WHO ARE THE PEOPLE RUNNING THIS STUDY? CAN I CALL THEM?

The Principal Investigator for this research study is Raymona H. Lawrence, MPH, DrPHc. Her telephone number is (912) 478- 1034. She is a doctoral candidate in the Jiann Ping Hsu College of Public Health at Georgia Southern University. She is also the University Wellness Program Director. Her address is PO Box 8078, Statesboro, GA 30460.

APPENDIX E, CONTINUED INFORMED CONSENT: ATHLETES

This study has been reviewed and approved by the Institutional Review Board at Georgia Southern University, a group that makes sure that study participants are treated fairly and protected from harm.

If you have questions about your rights as a study participant, or are not happy with any aspect of this study, contact -- anonymously, if you wish -- the

Office of Research and Sponsored Programs Georgia Southern University

PO Box 8005 Statesboro, GA 30460 or Phone: 912-478-5465 Fax: 912-478-0719 E-mail: [email protected] AGREEMENT STATEMENTS

Do you have any questions about the research study?

YES NO

Do you agree to take part in the research study?

YES NO

If you sign your name below, it means that you agree to take part in the research study.

Signature of Athlete

Printed Name of Athlete

APPENDIX F

INFORMED CONSENT: COACHES, ATHLETIC TRAIINERS, HEMATOLOGIST WHAT IS THE PROJECT ABOUT?

The purpose of this research project is to:

Learn about coaches’, athletic trainers’, and hematologists’ knowledge, attitudes, and perceptions of an NCAA guideline.

Determine necessary components of an education program for athletes, coaches, and athletic trainers.

You are being asked to take part in the research project because you are a coach, athletic trainer, or hematologist, who has the potential to be affected by NCAA Guideline 3c.

WHAT WILL YOU BE ASKED TO DO?

If you want to take part, you will be asked to:

Participate in a 45min to 1 hour discussion about athlete, coach, and athletic trainer health education. WHAT WILL YOU GET OUT OF BEING IN THE PROJECT?

Results from the interview will be used to develop and determine a health education program for athletes, coaches, and athletic trainers.

This will assist GSU in becoming a leader in athlete health education. ARE THERE RISKS TO TAKING PART?

Taking part in this research study should not put you at risk. You can be sure that none of the information from the discussion will be connected to you. It is confidential and will not be shared with anyone.

ARE THERE COSTS TO TAKING PART?

There are no costs to taking part in the study other than the time to take part in the discussion. DO YOU HAVE TO TAKE PART?

You do not have to be part of the study if you do not want to. Taking part in the study is up to you. You can stop taking part at any time. If you decide to stop, no one will be angry or upset with you.

IS WHAT I SAY IN THE SURVEY PRIVATE?

To protect your privacy, your name will not be included on the discussion notes. This information will not be connected to you in any way. All data will be reported as a summary of information.

APPENDIX F, CONTINUED

INFORMED CONSENT: COACHES, ATHLETIC TRAIINERS, HEMATOLOGIST WHO ARE THE PEOPLE RUNNING THIS STUDY? CAN I CALL THEM?

The Principal Investigator for this research study is Raymona H. Lawrence, MPH, DrPHc. Her telephone number is (912) 478-1034. She is a doctoral candidate in the Jiann Ping Hsu College of Public Health at Georgia Southern University. She is also the University Wellness Program Director. Her address is PO Box 8078, Statesboro, GA 30460.

This study has been reviewed and approved by the Institutional Review Board at Georgia Southern University, a group that makes sure that study participants are treated fairly and protected from harm.

If you have questions about your rights as a study participant, or are not happy with any aspect of this study, contact -- anonymously, if you wish -- the

Office of Research and Sponsored Programs Georgia Southern University

PO Box 8005 Statesboro, GA 30460 or Phone: 912-478-5465 Fax: 912-478-0719 E-mail: [email protected] AGREEMENT STATEMENTS

Do you have any questions about the research study?

YES NO

Do you agree to take part in the research study?

YES NO

If you sign your name below, it means that you agree to take part in the research study.

Signature of Participant

Printed Name of Participant ____________________________ Date

APPENDIX G

SICKLE CELL ORIENTATION AND EDUCATION (S.C.OR.E.) SURVEY

Thank you for taking the time to participate in my survey. You were chosen to participate in this study because your insights are valuable and you are one of the few people on campus who are privileged to play on a team governed by the National Collegiate Athletics Association NCAA (NCAA). The survey is designed to learn about what you know about issues r elated to a new recommendation outlined by the NCAA. Your opinion really matters. Please take your time answering each question. The information you share will not be connected to you in any way. All information will be reported together and will not i dentify you individually.

Term Definition

Genetic Testing Tests that identify genes that you inherit from your parents.

Please check the term that best describes you:

1. What is your gender? Male Female

2. What is your Race/Ethnicity? Please check one that best describes you. American Indian or Alaska Native

Asian

Black or African American

Native Hawaiian or Other Pacific Islander White or Caucasian

Hispanic or Latino

Other (please describe) _____________________________________

The following questions are about your sports physical and your feelings about genetics testing.

3. Are you tested for the following during your sports physical? Using the list below, check “yes,” “no,” or “don’t know.” Also, check if you are offered education about the test.

Type of Test Yes No Don’t Know Offered Education

Cholesterol High Blood Pressure Sickle Cell Trait Eyes

Skin Respiratory Cardiovascular

4. How likely would you be to support voluntary genetic testing during your sports physical? (circle the statement that matches how you feel about this question)

APPENDIX G, CONTINUED

SICKLE CELL ORIENTATION AND EDUCATION (S.C.OR.E.) SURVEY

1 2 3 4 5

Not at all likely Somewhat unlikely Neither likely or unlikely Somewhat likely Very likely 5. How likely would you be to support mandatory genetic testing during your sports physical?

1 2 3 4 5

Not at all likely Somewhat unlikely Neither likely or unlikely Somewhat likely Very likely The following questions will ask about your knowledge of sickle cell disease. Please circle the answer that bests reflects your knowledge or opinion.

6. Sickle cell trait is a disease. (circle one) a. True

b. False c. Don’t Know

7. People with sickle cell trait carry a gene that can be passed on to their children. (circle one) a. True

b. False c. Don’t Know

8. Having sickle cell trait can affect an athlete’s health. (circle one) a. True

b. False c. Don’t Know

9. Any race or ethnic group can have a sickle cell condition or be a trait carrier. (circle one) a. True

b. False c. Don’t Know

10. A blood test is needed to determine if a person has sickle cell trait. (circle one) a. True

b. False c. Don’t Know

11. People get sickle cell disease by being born with it. (circle one) a. True

b. False c. Don’t Know

The following questions are about your perceptions of sickle cell trait. Please circle the answer that is closest to how you feel about the statement.

12. I am at risk of having the sickle cell trait.

1 2 3 4 5

Strongly Agree Agree Don’t Know Disagree Strongly Disagree

13. It is important for an athlete to know if he/she has the sickle cell trait.

1 2 3 4 5