[PDF] Top 20 Assessment of Newborn Screening Parent Education Materials
Has 10000 "Assessment of Newborn Screening Parent Education Materials" found on our website. Below are the top 20 most common "Assessment of Newborn Screening Parent Education Materials".
Assessment of Newborn Screening Parent Education Materials
... current newborn screening brochures should be revised to make them more readable and user-friendly for ...born screening tests being performed, 81% needed improvement in getting to the point quickly ... See full document
8
Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research
... prenatal education and informed choice is ...increased education by public health programs about these policies and practices are likely to be impor- tant in maintaining public trust and acceptance for ... See full document
10
Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis
... NBS education, mothers valued what they experienced as clear, calm, and sensitive communication from the involved heath care providers at both notification and confirmatory points in time ( Table ... See full document
12
What Follows Newborn Screening? An Evaluation of a Residential Education Program for Parents of Infants With Newly Diagnosed Cystic Fibrosis
... A residential program that requests the attendance of both parents for 5 days requires a substantial commitment by families. CF services that do not have residential units or other convenient accommo- dation options ... See full document
8
Informed Choice for Newborn Blood Spot Screening in the United Kingdom: A Survey of Parental Perceptions
... behind screening are more likely to feel that they have made an informed choice is important from an educational per- ...tion materials is to promote informed choice, then our results indicate that ... See full document
9
State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples
... state newborn screening programs have prevented serious health conse- quences or death in thousands of chil- ...Limited education of parents about newborn screening is a result of the ... See full document
12
Status of Newborn Screening Programs in the United States
... the newborn screening program unless a parent or guardian objects on religious ...A parent or guardian must provide a written objection, which is then included in the child’s medical ...the ... See full document
43
A Vision of the Future of Newborn Screening
... improve screening methods for existing technology, establish capacity for long-term assessment of health outcomes and treatment efficacy and for general program evaluation, and serve as centers for training ... See full document
7
American Academy of Pediatrics Newborn Screening Task Force Recommendations: How Far Have We Come?
... the newborn) immediately before or after the birth of the ...state newborn screening educational ...prescreening education or informing of par- ...educational materials for families and ... See full document
20
Providing Services for Families With a Genetic Condition: A Contrast Between Cystic Fibrosis and Down Syndrome
... of newborn screening pro- grams, the question of follow-up services for those diagnosed with various conditions in the newborn period is also ...support, education, and psychosocial services ... See full document
6
Ethical Issues With Genetic Testing in Pediatrics
... for newborn screening tests to foster parental education and promote informed responses to test ...of newborn screening programs, it will be essential to demonstrate that expanded ... See full document
7
Benefit and Pitfalls of Newborn Hearing Screening
... Our study has shown that our coverage rate for our newborn hearing screening program improved over the three years from its implementation from 89% to 90%. We believe this improvement was achieved because ... See full document
5
Newborn screening in mucopolysaccharidoses
... pilot screening study with follow-up care for each ...confirmed screening diagnosis of an LSD genotype, three newborns were confirmed with an MPS I genotype (1 newborn with confirmed disorder and two ... See full document
10
Newborn Screening for Pompe Disease
... full-population screening study with follow-up care for 4 LSDs (Pompe disease, Fabry disease, Gaucher disease, and MPS type I) and the first NBS program to use a digital microfluidic method for screening in ... See full document
12
Parent-Centered Education
... Compulsory attendance laws have been obstacles to par- ents who want to teach their children at home in those states which did not explicitly provide for that opt[r] ... See full document
35
Newborn Screening Fact Sheets
... Newborn screening fact sheets were last revised in 1996 by the American Academy of Pediatrics Committee on ...the newborn screening fact sheets: biotinidase deficiency, congenital adrenal ... See full document
32
Newborn Screening Fact Sheets
... Physical Disabilities: Early diagnosis should lead.. to correct sex for rearing, eliminate problems of.[r] ... See full document
18
Florida's Experience With Newborn Screening
... Initially, at the University of Miami, cord blood specimens were obtained at the time of delivery from at-risk (mostly black) mothers from whom informed consent had been obtained during [r] ... See full document
5
Newborn Screening Fact Sheets
... Information is provided for the following 11 conditions: biotinidase deficiency, branched-chain ketoaciduria (maple syrup urine disease), congenital adrenal hyperplasia [r] ... See full document
31
Newborn Screening for Biliary Atresia
... of screening for biliary atresia to improve outcomes. Herein, newborn screening for biliary atresia in the United States is assessed by using criteria established by the Discretionary Advisory ... See full document
9
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