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Articles in peer-reviewed journals

Adams, T. (1996). Kitwood's approach to dementia and dementia care: a critical but appreciative review. Journal of Advanced Nursing, 23: 948-953.

Ballard, C.G., Thomas, A., Fossey, J., Lee, L., Jacoby, R., Lana, M.M., Bannister, C., McShane, R., Swann, A., Juszczak, E., O'Brien, J.T. (2004) A 3-Month, Randomized, Placebo-Controlled,

Neuroleptic Discontinuation Study in 100 People with Dementia: The Neuropsychiatric Inventory Median Cutoff is a Predictor of Clinical Outcome. Journal of Clinical Psychiatry. 65 (1): 114-119. Ballard, C.G., O'Brien, J.T., Reichelt, K., Perry, E.K. (2002) Aromatherapy as a safe and effective treatment for the management of agitation in severe dementia: The results of a Double-Blind, Placebo-controlled Trial with Melissa. Journal of Clinical Psychiatry, 63 (7): 553-558.

Ballard C., Powell, I., James, I., Reichelt, K., Myint, P., Potkins, D., Bannister, C., Lana, M., Howard, R., O'Brien, J, Swann, A, Robinson, D., Shrimanker, J. and Barber, R. (2002) Can psychiatric liaison reduce neuroleptic use and reduce health service utilization for dementia patients residing in care facilities. International Journal of Geriatric Psychiatry,17: 140-145

Ballard, C., Fossey, J., Chithramohan, R., Howard, R., Burns, A., Thompson, P., Tadros, G. and Fairbairn, A. (2001) Quality of care in private sector and NHS facilities for people with dementia: cross sectional survey. British Medical Journal, 323: 426-427.

Ballard C., O'Brien J., James, I., Myint, P., Lana, M., Potkins, D., Reichelt, K., Lee, L., Swann, A., and Fossey, J. (2001) Quality of life for people with dementia living in residential and nursing home care: the impact of performance on activities of daily living, behavioral and psychological symptoms, language skills and psychotropic drugs. International Psychogeriatrics, 13: 93-106.

Ballard, C., O'Brien, J., Swann, A., Fossey, J. and Lana, M. A One Year Follow-up study of

behavioural and psychological symptoms in dementia (BPSD) amongst people in care environments. Journal of Clinical Psychiatry (In Press).

Beavis, D., Simpson, S, and Graham, I. (2002) A literature review of dementia care mapping: methodological considerations and efficacy. Journal of Psychiatric and Mental Health Nursing.9: 725-36.

Bredin, K., Kitwood, T. and Wattis, J. (1995) Decline in quality of life for patients with severe dementia following a ward merger. International Journal of Geriatric Psychiatry, 10: 967-973.

Brooker, D. Dementia Care Mapping (DCM): A Review of the research literature. The Gerontologist (special edition on quality of life and dementia). In Press

Brooker, D (2004) What is person-centred care in dementia? Reviews in Clinical Gerontology, 13:215-222

Brooker, D. (1995) Looking at them, looking at me. . A review of observational studies into the quality of institutional care for elderly people with dementia. Journal of Mental Health, 4: 145-156.

Brooker, D. and Duce, L. (2000) Wellbeing and activity in dementia: a comparison of group

reminiscence therapy, structured goal-directed group activity and unstructured time. Ageing & Mental Health, 4 (4): 354-358.

Brooker, D., Foster, N., Banner, A., Payne, M. and Jackson, L. (1998) The efficacy of Dementia Care Mapping as an audit tool: report of a 3-year British NHS evaluation. Ageing & Mental Health, 2 (1): 60-70.

Chung, J.C. (2004) Activity Participation and Well-Being of People with Dementia in Long-Term-Care Settings. OTJR - Occupation Participation & Health, 24 (1): 22-31.

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Edelman, P., Fulton. B.R. and Kuhn, D. (2004) Comparison of dementia-specific quality of life measures in adult day centers. Home Health Services Quarterly, 23(1): 25-42.

Edelman, P., Kuhn, D. and Fulton, B.R. (2004) Influence of cognitive impairment, functional

impairment and care setting on Dementia Care Mapping results. Aging and Mental Health, 8(6): 514-523

Fossey, J., Lee, L., Ballard, C. (2002) Dementia Care Mapping as a research tool for measuring quality of life in care settings: psychometric properties. International Journal of Geriatric Psychiatry, 17: 1064 - 1070.

Gigliotti, C.M., Jarrott, S.E. and Yorgason, J. (2004) Harvesting Health: Effects of three types of horticultural therapy activities for persons with dementia. Dementia. 3(2): 161-180.

Innes, A. and Surr, C. (2001) Measuring the well-being of people with dementia living in formal care settings: the use of Dementia Care Mapping. Aging & Mental Health, 5 (3): 258-268.

Jarrott, S.E. and Bruno, K. (2003) Intergenerational activities involving persons with dementia: An observational assessment, American Journal of Alzheimer's Disease and Other Dementias, 18 (1): 31-37.

Kitwood, T. (1993) Person and process in dementia. International Journal of Geriatric Psychiatry, 8: 541-545.

Kitwood, T. (1992) Quality assurance in dementia care. Geriatric Medicine, 22: 34-38.

Kitwood, T. and Bredin, K. (1992) A new approach to the evaluation of dementia care. Journal of Advances in Health and Nursing Care, 1:5: 41-60.

Kuhn, D., Edelmann, P. and Fulton, B.R. (2005) Daytime sleep and the threat to well-being of persons with dementia. Dementia 4(2), 233-247

Kuhn, D., Fulton, B.R. and Edelmann, P. (2004) Factors influencing participation in activities in dementia care settings. Alzheimer's Care Quarterly, 5(3): 144-152.

Kuhn D., Kasayka R, and Lechner C. (2002). Behavioral observations and quality of life among residents with dementia in ten assisted living facilities. The American Journal of Alzheimer's Disease, 17 (5): 291-298.

Kuhn, D., Ortigara, A. and Kasayka, R. (2000) Dementia Care Mapping: An innovative tool to measure person-centered care. Alzheimer's Care Quarterly, 1 (3): 7-15.

Mackintosh, I. (1992) Quality Assurance in Dementia Care. Geriatric Medicine. Sept. 22 (9): 34, 36-38.

Martin, G.W. and Younger, D. (2001) Person-centred care for people with dementia: a quality audit approach. Journal of Psychiatric and Mental Health Nursing 8 (5): 443-448.

Martin, G. and Younger, D. (2000) Anti oppressive practice: a route to the empowerment of people with dementia through communication and choice. Journal of Psychiatric and Mental Health Nursing, 7: 59-67.

McKee, K.J., Houston, D.M. and Barnes, S. (2002) Methods for assessing quality of life and well-being in frail older people. Psychology and Health. 17 (6): 737-751

Parker, J. (1999) Education and Learning for the Evaluation of Dementia Care: the perceptions of social workers in training. Education and Ageing, Vol 14, No 3: 297-314.

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Parker, C., Barnes, S., McKee, K., Morgan, K., Torrington, J. and Tregenza, P. (2004) Quality of Life and building design in residential and nursing homes for older people. Ageing and Society, 24: 941-962

Perrin T. (1997) The Positive Response Schedule for Severe Dementia. Aging & Mental Health, 1 (2): 184-191.

Perrin, T. (1997) Occupational need in severe dementia. Journal of Advanced Nursing, 25: 934-941. Persaud, M.and Jaycock, S. (2001) Evaluating Care Delivery: The application of dementia care mapping in learning disability residential services. Journal of Learning Disabilities, 5 (4): 345-352. Potkins, D., Myint, P., Bannister, C., Tadros, G.E., Chithramohan, R., Swann, A., O'Brien, J., Fossey, J., George, E., Ballard, C., Margallo-Lana, M. (2003) Language impairment in dementia: impact on symptoms and care needs in residential homes. International Journal of Geriatric Psychiatry, 18 (11), 1002-1006.

Pritchard, E. J. and Dewing, J. (2001) A multi-method evaluation of an independent dementia care service and its approach. Aging & Mental Health, 5 (1): 63-72.

Sabat, S. (1994) Excess disability and malignant social psychology: A case study of Alzheimer's Disease. Journal of Community & Applied Social Psychology, Vol 4: 157-166.

Thornton, A., Hatton, C. and Tatham, A. (2004) Dementia Care Mapping reconsidered: exploring the reliability and validity of the observational tool. International Journal of Geriatric Psychiatry. 19: 718-726.

Wilkinson A.M. (1993) Dementia Care Mapping: A pilot study of its implementation in a psychogeriatric service. International Journal of Geriatric Psychiatry, 8: 1027-1029.

Williams J. and Rees J. (1997) The use of 'dementia care mapping' as a method of evaluating care received by patients with dementia: an initiative to improve quality of life. Journal of Advanced Nursing, 25: 316-323.

Wylie, K., Madjar, I. and Walton, J. (2002) Dementia Care Mapping: A person-centred approach to improving the quality of care in residential settings. Geriaction, 20 (2), 5-9.

Younger, D., Martin, G.W. (2000) Dementia Care Mapping: an approach to quality audit of services for people with dementia in two health districts. Journal of Advanced Nursing, 32(5), 1206 1212.

Books

Barnett, E. (2000) Including the Person with Dementia in Designing and Delivering Care - 'I need to be me!'. Jessica Kingsley Publishers. London and Philadelphia.

Brooker, D., Edwards, P. and Benson, S. (Eds) (2004) Dementia Care Mapping: Experience and insights into practice. Hawker Publications. London

Innes, A. (Ed), (2003) Dementia Care Mapping: Applications Across Cultures. Health Professions Press. Maryland.

Kitwood, T. (1997) Dementia Reconsidered: the Person Comes First. Buckingham: Open University Press.

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Kitwood, T. and Benson, S. (Eds.), (1995) The New Culture of Dementia Care. London: Hawker Publications.

Moreton, I. (1999) Person-centred approaches to Dementia Care. Winslow. Bicester

Perrin, T. and May, H. (2000) Wellbeing in Dementia: An Occupational Approach for Therapists and Carers. Churchill Livingstone. London.

Chapters in books

Brooker, D. (2003) Maintaining Quality in Dementia Care Practice, pp 240-255. In T. Adams and J. Manthorpe (Eds), Dementia Care, Arnold, London.

Brooker, D. (2000) The Quality of Formal Care Services for People with Dementia. In G. Corley (Ed.) Elderly People and their Needs. Whurr Publications.

Cox, S. (2001) Developing quality in services. In C. Cantley (ed.) A Handbook of Dementia Care. Open University Press, Buckinghamshire.

Articles in professional and practice publications

Baker, C. (2002). Is it really such a risk? Journal of Dementia Care, March/April, Vol 10, No. 2: 8. Barnett, E. (2001) Is it care … or companionship? Journal of Dementia Care, March/April, Vol 9, No 2: 18-19

Barnett, E. (1996) Training in Dementia Care Mapping. Signpost, 32: 8-9.

Barnett, E. (1995) A window of insight into quality of care. Journal of Dementia Care, July/August, Vol 3, No. 4: 23-26.

Beavis, D. (1998) Personal detractions - a personal account. Journal of Dementia Care. July/August, 24-25.

Bolton, J., Gee, I., Jackson, L., Mather, D., Potter, L., Roberts, S., Robson, P., Scurfield, M., Stewart, D. and Vandor, C. (2000) Stepping back to move forward with DCM. Journal of Dementia Care, July/August, Vol 4, No. 4: 26-28.

Brooker, D. (2002) Dementia Care Mapping: a look at its past, present and future. Journal of Dementia Care. May/June, Vol 10, No. 3: 33-36.

Brooker, D. (2001) Enriching Lives: evaluation of the ExtraCare Activity Challenge. Journal of Dementia Care. May/June, Vol 9, No. 3:33-37.

Brooker, D. (1999) DCM and Engagement combined to audit care quality. Journal of Dementia Care, May/June, Vol 7, No. 3: 33-36.

Brooker D., and Payne M. (1995) Auditing outcome of care in in-patient and day patient settings using dementia care mapping. Can it be done? PSIGE Newsletter, No. 51 December 1994 - January 1995: 18-22.

Dewing, J. and Garner, P. (1998) Listening to Enid. Elderly Care. Aug-Sept, 10 (4): 12-15.

Edwards, P. (2005) Putting Dementia Care Mapping on the map. Journal of Dementia Care. Jan/Feb: 16-17.

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Edwards, P. (2004) DCM Training: three or five day courses? Journal of Dementia Care, Jan/Feb: 12-14.

Ford, J., King, M., Powell, J., Herzberg, J. (2003) Clinical Audit - a powerful tool to optimise care. Journal of Dementia Care. Nov/Dec: 20-21.

Fossey, J.(1999) A carer on the team. Journal of Dementia Care, Mar/Apr, Vol 7, No. 2: 10. Fox, L. (1995) Dementia Care Mapping. Care Home Management Bulletin, Issue 9.

Harr, R. and Kasayka, R. (2000) The power of place and the preservation of personhood. Nursing Homes: Long Term Management, June, Vol 9. No. 6: 30-35.

Innes, A. (2002) Dementia Care Mapping: A useful method for Social Work? Practice 14 (1): 27-38 Innes, A., Capstick, A. and Surr, C. (2000) Mapping out the framework. Journal of Dementia Care, March/April, Vol 8, No. 2: 20-21.

Innes, A., Capstick, A. and Surr, C. (1999) Warning on DCM and Engagement methods, Letter to editor. Journal of Dementia Care, July/August, Vol 7, No. 4: 20-21.

Jacques, I. (1996) Evaluating care services for people living with dementia. Elderly Care June/July. Vol 8, No. 3.

James, I., Lee, L., Sells, K. and Allen, B. (2002) Quality of Care: Are we painting too black a picture? Journal of Dementia Care, Jan/Feb, Vol 10, No. 1: 37-38.

Kitwood, T. and Bredin, K. (1994) Charting the course of quality care. Journal of Dementia Care, May/June, Vol 2, No. 3: 22-23.

Kuhn, D. and Verity, J. (2002) Putdowns and uplifts: signs of good or poor dementia care. Journal of Dementia Care. Sept/Oct, Vol 10, No. 5: 26-27

Lechner, C. (2001) Dementia Care Mapping: A new approach to Alzheimer's Care. Rehab & Community Care Management, Fall: 40-42.

Lintern, T., Woods, R. and Phair, L. (2000a) Before and after training: a case study of intervention. Journal of Dementia Care, Jan/Feb, Vol 8, No. 1, 15-17.

Lintern, T., Woods, R. and Phair, L. (2000b) Training is not enough to change care practice. Journal of Dementia Care, Mar/Apr, Vol 8, No. 2: 15-17.

Mackenzie, L., James, I.A. and Lee, L. (2002) How DCM feedback procedures can be improved. Journal of Dementia Care. Sept/Oct, Vol 10, No. 5: 23-25

Maguire, S. and Gosling, A-L. (2003) Social and sensory stimulation groups: do the benefits last? Journal of Dementia Care, Mar/Apr: 20-22

Moyes, M. and Christie , H. (1998) Structuring Groups to make psychotherapy possible. Journal of Dementia Care. Sept/Oct, 6 (5): 15-17

Moyes, M. and Christie, H. (1998) Focus on each individual's experience and emotions. Journal of Dementia Care. July/Aug, 6 (4): 16 - 18

Muller-Hergl, C. (2004) The role of the ‘trusted stranger’ in DCM feedback. Journal of Dementia Care, 12 (2) 18-19

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Neel, A. (2002) How DCM may affect caregiver mappers. Journal of Dementia Care. July/Aug, Vol 10, No. 4: 26-28.

Packer, T. (2000) Series - Obstacles to Person-Centred Care Delivery Part 3: Pass the hot potato - is this person-centred teamwork? Journal of Dementia Care, Sept/Oct, Vol 8, No. 5: 17-19.

Packer, T. (2000) Series - Obstacles to Person-Centred Care Delivery Part 2: Facing up to the Bills. Journal of Dementia Care, July/August, Vol 8, No. 4: 30-33.

Packer, T. (2000) Series - Obstacles to Person-Centred Care Delivery Part 1: Does Person-Centred Care exist? Journal of Dementia Care, May/June, Vol 8, No. 3: 19-21.

Packer, T. (1999) Worldwide spread of the new culture of care. Journal of Dementia Care, Jan/Feb, Vol 7, No 1: 14-16.

Packer, T. (1996) Shining a light on simple, crucial details. Journal of Dementia Care, Nov/Dec, Vol 4, No. 6: 22-23.

Packer, T. and Jeffries, M. (1997) Haloperidol, Hips and Toenails...(Person Centred Care Series). Journal of Dementia Care, Nov/Dec, Vol 5, No. 6: 22-24.

Perrin, T. (1999) Time to take a fresh look at Dementia Care Mapping. Letter to the Editor. Journal of Dementia Care, Sep/Oct, Vol 7, No. 5: 8.

Smy, J. (2005) Mapping out improved care. Nursing Times 101 (28):24-25

Surr, C. and Bonde Nielsen, E. (2003) Inter-rater reliability in Dementia Care Mapping. Journal of Dementia Care, Nov/Dec: 33-35.

Surr, C. and Brooker, D. (2002) The Effects of Undertaking a DCM Training Course on Care Practice. Signpost. 7 (2): 16-18.

Whitby, P. (2005) Inpatient Dementia Care: A Sisyphean Task? PSIGE Newsletter. 90 (July): 30 -36 Wightman, S. (2005) Meeting NSF standards through partnership. Journal of Dementia Care, Jan/Feb: 8-9

Non-English language publications

Agger, C. and Bonde Nielsen, E. (2001) Kvalitetssikring af omsorg for svage aeldre: Pilotafprovning af DCM-metoden, Dementia Care Mapping, i Danmark. Kobenhavns Kommune Sundhedsforvaltningen, Danie - Danmarks Institut for Aeldrepaedagogik. Copenhagen.

Innes, A. (2000) Dementia Care Mapping pp 112-122. In Innovativer Umgang mit Dementen: Strategien, Konzepte und Einrichtungen in Europa. H. SträBer and M. Cofone (Eds), Saarlouis Kitwood T. (2000) Deutschsprachige Ausgabe herausgegeben von Christian Muller Hergl. Demenz. Verlag Hans Huber

Müller-Hergl, C. (2004) Wohlbefinden und Methode: Dementia Care Mapping. Zur Analytik zentraler Begriffe. Assessmentinstrumente in der Plfege, Möglichkeiten und Grenzen. Hrsg S.

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Niebergall, C. (2002) Validation nach Feil und das Dementia Care Mapping. Zwei Methoden zur Verbessersung der Liebensqualität von Menschen mit einer Demenzerkrankung in der

Psychogeriatrie des Tertianum Neutal in Berlingen TG. Medical Journal. Dezember 2002.

Sormunen, S., Topo, P. and Eloniemi-Sulkava, U. (2004) Assessment of the quality of care of people with dementia – Dementia Care Mapping pilot (English abstract) Gerontologia 18(3): 207-218 Sormunen, S., Topo, P., Eloniemi-Sulkava, U. and Voutilainen, P. (2002) Can Dementia Care Mapping provide a new means for evaluation of care given to people with dementia? Gerontologia, 16(3): 120-130.

Vila-Miravent, J. (2001) L'atenció integral a persones amb demència en centres residencials. Collegi Oficial de Psicòlegs de Catalunya, 20(142): 8-10.

Reports

Audit Commission (2000). Forget Me Not. Mental Health Services for Older People. London. Audit Commission.

Bruce, E., Surr, C. and Tibbs, M.A. (2002) A Special Kind of Care. Improving Well-being in People Living With Dementia. MHA Care Group. Derby. Available on the web at www.mha.org.uk

Kitwood, T., Buckland, S. and Petre, T. (1995) Brighter Futures: A report on research into provision for persons with dementia in residential homes, nursing homes and sheltered housing. Anchor Housing Association.

Bradford Dementia Group Publications

Bradford Dementia Group (1997) Evaluating dementia care: The DCM Method, 7th Edition, University of Bradford. (available only as part of basic DCM course)

Brooker, D. and Rogers, L. (Eds.) (2001) DCM Think Tank Transcripts 2001. University of Bradford. Jones, S., Surr, C. and Edwards, P. (2004) DCM Model Evaluator Report. University of Bradford.

Theses

Barnett, E. (1996). I need to be me! A thematic evaluation of a dementia care facility based on the client perspective. Doctoral Thesis, University of Bath, United Kingdom.

Brooker, D. (1998). Improving the quality of care for people with dementia. Doctoral Thesis, University of Birmingham, United Kingdom.

Greatorex, B. (2002) The Structure of Well-being in Dementia. Doctoral Thesis in Clinical Psychology, University of Leicester, United Kingdom.

Innes, A. (2000) Changing the Culture of Dementia Care: a systematic exploration of the process of cultural change in three care settings. Doctoral Thesis, University of Bradford, United Kingdom Lintern, T.C. (2001) Quality in Dementia Care: Evaluating Staff Attitudes and Behaviour. Doctoral Thesis, University of Wales, Bangor, United Kingdom.

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Lintern, T.C. (2002) The perceptions of nursing home staff towards people with dementia and their care: A qualitiative exploration of care staff views prior to and following a period of training and development interventions. Doctoral Thesis, Salomons Centre for Applied Social and Psychological Development, Canterbury Christ Church University College, United Kingdom.

Rüsing, Detlef (2003): Die Reliabilität und Validität des Beobachtungsinstruments 'Dementia Care Mapping' - Eine Literaturanalyse. Dorsten (Verlag Ingrid Zimmerman) ISBN: 3-928568-42-6; ca.80 pages, DIN A4 Copytyp; 14€ + available from www.pflegen-mit-wissen.de

Wylie, K. (2000). Valuing Sensation and Sentience in Dementia Care. Doctoral Thesis, University of Newcastle, Australia

References

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