[PDF] Top 20 Parents as care managers: The experiences of those caring for young children with cerebral palsy

... The intention in this thesis to take a medical perspective of cerebral palsy might be considered controversial. There has been a firm trend promoted by the Disability Alliance Movement27 away from a ... See full document

... choosing care for her ...her children, she finds a way to obtain ...health care practitioners do seem to help her when she is advocating for her children’s ...takes care to explain exactly why ... See full document

... (e.g., cerebral palsy and ...preterm children are at increased risk for poor academic attainment and special educational needs (SEN) compared with their term-born peers, and poor achievement in ... See full document

... these parents’ ...health care practices and other research exploring parents’ experiences of health care and caring for children with cerebral ...health care ... See full document

... view, cerebral palsy, as a neurological condition is certainly not ...with cerebral palsy, but more from the child’s inability to access social and cultural scenarios which would provide them ... See full document

... Parents shoulder the principal role in multifaceted responsibilities of long term disability management. These families are required to deal with an alteration in the family dynamic which requires a modification ... See full document

... the care of children, adolescents or young adults with MPS that require further research ...on children and their ...professionals caring for the children with MPS have not been ... See full document

... the parents that includes the abandonment of the dreamed-of and expected child and adaptation to the new reality (Barbosa, Chaud & Gomes, 2008; Vieira, Mendes, Frota & Frota, ...of children with ... See full document

... system. For example, one particularly common and potentially damaging issue is the reciprocal silence that occurs when familial beliefs promote a lack of discussion about the illness, in order to protect others or ... See full document

... Foster children were more likely than children in children’s homes to report high levels of being kept safe from harm, being able to join in with other children and young people, having a ... See full document

... Care must be taken in the recruitment of research sub- jects to ensure that samples are adequately representa- tive. This phase of a research project is time consuming and usually underreported in the literature. ... See full document

... METHODS: Children with CP ( n = 175 [109 (62.2%) boys]; mean recruitment age 2 years, 10 months [SD 11 months]; GMFCS I = 83 [47.2%], II = 21 [11.9%], III = 28 [15.9%], IV = 19 [10.8%], V = 25 [14.2%]) were ... See full document

... their children or knowing what was wrong with them; needed constant supervision and assistance with daily living skills; financial strains; the problems associated with school and relative services; difficulty ... See full document

... providers caring for children are knowledgeable participants and partners in the care of young children with emotional, behavioral, and relationship problems, graduate medical education ... See full document

... 99 children and young adults with CP living in the Swedish county council of V¨armland and ¨ ...Sweden children and young adults with CP are treated at specialized rehabilitation centers where ... See full document

... the parents and the reliability of the information are of material significance for the appropriate care for a child with ...the parents receive information mostly by the rehabilitation therapist who ... See full document

... negative experiences of caring for a child with chronic kidney disease (CKD), finding that parents of children on dialysis may have higher levels of anxiety affected by large family size, 14,15 ... See full document

... Foster care agencies generally have not devel- oped flexible policies for placement of children during episodes of parental illness and rapid re- turn of the children to the parent when sufficient ... See full document

... about parents’ experience when their children attend a hippotherapy ...program. Parents report that hippotherapy is a therapeutic intervention strategy which improves children’s daily activities and ... See full document

... In the remain- ing 26 patients administration of the medica- tion was discontinued gradually over a period of 2 to 3 days and no withdrawal symptoms were noted. SUMMARY.[r] ... See full document