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Updated May 2016

Perinatal

 

Bereavement

Rana

 

Limbo,

 

PhD,

 

RN,

 

CPLC,

 

FAAN

Gundersen

 

Health

 

System,

 

La

 

Crosse,

 

WI

 

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Disclosures

Rana Limbo has no real or perceived conflicts of

interest that relate to this presentation.

Photos and figures are copyrighted by Gundersen

Lutheran Medical Foundation, Inc., and used with

permission.

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Objectives

1. Describe

 

caregiving

 

as

 

a

 

theoretical

 

framework

 

for

 

understanding

 

parental

 

response

 

to

 

the

 

death

 

of

 

a

 

baby

2. List

 

three

 

examples

 

of

 

effective

 

communication

 

with

 

bereaved

 

parents

3. Discuss

 

two

 

types

 

of

 

keepsakes

 

for

 

parents

 

and

 

other

 

family

 

members

(2)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Statistics

 

in

 

the

 

US

26,000

 

stillbirths

19,000

 

newborn

 

deaths

1,000,000

 

miscarriages

40

100,000

 

ectopic

 

pregnancies

5,600

 

babies

 

die

 

during

 

infancy

 

from

 

life

threatening

 

conditions

(American

 

Pregnancy

 

Association;

 

MacDorman &

 

Kirmeyer,

 

2009;

 

Matthews

 

&

 

MacDorman,

 

2011;

 

March

 

of

 

Dimes)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Theory

 

of

 

Caregiving

Complementary

 

to

 

attachment;

 

hard

wired

Consists

 

of

 

nurturing,

 

protecting,

 

and

 

socializing

Examples

 

of

 

each

 

of

 

these:

 

Nurturing:

 

Parent

 

bathing

 

the

 

baby

 

before

 

or

 

after

 

death

Protecting:

 

A

 

mother

 

wanting

 

a

 

hat

 

for

 

her

 

baby,

 

who

 

has

 

anencephaly

Socializing:

 

Noticing

 

that

 

others

 

call

 

the

 

baby

 

by

 

name,

 

wanting

 

to

 

show

 

baby’s

 

photos

 

to

 

others

(Bowlby,

 

1988)

Relationship

Care

 

providers

 

strive

 

for

 

integrity

 

in

 

relationships

 

with

 

patients,

 

families,

 

and

 

others

Maintaining

 

relationship

 

in

 

care

 

provision

 

and

 

decision

 

making

 

may

 

conflict

 

with

 

care

 

provider’s

 

basic

 

values

 

and

 

beliefs

Staying

 

connected

 

is

 

key

 

to

 

initiating,

 

maintaining,

 

and

 

transitioning

 

relationship

(3)

Miscarriage

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Miscarriage

Most

 

common

 

type

 

of

 

perinatal

 

loss

 

and

 

least

 

understood

Longitudinal

 

study

 

from

 

the

 

80s

 

showed

 

75%

 

of

 

women

 

felt

 

they

 

lost

 

a

 

baby;

 

25%

 

referred

 

to

 

miscarriage

 

as

 

“life

 

event”

 

(Limbo

 

&

 

Wheeler,

 

1986)

Findings

 

replicated

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Importance

 

of

 

assessment

“How

 

are

 

you

 

doing

 

with

 

all

 

of

 

this?”

“Tell

 

me

 

what

 

things

 

are

 

like

 

for

 

you.”

Listen

 

for

 

“baby”

 

or

 

“my

 

baby”

 

Response

 

does

 

not

 

depend

 

on

 

length

 

of

 

pregnancy

 

or

 

presence

 

or

 

absence

 

of

 

other

 

children

(4)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Early

 

confirmation

 

of

 

pregnancy

 

may

 

also

 

affect

 

perception

 

of

 

the

 

loss

 

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Determine

 

point

 

of

 

care

At

 

Gundersen Health

 

System,

 

70%

 

of

 

women

 

with

 

miscarriage

 

seen

 

in

 

emergency

 

room

Implement

 

SOP

 

that

 

includes

 

all

 

points

 

of

 

care

Ambulatory/outpatient

 

clinics

 

(family

 

medicine,

 

Ob/Gyn)

Day

 

surgery

Operating

 

room

(Bacidore,

 

et

 

al.,

 

2009)

Care

 

in

 

the

 

ER

Educate

 

staff

Involve

 

interprofessional

 

team

Carefully

 

assess

 

emotional

 

response

Include

 

support

 

person

 

in

 

discussion

Provide

 

miscarriage

 

comfort

 

supplies

 

for

 

diagnosis

 

of

 

“inevitable”

 

or

 

“threatened”

 

miscarriage

Make

 

follow

up

 

call

(5)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Providing

 

support

 

after

 

miscarriage

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Respectful

 

disposition

In

 

most

 

states,

 

no

 

requirement

 

for

 

burial

 

or

 

cremation

 

after

 

miscarriage

In

 

some

 

states,

 

patients

 

with

 

miscarriage

 

must

 

be

 

notified

 

that

 

they

 

have

 

a

 

choice

 

for

 

disposition

In

 

most

 

states,

 

miscarriage

 

is

 

<20

 

weeks

 

gestation

(Limbo,

 

Kobler,

 

and

 

Levang,

 

2010)

(6)

Stillbirth

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Death

 

Before

 

Birth:

 

Remembering

 

Sarah

Key

 

reminders

Be

 

“in

 

the

 

moment”

 

with

 

the

 

parents

 

and

 

family:

 

laughter

 

and

 

tears

 

are

 

complementary

Handle

 

the

 

baby

 

lovingly:

 

Tami

 

said

 

she

 

would

 

never

 

forget

 

“…the

 

nurse

 

who

 

patted

 

her

 

butt”

 

(socializing)

Explain

 

what

 

parents

 

might

 

see

 

in

 

language

 

that

 

makes

 

sense:

 

“You

 

might

 

see

 

that

 

the

 

skin

 

on

 

her

 

face

 

has

 

slipped

 

and

 

that

 

her

 

face

 

is

 

bright

 

red

 

in

 

spots.”

Work

 

closely

 

with

 

genetic

 

counselors

 

or

 

geneticists

(7)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Key

 

reminders

 

(continued)

Caregiving

 

theory:

 

“My

 

job

 

is

 

to

 

keep

 

her

 

memory

 

alive”;

 

“I’m

 

her

 

mother

 

and

 

she’s

 

my

 

daughter”

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Warland, J., & Davis, D. L. et al. (2011) Caring for families experiencing stillbirth: A unified position statement on contact with the baby. An international collaboration. (Downloadable from numerous websites including bereavementservices.org)

2

0

(8)

Newborn

 

Death

Setting

L&D

NICU

ER

PICU

Potential

 

Causes

Immaturity

 

or

 

prematurity

Sepsis

SIDS

Shaken

 

baby

Congenital

 

abnormalities

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Being

 

with

 

dying

 

newborns

Nurses

 

and

 

babies

 

are

 

“in

 

relationship”

Call

to

presence

Pattern

 

of

 

engagement

 

with

 

newborn

 

and

 

with

 

parents

Caring

 

may

 

involve

 

moral

 

distress:

 

tension

 

between

 

and

 

among

 

those

 

engaged

 

with

 

baby

Reflection

 

is

 

key

 

element

 

of

 

caring

Significance

 

of

 

inter

professional

 

team

End

of

life

 

caring

 

is

 

transformative

(Lindsay,

 

Cross,

 

&

 

Ives

Baine,

 

2012)

(9)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Zoe’s

 

mom

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Offering

 

choices

Standard

 

of

 

care

 

to

 

offer

 

choice

 

no

 

more

 

than

 

three

 

times

 

over

 

course

 

of

 

care

Inter

professional

 

team

 

approach

 

Non

judgmental

 

tone

Honoring

 

when

 

“no”

 

means

 

“no”

(Limbo

 

&

 

Kobler,

 

2010)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Have

 

you

 

thought

 

about

 

taking

 

photos

 

of

 

your

 

baby?

We

 

take

 

photos

 

routinely.

 

How

 

does

 

that

 

sound

 

to

 

you?

Families

 

have

 

shared

 

with

 

me

 

that

 

photos

 

have

 

been

 

important

 

to

 

them.

(10)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Skin

 

to

 

Skin

Perinatal

 

Palliative

 

Care

 

(PPC)

Life

threatening

 

diagnoses

Examples:

 

anencephaly,

 

trisomy

 

13

 

&

 

18

Two

 

dimensions

Grieving

 

multiple

 

losses

Arrested

 

parenting

(11)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Goal

 

of

 

PPC

Primary

 

goal:

 

advance

 

care

 

planning

 

and

 

birth

 

planning

 

that

 

reflect

 

parents’

 

goals,

 

values,

 

beliefs,

 

and

 

feelings

Goal

 

is

 

the

 

baby’s

 

comfort,

 

care

 

may

 

include

 

life

sustaining

 

modalities

 

(e.g.,

 

a

 

trial

 

of

 

treatment)

Support

 

changing

 

hopes

Help

 

parents

 

prepare

 

for

 

leave

taking

(Kobler

 

&

 

Limbo,

 

2011;

 

Wool

 

&

 

Northam,

 

2011)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Hope

 

in

 

decision

 

making

“Given

 

what

 

you

 

are

 

now

 

up

 

against,

 

what

 

are

 

you

 

hoping

 

for?”

“Do

 

you

 

mind

 

telling

 

me

 

what

 

else

 

you

 

might

 

be

 

hoping

 

for?”

Hope

 

for

 

comfort

 

and

 

hope

 

for

 

a

 

miracle

 

often

 

exist

 

simultaneously

(Feudtner,

 

2009;

 

Roscigno,

 

et

 

al.,

 

2012)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

PPC

 

resource:

 

RTS

 

Position

 

Paper

 

(12)

Children

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

The

 

Mullens children

What

 

to

 

say

 

to

 

children

“The

 

baby’s

 

body

 

didn’t

 

work

 

anymore.”

“Our

 

baby

 

died.”

“It’s

 

OK

 

to

 

feel

 

sad—or

 

not.”

(13)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

What

 

can

 

we

 

do?

 

Take

home

 

points

 

from

 

Bridge

 

to

 

Hope

Planning

 

for

 

a

 

wished

for

 

child

 

Compassionate

 

attitude

 

of

 

health

 

care

 

inter

professional

 

team

 

Importance

 

of

 

family

 

support

 

Remembrance

 

of

 

blessing

 

ritual

 

Ritual

 

that

 

grows

 

from

 

relationship:

 

nurse

 

holding

 

baby

Delivering

 

bad

 

news

 

with

 

“I

 

wish…”

 

(Quill,

 

Arnold,

 

&

 

Platt,

 

2001)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Take

home

 

points

 

(cont.)

Role

 

of

 

reflection

 

in

 

caregiver

 

suffering

(Papadatou,

 

2009)

“Being

 

with”

 

is

 

part

 

of

 

caring

(Swanson,

 

1993)

Parents

 

need

 

support

 

from

 

professionals

Acknowledge

 

their

 

feelings

Allow

 

time

 

for

 

decision

 

making

Encourage

 

and

 

welcome

 

supportive

 

family

 

and

 

friends

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Take

home

 

points

 

(cont.)

Look

 

for

 

meaningful

 

moments

 

from

 

which

 

ritual

 

can

 

arise

Grounding

 

oneself

 

and

 

reflection

 

are

 

part

 

of

 

self

 

care

(Limbo

 

&

 

Kobler,

 

2013;

 

Perry,

 

2008)

(14)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Awareness

 

and

 

self

care

PRAM

P

ause

R

eflect

 

A

cknowledge

be

 

M

indful

(Limbo

 

&

 

Kobler,

 

2013)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

PRAM

•Pause:

 

Stop.

 

Be

 

still.

 

Focus

 

on

 

something

 

in

 

your

 

environment.

•Reflect

 

on

 

your

 

own

 

breathing.

 

Think

 

about

 

what

 

a

 

relationship

 

might

 

look

 

like

 

between

 

you

 

and

 

the

 

person

 

you

 

are

 

about

 

to

 

meet

 

or

 

see.

 

Reflect

 

on

 

your

 

feelings.

•Acknowledge

 

your

 

feelings.

 

Name

 

what

 

you

 

feel.

 

Tell

 

yourself

 

it’s

 

OK

 

to

 

feel

 

as

 

you

 

do.

be

 

Mindful:

 

Be

 

in

 

the

 

moment

 

by

 

bringing

 

your

 

full

 

attention

 

and

 

energy

 

to

 

the

 

meaning

 

of

 

the

 

relationship

 

that

 

has

 

brought

 

you

 

here.

 

(15)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Creating

 

a

 

culture

 

of

compassionate

 

bereavement

 

care

Develop,

 

support

 

standard

 

of

 

care

Create

 

consistent

 

care

 

at

 

any

 

point

 

of

 

entry

Look

 

for

 

increased

 

patient

 

and

 

staff

 

satisfaction

(Wilke

 

&

 

Limbo,

 

2012)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

“Being

 

connected…A

 

key

 

to

 

my

 

survival”*

Create

 

a

 

transition

 

ritual

 

between

 

work

 

and

 

home

Touch

 

a

 

colleague’s

 

shoulder

 

to

 

indicate

 

your

 

presence

 

with

 

them

Offer

 

to

 

help

Pause

 

and

 

reflect

 

in

 

the

 

moment

Allow

 

time

 

for

 

debriefing

 

Provide

 

education

 

to

 

new

 

staff

(*Kearney,

 

et

 

al.,

 

2009)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

Opportunities

 

and

 

Resources

Hospital

 

programs:

 

Resolve

 

Through

 

Sharing

®

began

 

in

 

1981

Bereavement

 

training

 

in

 

perinatal

 

death,

 

neonatal

 

&

 

pediatric,

 

pediatric

 

&

 

adult;

 

coordinator

 

training

 

www.resolvethroughsharing.org

International

 

Perinatal

 

Bereavement

 

Conference

 

biennial:

 

www.perinatalbereavementconference.org

Pregnancy

 

Loss

 

and

 

Infant

 

Death

 

Alliance

 

(PLIDA)

Certification

 

in

 

Perinatal

 

Loss

 

Care

 

from

 

the

 

Hospice

 

and

 

Palliative

 

Credentialing

 

Center®

(16)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

References

American

 

Pregnancy

 

Association:

 

www.americanpregnancy.org

Bacidore,

 

V.,

 

Warren,

 

N.,

 

Chaput,

 

C.,

 

&

 

Keough,

 

V.

 

A.

 

(2009).

 

A

 

collaborative

 

model

 

for

 

managing

 

pregnancy

 

loss

 

in

 

the

 

emergency

 

department.

 

JOGNN,

 

38,

 

730

738.

Bowlby,

 

J.

 

(1988).

 

A

 

secure

 

base:

 

Parent

 

child

 

attachment

 

and

 

health

 

human

 

development.

 

New

 

York:

 

Basic

 

Books.

Cacciatore,

 

J.

 

(2010).

 

Stillbirth:

 

Patient

centered

 

psychosocial

 

care.

 

Clinical

 

Obstetrics

 

and

 

Gynecology,

 

53

(3),

 

691

699.

Côté

Arsenault,

 

D.,

 

&

 

Denney

Koelsch,

 

E.

 

(2011).

 

“My

 

baby

 

is

 

a

 

person”:

 

Parents’

 

experiences

 

with

 

life

threatening

 

fetal

 

diagnosis.

 

Journal

 

of

 

Palliative

 

Medicine,

 

14

(12),

 

1302

1308.

 

Feudtner,

 

C.

 

(2009).

 

The

 

breadth

 

of

 

hopes.

 

The

 

New

 

England

 

Journal

 

of

 

Medicine,

 

361

(24),

 

2306

2307.

Kearney,

 

M.,

 

Weininger,

 

R.,

 

Vachon,

 

M.,

 

Harrison,

 

R.,

 

&

 

Mount,

 

B.

 

(2009).

 

Self

care

 

of

 

physicians

 

caring

 

for

 

patients

 

at

 

the

 

end

 

of

 

life.

 

Journal

 

of

 

the

 

American

 

Medical

 

Association,

 

301

(11),

 

1155

1164.

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

References

 

(cont.)

Kobler,

 

K.,

 

&

 

Limbo,

 

R.

 

(2011).

 

Making

 

a

 

case:

 

Creating

 

a

 

perinatal

 

palliative

 

care

 

service

 

using

 

a

 

perinatal

 

bereavement

 

program

 

model.

 

Journal

 

of

 

Perinatal

 

and

 

Neonatal

 

Nursing,

 

25

(1),

 

32

41.

Limbo,

 

R.,

 

&

 

Kobler,

 

K.

 

(2013).

 

Meaningful

 

moments:

 

Ritual

 

and

 

reflection

 

when

 

a

 

child

 

dies.

 

La

 

Crosse,

 

WI:

 

Gundersen

 

Lutheran

 

Medical

 

Foundation,

 

Inc.

Limbo,

 

R.,

 

&

 

Kobler,

 

K.

 

(2010).

 

The

 

tie

 

that

 

binds:

 

Relationships

 

in

 

perinatal

 

bereavement.

 

MCN,

 

The

 

American

 

Journal

 

of

 

Maternal

 

Child

 

Nursing

,

 

35

(6),

 

316

321.

 

[CE:

 

322

323].

Limbo,

 

R.,

 

Kobler,

 

K.,

 

&

 

Levang,

 

E.

 

(2010).

 

Respectful

 

disposition.

 

MCN,

 

The

 

American

 

Journal

 

of

 

Maternal

 

Child

 

Nursing,

 

35

(5),

 

271

277.

 

[CE:

 

278

279].

 

Limbo,

 

R.,

 

Toce,

 

S.,

 

Peck,

 

T.

 

(2008/2009).

 

Resolve

 

Through

 

Sharing®

 

position

 

paper

 

on

 

perinatal

 

palliative

 

care.

 

La

 

Crosse,

 

WI:

 

Gundersen

 

Lutheran

 

Medical

 

Foundation,

 

Inc.

 

(Available

 

from

 

bereavementservices.org/position)

Limbo,

 

R.,

 

&

 

Wheeler,

 

S.

 

(1986).

 

Women’s

 

responses

 

to

 

the

 

loss

 

of

 

their

 

pregnancy

 

through

 

miscarriage:

 

A

 

longitudinal

 

study.

 

Forum

 

Newsletter,

 

Association

 

for

 

Death

 

Education

 

and

 

Counseling,

 

10

(4),

 

1,

 

4

6.

References

 

(cont.)

Lindsay,

 

G.,

 

Cross,

 

N.,

 

&

 

Ives

Baine,

 

L.

 

(2012).

 

Narratives

 

of

 

neonatal

 

intensive

 

care

 

unit

 

nurses:

 

Experience

 

with

 

end

of

life

 

care.

 

Illness,

 

Crisis

 

&

 

Loss,

 

20

(3),

 

239

253.

MacDorman,

 

M.

 

F.,

 

&

 

Kirmeyer,

 

S.

 

(2009).

 

Fetal

 

and

 

perinatal

 

mortality,

 

United

 

States,

 

2005.

 

National

 

Vital

 

Statistics

 

Reports,

 

57

(8),

 

1

20.

March

 

of

 

Dimes:

 

www.marchofdimes.com

Mathews,

 

T.

 

J.,

 

&

 

MacDorman,

 

M.

 

F.

 

(2011).

 

Infant

 

mortality

 

statistics

 

from

 

the

 

2007

 

period

 

linked

 

birth/infant

 

death

 

data

 

set.

 

National

 

Vital

 

Statistics

 

Reports

,

 

59

(6),

 

1

30.

 

Papadatou,

 

D.

 

(2009).

 

In

 

the

 

face

 

of

 

death:

 

Professionals

 

who

 

care

 

for

 

the

 

dying

 

and

 

the

 

bereaved.

 

New

 

York:

 

Springer.

Perry,

 

B.

 

(2008).

 

Why

 

exemplary

 

oncology

 

nurses

 

seem

 

to

 

avoid

 

compassion

 

fatigue.

 

Canadian

 

Oncology

 

Nursing

 

Journal,

 

18

(2),

 

87

99.

Quill,

 

T.,

 

Arnold,

 

R.,

 

&

 

Platt,

 

F.

 

(2001).

 

I

 

wish

 

things

 

were

 

different:

 

Expressing

 

wishes

 

in

 

response

 

to

 

loss,

 

futility,

 

and

 

unrealistic

 

hopes.

 

American

 

College

 

of

 

Physicians

American

 

Society

 

of

 

Internal

 

Medicine,

 

135

(7),

 

551

555.

(17)

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

References

 

(cont.)

Schaefer,

 

D.,

 

&

 

Lyons,

 

C.

 

(2010).

 

How

 

do

 

we

 

tell

 

the

 

children?

 

(4

th

ed.).

 

New

 

York:

 

Newmarket Press.

Swanson,

 

K.

 

(1993).

 

Nursing

 

as

 

informed

 

caring

 

for

 

the

 

well

being

 

of

 

others.

  

IMAGE:

 

Journal

 

of

 

Nursing

 

Scholarship,

 

25

(4),

 

352

357.

Roscigno,

 

C.

 

I.,

 

Savage,

 

T.

 

A.,

 

Kavanaugh,

 

K.,

 

Moro,

 

T.

 

T.,

 

Kilpatrick,

 

S.

 

J.,

 

Grobman,

 

W.

 

J.,

 

Strassner,

 

H.

 

T.,

 

&

 

Kimura,

 

R.

 

(2012).

 

The

 

importance

 

of

 

hope

 

when

 

counseling

 

parents

 

at

 

risk

 

for

 

giving

 

birth

 

to

 

an

 

extremely

 

premature

 

infant.

 

Qualitative

 

Health

 

Research,

 

22

,

 

1232

1246.

Warland,

 

J.,

 

&

 

Davis,

 

D.

 

L.

 

et

 

al.

 

(2011)

 

Caring

 

for

 

families

 

experiencing

 

stillbirth:

 

A

 

unified

 

position

 

statement

 

on

 

contact

 

with

 

the

 

baby.

 

An

 

international

 

collaboration.

 

(Downloadable

 

from

 

numerous

 

websites

 

including

 

bereavementservices.org)

Wilke,

 

J.,

 

&

 

Limbo,

 

R.

 

(Eds.).

 

(2012).

 

Resolve

 

Through

 

Sharing

 

bereavement

 

training

 

in

 

perinatal

 

death

(8

th

ed.).

 

La

 

Crosse,

 

WI:

 

Gundersen

 

Lutheran

 

Medical

 

Foundation,

 

Inc.

This presentation is copyrighted by the Hospice and Palliative Nurses Association (HPNA). All rights reserved. No part of this presentation may be reproduced, 

stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise without permission. 

References

 

(cont.)

Wojnar,

 

D.

 

M.,

 

Swanson,

 

K.

 

M.,

 

&

 

Adolfsson,

 

A

S.

 

(2011).

 

Confronting

 

the

 

inevitable:

 

A

 

conceptual

 

model

 

of

 

miscarriage

 

for

 

use

 

in

 

clinical

 

practice

 

and

 

research.

 

Death

 

Studies,

 

35,

 

536

558.

Wool,

 

C.,

 

&

 

Northam,

 

S.

 

(2011).

 

The

 

perinatal

 

palliative

 

care

 

perceptions

 

and

 

barriers

 

scale

 

instrument:

 

development

 

and

 

validation.

 

Advances

 

in

 

Neonatal

 

Care,

 

11

(6),

 

397

403.

Websites:

Resolve

 

Through

 

sharing:

 

www.resolvethroughsharing.org

 

Hospice

 

and

 

Palliative

 

Nurses

 

Association:

 

www.hpna.org

www.perinatlhospice.org

References

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