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(1)

HIV Quality of Care in New York: A National Model

Bruce D. Agins, MD MPH, Instituto del SIDA, Departamento de Salud del Estado de Nueva York, EE.UU.

This session will provide the audience with an overview of a model for a comprehensive HIV

Quality of Care Program. This model, based on the philosophy of quality improvement,

incorporates program standards for HIV health care providers, indicator development,

performance measurement, consumer initiatives, and the HIVQUAL Project. The HIVQUAL

Project is a national program to build capacity and capability for quality improvement among

HIV clinics.

The HIV Quality of Care Program

The HIV Quality of Care Program

BRUCE D. AGINS, M.D.,M.P.H. Medical Director, AIDS Institute New York State Dept. of Health

The New York State Department of Health AIDS Institute

Statement of Purpose

Statement of Purpose

To improve the quality of care for

persons living with HIV in New York

State.

(2)

Spring 2002 AIDS Institute

The State:

The State:

Public Health Functions

Public Health Functions

To promote quality and equality

Track emerging populations

To protect the public health

Regulatory authority to enforce and

administer sanctions as necessary

Implementation of a Statewide

Implementation of a Statewide

HIV Quality Of Care Program

HIV Quality Of Care Program

(1)(1)

Identify or Create Practice Guidelines

Establish Priorities for Measurement Using HIV Specialists

Select and Develop Indicators

Begin Data Collection after Pilot Test

Implementation of a Statewide

Implementation of a Statewide

HIV Quality Of Care Program

HIV Quality Of Care Program

(2)(2)

Analyze Data & Distribute to Providers

Promote Quality Improvement Activities Consultation—Technical Assistance---Clinical Education

Release Performance Data & Educate Consumers to Enhance Decision-Making

(3)

Spring 2002 AIDS Institute

What is quality improvement?

What is quality improvement?

Quality improvement vs. quality assurance

Performance measurement: aggregate vs.

individual

Emphasis on systems of care, not individual

providers

Programs use data to improve care

Comparative & longitudinal analysis

Involves the customer…

The HIV Quality of Care Program

The HIV Quality of Care Program

Built on the philosophy of CQI

Implemented in 1992

Reviews at over 120 facilities:

hospitals - community health centers – drug treatment programs - Adult Day Care programs

(4)

Spring 2002 AIDS Institute

The HIV Quality of Care Program

The HIV Quality of Care Program

Responsibility for systematic monitoring of

quality of medical care and services provided to

all individuals with HIV in New York State

Indicators are process measures linked to

optimal care outcomes

Incorporates principles of quality improvement

(QI)

Spring 2002 AIDS Institute

The HIV Quality of Care Program

The HIV Quality of Care Program

Providers are encouraged to analyze data

and assess internal factors that contribute

to their organizational performance

Results presented as aggregate data

Comparative analysis and benchmarking

AIDS Insti tute HIV C ommu nity Clinical Guidelines Committees HIV Quality Advisory Committee HIV SNP Quality Committee Performance Measurement IPRO HIVQUAL2 Quality of Care Workgroup Performance Data Release Performance Improvement Campaign QI Consultation AIDS Institute HIV Quality of Care Program Office of the Medical Director HIV Care Providers HIV Consumers Title I Quality Committee

(5)

Spring 2002 AIDS Institute

Performance Measurement

Performance Measurement

Spring 2002 AIDS Institute

Strategies:

Strategies:

Data Collection

Data Collection

Options

:

– Administrative data sets

– Record reviews

– Self-reporting

– Site Visits

Medical Record Reviews:

Medical Record Reviews:

Pros & Cons

Pros & Cons

PROS:

– Uniformity of processes – Standards applied universally – Consistency of training of abstractors – Enhanced validity

– Inter-rater reliability

CONS:

– Resources – Confidentiality

(6)

Spring 2002 AIDS Institute

Self

Self

-

-

Reporting:

Reporting:

Pros & Cons

Pros & Cons

PROS:

– Institutionalization of culture of quality – Provider capability

– Data skills: sampling, validity – External resources

CONS:

– Reliability

– Uniformity of statewide data – Internal Resources

Spring 2002 AIDS Institute

Strategies:

Strategies:

Core Performance Measures

Core Performance Measures

HIV Staging: CD4 & Viral Load monitoring

Antiretroviral Therapy

OI Prophylaxis: PCP, MAC

PPD Screening

GYN Care

STD Screening

Oral Health Care

Spring 2002 AIDS Institute

Strategies:

Strategies:

Core Performance Measures

Core Performance Measures

Adherence to ARV therapy

HIV Specialist care

Perinatal transmission prophylaxis

Pediatric care:

– Staging

– PCP Prophylaxis

(7)

Spring 2002 AIDS Institute

Strategies:

Strategies:

New Performance Measures

New Performance Measures

Hepatitis C

Mental health assessment

Case management

Patient education

Spring 2002 AIDS Institute

Strategies:

Strategies:

Feedback

Feedback

Performance data

– Facility-specific

– Aggregate

– Longitudinal Trends

– Statewide managed care measures

– Population groups

Identify Providers of Excellence

Clinical Performance Data

Clinical Performance Data

65 70 75 80 85 90 95 100 1994 1995 1996 1997 1998 PCP PPD Pelvic

(8)

Spring 2002 AIDS Institute

Referral for Dental Primary Care

Referral for Dental Primary Care

15 20 25 30 35 40 45 50 55 60 1996 1997 1998 Dental

Spring 2002 AIDS Institute

Performance Data Release

Performance Data Release

First HIV-specific performance data

release to the public in 2000

Consumer version

New version in 2002

Spring 2002 AIDS Institute

HIV Quality of Care Program

HIV Quality of Care Program

Standard

Standard

HIV service programs should develop and

implement formal quality of care programs

Infrastructure with quality plan, process for

ongoing evaluation & assessment

Performance measurement

QI activities by cross-functional teams,

including QI projects

Inclusion of patients

Staff education

(9)

Spring 2002 AIDS Institute

Consumer Initiatives

Consumer Initiatives

Distribute performance data in consumer

version

Elicit priorities from people living with HIV

Specific educational program

– understanding performance data – using data to advocate for best care

Patient satisfaction

Quality of life

Spring 2002 AIDS Institute

Strategies:

Strategies:

CQI Consultation

CQI Consultation

Enhance provider capability for CQI

Build quality infrastructure

CQI education

Data management skills

Promote multidisciplinary teams

Strategize to sustain quality improvement

Engage leadership

The HIVQUAL Project

The HIVQUAL Project

A

national

project to build capacity and

capability for quality improvement

among HIV clinics

Consultation emphasizing structure,

planning and QI projects

Self-reported performance

measurement using customized

software (

HIVQUAL2)

(10)

A Twelve-Step

Approach for

Statewide Quality

Spring 2002 AIDS Institute

ONE

ONE

Mandate specific quality improvement

activities in all programs that include

clinical performance measurement.

clinical performance measurement.

Spring 2002 AIDS Institute

TWO

TWO

Emphasize a culture of quality

improvement without setting minimum

performance standards.

(11)

Spring 2002 AIDS Institute

THREE

THREE

Convene advisory groups of providers,

payers, other governmental agencies

and consumers to define important

indicators that measure quality.

Spring 2002 AIDS Institute

FOUR

FOUR

Emphasize

Emphasize

structures and processes that

structures and processes that

providers establish to monitor and

providers establish to monitor and

routinely improve quality as part

routinely improve quality as part

of their

of their

work.

work.

FIVE

FIVE

Evaluate

Evaluate

programs with common

programs with common

measures to assess their quality

measures to assess their quality

improvement programs.

(12)

Spring 2002 AIDS Institute

SIX

SIX

Define

Define

uniform measurement criteria

uniform measurement criteria

that can be used for all programs that

that can be used for all programs that

reflect current guidelines.

reflect current guidelines.

Spring 2002 AIDS Institute

SEVEN

SEVEN

Fund

Fund

information system technology

information system technology

that supports CQI measurement

that supports CQI measurement

activities.

activities.

Spring 2002 AIDS Institute

EIGHT

EIGHT

Promote technical support from

experienced

experienced quality management

experts who can facilitate

capability

capability

of providers to build their own QI

systems.

(13)

Spring 2002 AIDS Institute

NINE

NINE

Stimulate creative systems for

measuring quality in communities

targeted through federal and state

government programs, such as the

Ryan White CARE Act.

Spring 2002 AIDS Institute

TEN

TEN

Reward

Reward

excellent providers with

excellent providers with

proven success who have

proven success who have

demonstrated successful QI

demonstrated successful QI

programs.

programs.

ELEVEN

ELEVEN

Encourage patient satisfaction

assessments and quality of life

analyses.

(14)

Spring 2002 AIDS Institute

TWELVE

TWELVE

Link

Link programmatic CQI monitoring to

centralized research activities

targeting outcomes and effectiveness.

Spring 2002 AIDS Institute

THE THIRTEENTH STEP

THE THIRTEENTH STEP

Disclose

Disclose

performance data to

performance data to

demonstrate accountability not

demonstrate accountability not

only to funders but to the general public.

only to funders but to the general public.

Spring 2002 AIDS Institute

For more information:

References

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