[PDF] Top 20 <p>The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study</p>

... in hemophilia that did not have a treatment relationship with the ...between adherence and non-adherence to prophylaxis among AYAs was approximately equal, although the inclusion of more ... See full document

... of Hemophilia, for treating severe hemophilia ...3-times-weekly prophylaxis was established in the 90’s as the standard, to help maintain adequate plasma factor VIII (FVIII) trough levels ...pilot ... See full document

... for adults with ASD within a traditional health care ...our study, being able to communicate from one’s home was further found to lead to fewer appointment cancellations due to for example having “a bad ... See full document

... detection is crucial to ensure resectability in EOPC. In order to avoid futile pancreatectomy or R2 pancreatic resections, pre- operative evaluation of resectability by experienced surgeons and radiologists is important ... See full document

... this study are particularly impor- tant as we consider the next generation of therapies for patients with severe hemophilia including those with inhi- bitors, who have up until this point been very engaged ... See full document

... more qualitative re- search is needed to assess the attitudes and experiences of children and ado- lescents regarding lung ...of qualitative data on perceptions and concerns about sexuality and infertility ... See full document

... amongst young people has continued to be an area of ...population. Young people have been identified as a group that is the most influenced by peers (Brown, 2004; Chassin et al, 2004; Steinberg & ... See full document

... More in detail, the content for the original NDDI-E-Y was developed from the adult NDDI-E, with an input from a panel of experts and as a result of cognitive interviewing with 17 youths. An 11-item NDDI-E-Y was ... See full document

... (P-FiQ) study investigated the reliability and validity of several PRO instruments, including the fi ve-level version of the EuroQol fi ve-dimen- sional health status measure (EQ-5D-5L), 36-Item Short Form ... See full document

... It means that the patient with diabetes experiences physical or mental problems, which are the results of the treatment of diabetes. On the other hand, these experiences may result from speci fi c physical conditions that ... See full document

... Purpose: Compared to Western societies, breast cancer diagnosis in our region is usually made at a younger age and at a more advanced stage. Breast cancer in younger patients tends to be more aggressive, and may result ... See full document

... Young adults (n = 32) were recruited primarily from an Irish Facebook support group for young adults with Type 1 diabetes, and from the Facebook page of Dia- betes Ireland, Ireland’s leading ... See full document

... Data analysis was performed by the first author, with assistance from the third author. Differences between the focus groups and the individual interviews were explored, as it could be imagined that being in groups might ... See full document

... using prophylaxis (12 vs 13 bleeds/year ...older adults used higher weight based prophylaxis doses than younger adults ...that adults with severe hemophilia tend to bleed less ... See full document

... treatment adherence may also be conferred by shared decision-making regarding ...randomized study by the Better Outcomes of Asthma Treatment group, assessing the effect of shared decision-making on ... See full document

... treatment adherence and quality of ...this study. This study adds to the literature by providing important insights on the emotional outcomes of the illness, patients’ perceptions of glaucoma-related ... See full document

... Moreover, the educational level is associated with remembrance of the prophylactic regimen and the employ- ment status with the omission of infusions and communica- tion. In a significant but less noticeable manner, it ... See full document

... our study, even after the acute phase, general practitioners (GP) did not explain or discuss how medica- tions functioned or the dif fi culties managing them although providing information throughout treatment is ... See full document

... this study showed that adaptation to illness could emerge as a depres- sive mood in some ...in adolescents and the appearance of a depressive mood have been argued to be associated with symptoms such as ... See full document

... This study revealed that among the healthcare profes- sionals encountered by patients, physicians and nurses are the main sources of information about type 2 diabetes and its ...’ perspectives about ... See full document