Code Subcode Example/Quote/Summary Stage Parent
Stressors child-related challenging behavior issues, e.g., irregular sleep, tantrum, smearing faeces, hitting, biting
prior; current E1/E2 health issues/comorbid disorders/illness: not eating, not gaining weight
between 1-2y/o; CFD, mitochondrial disease, generalized anxiety disorder, limited food intake-feeding tube
prior|prior; current
E1/E2 prior to diagnosis: fairly typical development-unexpected diagnosis (e.g.,
speaking at 10 months, joint attention, sociable). Physical development was typical (e.g., crawing, walking) except for speech and awareness
Prior E1/E2
worry about future: bullying in future school, lack of independence, uncertain about her possible progress because of the inconsistencies in her skills.
current- future
E1/E2
seeing his developmental lag when compared to other children Prior E1
safety, elopment issues prior; current E1
limited skills (global developmental delays), limited verbal skills, limited daily functional skills
prior; current E2
constant vigilance/attention required for child current E2
fluctuation in development current E2
general caring for child current E2
increased size, age: hitting has more impact than before current E2
need to be taught everything general E2
worry about child: vulnerability of child, how others will treat her. current-
future
E2
Family having multiple children with disabilities general E2
Finance limited insurance coverage general E1/E2
high cost of services general E1
general finances are tight, esp with single parent/income household general E2
123
Code Subcode Example/Quote/Summary Stage Parent
worry about having more children current E1
lack of autism awareness Prior E1
pressue to get services, therapy due to high stakes, importance of EI initial E1
Denial prior to diagnosis Prior E2
emotional state - anxiety, anger, depression, fear initial E2
parent health: disabled veteran; accident prior to interview prior; current E2
lack of time? general E2
marital issues: left husband Prior E2
being new to the system initial E2
single-parent stressors general E2
School poor quality of public schools especially for special ed. general E1/E2
lack of teacher-parent communication initial E1
lack of suitable options for child to interact with TYP children initial;
current
E1 services/
service providers
therapist attitude: lack of understanding initial E1
assessing supports: difficulty initial E1
coordinating services/lack of cohesion among services initial E1
implementing therapies at home initial E1
scheduling, logistics: arranging family's schedules to get child to therapies initial E1
insufficient availability, availability inconsistent current E2
Sacrifices competitive work; social life; giving up what you want for what is needed current E1/E2 balancing
work-family life
both parents need to work to pay for appointments, but they need time off from work to get him to appointments
initial; current
E1
Social Isolation initial E1/E2
Supports child-related progress in skills and behaviors current E1/E2
lesser challenging behaviors current E1
124
Code Subcode Example/Quote/Summary Stage Parent
services: (for child) efficacy, positive child behavioral outcomes current E1/E2 services: (for parents) general support, usefulness for parents, information,
providing network with other parents, quick evaluation; respite
initial; current
E1/E2
Financial initial;
current E2
Informal family: child's sibling initial;
current
E1/E2
family: spouse (involved with the children), having a strong marriage general E1
extended family: emotional support, practical (childcare), financial (paying for therapy)
initial; current
E1 friends: practical (ferrying child to appointments, babysitting),kids of same age current E1/E2 friends of children with disabilities/ASD: understanding, helping with
questions
current E1/E2
community that cares e.g., church current E1
external location: staying in a resource-rich location current E1/E2
parent's work place - flexible hours current E1
Resilience parent strengths
accepting diagnosis; being realistic about child's capabilities initial; current
E1/E2
humor, having fun,optimistic general E1/E2
doing the best you can, doing all you can general E1/E2
prior knowledge/background: pre-med background & experience with older son's diagnosis; family history of autism
Prior E1/E2
appreciative,being thankful current E1/E2
vigilance: "I always try to be really attuned to looking for like developmental issues with them"
Prior E1
love, pride general E1
perseverence, determination, hope: initial;
current
E2
125
Code Subcode Example/Quote/Summary Stage Parent
current
proactive, initiative, resourceful prior; initial;
current E2 self-education initial; current E2 self-efficacy current E2 family strengths
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