE
X
UNITED KINGDOM
X
AUSTRIA
X
CZECH REPUBLIC
X
ICELAND
X
SLOVENIA
X
SPAIN
X
IRELAND
X
Key provider of information
Doctors Therapist and other professional Patient´s organisation
Who is the key provider of information to the patient with BI and family in hospital / after leaving hospital (in community or rehabilitation centre)?
Doctors Therapist and other professional in the field
Patient´s organisation
In hospital
Acute care and rehabilitation ( FRANCE)
Acute care and tretment, neurosurgery for people with TBI. Acute tretment for patients with cerebrovascular incidents is not that well
organized yet. However, from now on they will be directed to special strokes units that will also provide them with multidosciplinary early rehabilitation. (CZECH REPUBLIC)
Nothing, because they don´t any basic need covered. (SPAIN)
Acute treatment is generally excellent. Rehabilitation provision is good excellent where available. Where they are available, all of our
services operate to a very high standard within general NHS and more neurological-conditions specific guidelines (NSF). We are lucky to have some good services in this country. Our welfarú social services are quite well developed and provide a good service but there is a wide variation (UK)
Acute care and early rehabilitation to some extent (ICELAND)
Daily care in bigger cities (socialization and learning of people with BI in associations (SLOVENIA)
Acute care is excellent, early intensive care as well. The long term rehabilitation is not up to best practice (SWEDEN)
Neurosurgery and acute care is well delivered. Post acute inpatient rehabiitation is high quality when it can be accesed (AUSTRIA)
Neurosurgery and acute care is well –delivered. Post acute inpatient rehabilitation is high quality when it can be accessed.
