Iowa Disability Resources

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Iowa Disability Resources

ARTS and CREATIVITY http://www.vsarts.org/x307.xml

VSA arts of Iowa

Iowa Department of Education Grimes State Office Building Des Moines, IA 50319 Phone: 515-281-3179 TTY: 515-281-6524 Fax: 505-242-6025 Relay: 800-735-2934 Email: [email protected] ASSISTIVE TECHNOLOGY http://www.uiowa.edu/homepage/resources/listings/i/IA_prog_asst_tech.html Iowa Program for Assistive Technology

Center for Disabilities and Development 100 Hawkins Drive Iowa City, IA 52242-1011 Phone: 319-353-8777 Phone 800-779-3027 (National) TTY: 877-686-0032 Fax: 319-384-5139

Email: [email protected] or [email protected] http://www.adaproject.org

Great Plains DBTAC

ADA Project of Missouri/ Columbia 100 Corporate Lake Drive

Columbia, MO 65203 Phone/TTY: 573-882-3600 Fax: 573-884-4925

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http://www.iowaable.org/ http://www.abilitiesfund.org Iowa Able Foundation Abilities Fund 307 13th Street, Suite 500 Centerville, IA 52544 Phone: 641-856-2173 888-222-8943 Fax: 641-856-3101 CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/index.htm

Caregiver Support Groups by State Well Spouse Association

Cedar Rapids WS Support Cedar Rapids Cathy Rammelsberg Phone: (319) 369-8744 [email protected] Johnson County WS Iowa City Liz Koffren-Eisen Phone: (319) 351-5476 [email protected]

CRIME VICTIM ASSISTANCE

http://www.iowaattorneygeneral.org/helping_victims/services/index.html Victim Compensation/ Victim Assistance

Phone: 515-281-5044 Fax 515-281-8199

http://www.safehorizon.org/index/get-help-8/for-additional-resources-47.html Safe Horizon’s Links for General Crime Victim Resources/Issues

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National Domestic Violence Hotline: 1-800-799-SAFE (7233) National Resource Center on Domestic Violence: 800-537-2238 Statewide Hotline: 800-942-0333

http://www.aardvarc.org/dv/states/iodv.shtml

Aardvarc’s Iowa Domestic Violence Crisis and Support Resources by City/ County Iowa Coalition Against Domestic Violence

1540 High Street, Suite 100 Des Moines, IA 50309-3123 Phone: 515-244-8028

EASTER SEALS OFFICES

http://www.ia.easterseals.com/

Easter Seals Iowa/Easter Seals Camp Sunnyside 401 N.E. 66th Avenue

Des Moines, IA 50313 Phone: 515-274-1529

GOVERNMENT OFFICES FOR IOWA http://www.iowa.gov/state/main/index.html

Iowa.gov: Official Website of the State of Iowa http://www.dhs.state.ia.us/

Iowa Department of Human Services http://www.cms.hhs.gov/home/schip.asp

Iowa State Children’s Health Insurance Program (SCHIP)

hawk-i PO Box 71336 Des Moines, IA Toll-Free: 1-800-257-8563 TTY: Local: 1-515-457-8051 1-515-457-7701 http://www.hawk-i.org/ http://www.shiip.state.ia.us/

Senior Health Insurance Information Program (SHIIP) 330 Maple St.

Des Moines, IA 50319-0065 Phone: 1-800-351-4664

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TTY: 1-800-735-2942 Email: [email protected]

http://www.cms.hhs.gov/MedicaidGenInfo/ Iowa Medicaid Office

Department of Human Services of Iowa Hoover State office Building

5th Floor Des Moines, IA 50319-0114 Phone: 1-515-327-5121 (Local) Phone: 1-800-338-8366 (Toll-Free) Fax: 1-515-281-4597 http://www.hipiowa.com/

Iowa Comprehensive Health Association P.O. Box 1090

2015 16th Street

Great Bend, Kansas 67530 Phone: 1-877-793-6880 Claims Fax 620-792-0535

Premium Billing & Enrollment Fax 620-793-1199

Iowa High Risk Insurance Plan for eligible people who are unable to get insurance coverage.

http://www.uihealthcare.com/depts/socialservice/financialresources/waiver.html Iowa Home Based and Community Integration waivers

http://www.iid.state.ia.us/ Iowa Insurance Commissioner 330 Maple Street

Phone: 1-877-955-1212 (Iowa only) Fax; 1-515-281-3059

http://www.iowaworkforce.org/wc/

Iowa Division of Workers Compensation

http://www.state.ia.us/government/dhr/pd/index.html Iowa Division of Persons with Disabilities

Department of Human Rights Lucas State Office Building 321 East 12th Street

Des Moines, IA 50319 Phone: 1-515-242-6334

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Fax: 1-515-242-6119

http://www.christopherreeve.org/c.ddJFKRNoFiG/b.4518671/k.6ABA/Find_Your_Electe d_Official/siteapps/advocacy/search.aspx

Find your elected officials to contact them on legislation that is important to you. http://www.aging.iowa.gov/advocacy/ombudsman.html

State LTC Ombudsman Jeanne Yordi

Iowa Department of Elder Affairs 510 E. 12th Street

Jessie M. Parker Bldg, Ste. 2 Des Moines, Iowa 50319 Phone: (515) 725-3327 Fax: (515) 725-3300

The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities.

HOUSING

http://www.ilru.org/html/publications/directory/iowa.html Iowa Independent Living Centers

950 Seventh Street, SE Mason City, IA 50401 Phone: 1-641-424-0180 Fax: 1-641-424-4656 www.fanniemae.com Fannie Mae

Iowa Partnership Office 699 Walnut Street, Suite 1375 Des Moines, IA 50309

Phone: 1-515-697-3722 Fax: 1-515-697-3730

http://www.hud.gov/local/index.cfm?state=ia

US Dept. of Housing and Urban Development (HUD) office in Iowa Des Moines Field Office

Phone: 1-515-284-4512 TTY: 1-515-284-4728 Fax: 1-515-284-4743

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LIBRARY SERVICES

http://www.blind.state.ia.us/library/

Library for the Blind and Physically Handicapped Iowa Department for the Blind

524 Fourth Street

Phone: 1-800-362-2587 (Toll-Free In-state only) TDD: 1-515-281-1355

Fax: 1-515-281-1378

Email: [email protected]

PROTECTION and ADVOCACY

www.napas.org

Client Assistance Program (CAP)

Client Assistance Program Division on Persons with Disabilities Lucas State Office Building

Des Moines, IA 50310 Phone: 1-515-281-3957 Phone: 1-800-652-4298 Fax: 1-515-242-6119 Email: [email protected] http://www.ipna.org/

Iowa Protection and Advocacy Services Inc. 950 Office Park Road, Suite 221

West Des Moines, IA 50265 Phone: 1-515-278-2502 Phone: 1-800-779-2502 (Toll-Free) TTY: 1-515-278-0571 TTY: 1-866-483-3342 (Toll-Free) Fax: 1-515-278-0539 Email: [email protected] SERVICE DOGS http://www.wolfpacks.com/serviced.htm#c Wolf Packs, Inc.’s Service Dog Directory No listing for Iowa.

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SPORTS and RECREATION

http://www.dsusa.org/

Disabled Sports USA National Headquarters 451 Hungerford Drive Suite 100 Rockville, MD 20850 Phone: 301-217-0960 Fax: 301-217-0968 www.unitedspinal.org/pages.php?catid=13&pageid=449 United Spinal Association

Executive office 75-20 Astoria Boulevard Jackson Heights, NY 11370 Phone: 1-718-803-3782 Fax: 1-718-803-0414 Email: [email protected] No listing for Iowa.

UNITED WAY OFFICES

http://www.unitedwaydm.org United Way of Central Iowa 1111 9th St Ste 100

http://www.unitedwaynci.com/ United Way of North Central Iowa 600 1st NW Ste102

Mason City, IA 50401-2932 Postal Mail to:

PO Box 1465

Mason City, IA 50402-1465 Phone: 1-641-423-1774

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http://www2.va.gov/directory/guide/state.asp?State=IA&dnum=ALL Des Moines Veterans Regional Affairs Office

210 Walnut Street Des Moines, IA 50309 Phone: 1-800-827-1000 Fax: 1-515-323-7407

http://www.pva.org/site/PageServer?pagename=memb_chapters_ia Iowa Chapter PVA Offices

3703 1/2 Douglas Ave. Des Moines, IA 50310 Phone: 1-515-277-4782

ALS

http://www.alsaiowa.org

Iowa Chapter of ALS Association 6600 Westown Parkway, Suite 160-9 West Des Moines, IA 50266

Phone: 1-515-727-0968 Email: [email protected]

BRAIN INJURY http://www.biausa.org/Iowa/

Brain Injury Association of Iowa 2101 Kimball Avenue LL7 Waterloo, IA 50702 Phone: 1-319-272-2109 Phone: 1-800-475-4442 Fax: 1-319-272-2109 Email: [email protected] CEREBRAL PALSY http://www.ucp.org United Cerebral Palsy 1660 L Street, NW, Suite 700 Washington, DC 20036-5602

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Phone: 1-800-USA-5-UCP Phone: 202-776-0406 TTY: 202-973-7197 Fax: 202-776-0414 Email: [email protected] No UCP chapters in Iowa.

FRIEDREICH’S ATAXIA

http://www.ataxia.org/ National Ataxia Foundation Sioux County Iowa Chapter 209 Second Street Northeast Orange City, IA 51041

GUILLAIN-BARRÉ SYNDROME / CIDP www.gbs-cidp.org

Guillain-Barré Syndrome / CIDP Foundation International Phone: 610-667-0131

Call for information in your area

MULTIPLE SCLEROSIS http://www.nationalmssociety.org/chapters/NTH/index.aspx

North Central States chapter of the National Multiple Sclerosis Society Includes Iowa

http://www.msassociation.org/contact_msaa/ Multiple Sclerosis Association of America Midwest Regional Office

MUSCULAR DYSTROPHY

http://www.mdausa.org/

Muscular Dystrophy Association National Headquarters

3300 East Sunrise Drive Tucson, AZ 85718

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Phone: 800-572-1717

Enter your postal code in the “Find your local MDA” section of the website for MD clinics in your area.

POST-POLIO SYNDROME http://www.post-polio.org/net/pdirhm.asp

Post-Polio Health International support group listing: Dubuque Post-Polio Support Group

Phone: 1- 563-588-1692 Phone: 1-563-583-2665 Fax: 1-563-588-9833 Email: [email protected]

Iowa Polio Survivors Group (Pleasant Hill area) Phone/TDD: 1-515-263-1823

Fax: 1-515-263-1068

SPINA BIFIDA

http://www.sbaa.org/site/PageServer?pagename=sbaa_gmdir#ia Spina Bifida Association of Iowa

PO Box 1456

Des Moines, IA 50305 Phone: 1-515-964-8810

SPINAL CORD INJURY

http://enwiscia.tripod.com/index.htm

Eastern Nebraska/Western Iowa Spinal Cord Injury Association www.spinalcord.org/chapters/listing.php?stateid=16

Spinal Cord Injury Association of Iowa 3936 NW Urbandale Drive

Urbandale, Iowa, 50322 Phone: (515) 270-1522 Contact: Tim Ascherl Phone: (515) 643-0469

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National Spinal Cord Injury Association (national office) 6701 Democracy Blvd Suite 300-9 Bethesda, MD 20817 Phone: 301-214-4006 800-962-9629 Fax: 301-881-9817 Email: [email protected] STROKE http://www.strokeassociation.org

American Stroke Association National Center

7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653

Call them for the stroke support group in your area

SYRINGOMYELIA/CHIARI MALFORMATION www.asap.org

American Syringomyelia & Chiari Alliance Project 1714 Douglas Ave

Ames, IA 50010

Phone: 1-515-233-4292

For online support group, see http://p198.ezboard.com/basap5881

TRANSVERSE MYELITIS

http://transmyelitis.meetup.com/ TM MeetUp

People with TM meet in local area usually a restaurant.

Enter your zip code or enter US, then your state, lists the cities in that state that are having meetings.

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GENERAL DISABILITY RESOURCES

http://www.disabilityresources.org/IOWA.html

Disability Resources.org’s list of Iowa resources for the disabled. http://www.familyvillage.wisc.edu/comm/Iowa.html

Family Village Community Center – Iowa disability resources www.nichcy.org/Pages/StateSpecificInfo.aspx?State=IA

Iowa NICHCY: National Dissemination Center for Children with Disabilities http://www.yellowpagesforkids.com/help/ia.htm

Yellow Pages for Kids with Disabilities: Iowa http://www.idaction.org/

Governor’s Developmental Disabilities Council 617 E. Second Street

Des Moines, IA 50309 Phone: 1-515-281-9083 http://www.iowaapta.org/

Iowa chapter of the American Physical Therapy Association 1228 8th Street, Suite 106

West Des Moines, IA 50265-2624 Phone: 1-515-222-9838

Fax: 1-515-222-9839 Email: [email protected] http://www.iowaot.org/

Iowa Occupational Therapy Association Post Office Box 57221

Des Moines, IA 50317 Phone: 515-266-4525 Fax: 515-266-4525 www.apse.org

http://www.apse.org/chapters/details.cfm?id=10

Iowa Association for Persons in Supported Employment (APSE)

Story County Community Life program

104 South Hazel Ames, IA 50010

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http://aahd.webchoices.us/page.php?pname=publications/newsletters/2004/spring/livingw ell2

American Association on Health and Disability’s Health and Disability News, Spring 2004 article “Living Well with a Disability: At Work in Iowa”.

http://www.healthboards.com/boards/index.php

Healthboards.com – message boards on health related topics. Topics include SCI, CP, Stroke, and more.

http://www.iowacompass.org/

Iowa Compass: Information and referral for people with disabilities. Phone: 800-779-2001

http://www.rcrv.org/WRAP/

WRAP: Wheelchair Ramp Accessibility Program 319-369-7377

builds wheelchair ramps for people with disabilities that have inadequate financial resources. Volunteers provide free labor. For those that are able, WRAP asks that they purchase materials. For those that are qualified, WRAP will assist them in applying for grants to fund the material purchases.

http://www3.irissoft.com/iowa/ Iowa 211

Phone: 2-1-1

Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups,

Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the inquiry. All calls are confidential.

www.thinkfirst.org

ThinkFirst National Injury Prevention Foundation 29W120 Butterfield Rd., Suite 105 Warrenville IL 60555 Phone: 630-393-1400 800-THINK56 Fax: 630-393-1402 Email: [email protected]

ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter

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The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.