Registries/standards
Patient registries for substance use disorders
... Primary care settings are optimal for screening and enrolling substance users into a patient registry, and those participat- ing in network care organizations with substantial EHRs systems have advantages over smaller, ...
6
An assessment of the quality of the I-DSD and the I-CAH registries - international registries for rare conditions affecting sex development
... of registries, high qual- ity registries are prioritizing ethical and legal standards and are expected to provide access to data on a platform that ensures data security and patient ...
12
The Importance Of International Registries For Naval Transport
... of registries registration are normally open to non-residents; have low or zero corporate tax rates; size of registered fleet disproportionate to the needs of the country; indiscriminate enlistment of foreign ...
6
Romanian Electronic Registries for Patients with Extracorporeal Support of Vital Functions
... Patient registries are being developed worldwide in response to the increasing demands of healthcare providers, for both clinical and research ...national registries implemented for patients with ...
5
Contextualized B2B Registries
... The context information of a resource and the relationship to other resources en- tirely depends on the type of resource a user registered. Therefore, we applied the concept of dynamical selection of pluggable context ...
13
Cancer registries in four provinces in Turkey: a case study
... Cancer registries that are set up throughout a country to collect and record data and report cancer cases in the areas they cover are the foundation of cancer surveillance ...[12,13]. Registries require ...
8
Clinical trial registries: more international, converging efforts are needed
... trial registries are being increasingly acknowledged ...online registries that are not already included in the International Clinical Trials Registry Platform to evaluate whether other useful trial data ...
5
A 'Bottom Up' Governance Framework for Developing Australia's Marine Spatial Data Infrastructure (SDI)
... In the idealised Governance Framework mooted in this paper, it is suggested that the role played by the Community Standards Coordinator functions as the key governing body for an infrastructure after it ...
27
<p>Patient registries for home oxygen research and evaluation</p>
... patient registries in the fi eld of home oxygen in COPD as an alternative to randomized trials by referring to the Swedish experience with a national registry for respiratory ...Patient registries use ...
6
eRegistries: governance for electronic maternal and child health registries
... health registries around the world, few publications pro- vide an overarching framework or discuss approaches to ethical or governance issues specifically for registries ...electronic registries and ...
11
Open access clinical trial registries: the Italian scenario
... Background: Citizens, patients and their representatives are increasingly insisting on working with health professionals to organize and discuss research protocols. The International Committee of Medical Journal Editors ...
5
Canadian Journey to a National Electronic Health Record
... Infoway is a not-for-profit organisation set up to foster and accelerate the development, and the adoption of electronic health information systems. Infoway has utilised existing information systems, driving for ...
10
Immunization Information Systems
... The American Academy of Pediatrics continues to support the development and implementation of immunization information systems, previously referred to as immunization registries, and other systems for the benefit ...
5
Cultural and parental standards as the benchmark for early learning and development standards in Africa
... these standards must first agree with them since they are their children’s first and most important teachers (Scott-Little, Kagan, & Frelow, ...on standards to provide guidance for responding to ...
7
Population Surveys and Biobanking
... Twin registries containing details of monozygotic (MZ) and dizygotic (DZ) twins allow the parallel dissec- tion of the effect of genetic variation in a homoge- neous environment (DZ twins) and of environmen- tal ...
12
Standards and Regulations
... national standards on organic production also other countries passed already or are elaborating legislation on organic production which are not necessarily in line with the EU or US system, ...
17
Standards and Regulations
... The trade guidelines on organic food take into account the current regulations in several countries, in particular the former EU Regulation 2092/91, private standards applied by producer organizations - especially ...
10
Improving standards in postgraduate research degree programmes
... The framework of standards and of good practice in the provision and delivery of RDPs is reproduced from Annex D. Against this framework we have mapped current examples of good practice at both institutional and ...
11
Learning from registries in pulmonary arterial hypertension: pitfalls and recommendations
... recent registries, the median age is 67 years in the Swedish registry and 71 years in the COMPERA registry [5, ...European registries, there is an increased female preponderance in the US population ...
12
Using Registries to Identify Adverse Events in Rheumatic Diseases
... Consolidated Registries: A New Model for Capturing Rare Adverse Events in Juvenile Idiopathic Arthritis (JIA) and Pediatric Rheumatic Diseases, ” as well as the following contributors for their critical input and ...
13