[PDF] Top 20 Harvard Personal Genome Project: lessons from participatory public research
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Harvard Personal Genome Project: lessons from participatory public research
... identified in our public dataset as hu034DB1. Several publi- cations implicate it as a cause of long-QT syndrome. Recommendations released by the American College of Medical Genetics (ACMG) [11] recommend that ... See full document
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Personal Genome Project UK (PGP-UK): a research and citizen science hybrid project in support of personalized medicine
... first project to implement the open consent framework [16] pio- neered by the Harvard PGP for participant recruitment and data ...in public databases under open ...identifiable personal ... See full document
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What should scientists do outside the laboratory? lessons on science communication from the Japanese genome research project
... of genome scientists toward social activities was increasing outside pressure for the GP to justify its huge budget requests ...the Genome Square events continued to regard their participation in these ... See full document
14
Identification of three new Alu Yb subfamilies by source tracking of recently integrated Alu Yb elements
... The tracking of the source copy in this study enabled us to identify the potential master gene of all Yb9 ele- ments. The relatively higher activity of the Yb lineage than almost all other Alu lineages has generated ... See full document
11
A mixed methods approach to understanding partnership experiences and outcomes of projects from an integrated knowledge translation funding model in rehabilitation
... the project or ...thorough project descriptions, some projects were coded using brief abstracts ...your project), and sustain- ability (was the sustainability of the intervention measured) was not ... See full document
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Some lessons learned from engaging in WaSH participatory action research in Melanesian informal settlements
... aware from the outset that there were real and perceived power imbalances between participants from informal settlements and enabling ...participants from informal settlements and enabling actors was ... See full document
7
The good, the bad and the ugly: lessons from participatory research with ‘gangsters’, ‘drop outs’ and ‘youth in care’
... From Community Engagement to Social Justice, Bristol: Policy Press, pp.201-212. • Etherington, K[r] ... See full document
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Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
... Biomedical research has been based upon a model of altruistic gift giving of sample and data to gener- ate knowledge in the service of promoting the greater good of ...different research edifice, which ... See full document
17
Teachers’ Implementation of Project-Based Learning: Lessons from the Research Goes to School Program
... comes from the Buck Institute for Education (BIE) (2003), which defines it as “a systematic teaching method that engages students in learning knowledge and skills through an extended inquiry process structured ... See full document
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From Participatory Culture to Participatory Fatigue: The Problem With the Public
... the public to hold the news media accountable for the quality of their perfor- ...and participatory media envi- ronment was also seen as an opportunity for professional journalists to strengthen their ... See full document
5
Mining the Harvard Caselaw Access Project
... Machine learning abounds in finance, policing, employment, politics, and health services, 1 but as a research technique, it is just gaining traction in legal academia. 2 Our aversion to machine learning, despite ... See full document
27
Education and public engagement using an active research project: lessons and recipes from the SEA-SEIS North Atlantic Expedition's programme for Irish schools
... marine research: ship-to-shore video events have been performed for a number of years by the International Ocean Discovery Program (IODP) (Kul- hanek et ... See full document
13
Whose Genome Is It Anyway?: Re-identification and Privacy Protection in Public and Participatory Genomics
... of research, so new risks may come up in the future that we cannot predict ...discovery from genome research against potential risks ... See full document
57
Opening the research agenda for selection of hot spots for human biomonitoring research in Belgium: a participatory research project
... hotspot research that are rather dif- ferent in ...to public health aspects, policy aspects, social aspects and research ...desk research provides the different options with background ... See full document
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Download Download PDF
... This means that the individual researcher and small group need unobtrusive help. Their data will start at a time when their primary imperative is their research goal, not data sharing. But practitioners who have ... See full document
5
Integrating evidence, politics and society: a methodology for the science–policy interface
... learned from recent experiments aimed to increase health policy outcomes associated with the production of evidence by means of participatory research models, which incorporate stakeholders into the ... See full document
6
Transforming researchers and practitioners: The unanticipated consequences (significance) of Participatory Action Research (PAR)
... When using Park‘s knowledge typologies in the coding of data, several themes emerged that had multiple ways of manifesting itself. The interaction and dialogue created by the ability to have conversation indicated that ... See full document
188
The Indigenous Resiliency Project: a worked example of community-based participatory research
... the research training and development workshop and four were invited to work with the local team to develop and conduct the ...the project for the duration (2 days per week for 4 ...the project and ... See full document
7
Youth-Based Participatory Research: Lessons Learned From a Transition Research Study
... The participatory researcher team de- cided to give all participants $2 gift cards that they could use to download music or videos from the Internet at the end of each ...tory research team selected ... See full document
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Alternatives to project-specific consent for access to personal information for health research: Insights from a public dialogue
... existing personal health information for research purposes is ...health research, increasingly researchers are turning to clinical records, as they become available in electronic ...observational ... See full document
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