Can you say anymore about HOW these have been helpful?

Part 3

We are interested in how you view the COPE Programme 3 months on. We are not asking you to remember what you wrote before in the previous

questionnaire but to describe your experience of various aspects of the programme as they seem to you now. Please say as much as you can in each case.

1. Stretch, exercise and education about pain mechanisms, healing etc.

Thinking back to the programme, can you identify anything that made it easier to benefit from these aspects of the programme than on previous occasions when you’ve had treatment from a physiotherapist?

Were there things that made it more difficult to benefit from these aspects of the programme compared with your previous experiences of physiotherapy?

Are you continuing to do stretch/exercise on a regular basis? YES/NO

If not, can you say something about why not?

2. Pacing

Looking back, can you identify a point when pacing began to make sense/ made things easier? Did this happen all at once or did it happen in stages?

Are you currently using pacing techniques to help you manage your pain?

YES/NO

If not, can you say something about why not?

3. Relaxation/Self-Hvpnosis

Are you practising relaxation techniques on a regular basis at the moment?

YES/NO

If the answer is yes:

Looking back, has there been a point on the programme or since, when it became easier to do? Please elaborate.

It the answer is no, has practising relaxation techniques ever been something you have done a regular basis since attending the COPE Programme?

If yes, why did you stop?

If no, can you say something about why not?

4.Thouahts and Feelinas.

Have you, to any extent, managed to change any of the ways you think and feel since coming on the COPE Programme?

Looking back, has there been a point on the programme or since when you were aware of this happening? Please say as much as you can about this.

Are you currently continuing to identify and challenge unhelpful thoughts?

If not, can you say why not?

Has anything else during the last 3 months helped you with the way you think and feel? Please say as much as you can about this.

5. Communicating more effectively with friends and family

Looking back, did you find this component of the Programme helpful? Please say as much as you can about this.

Have you made use of what you learned about communication during the past three months? Again, please give as much information as you can.

6. Continued setting and revising of goals

Looking back, did you find this aspect of the Programme helpful? Please say as much as you can.

Do you continue to set and revise goals? YES/NO

If you do, can you say why?

If you do not, can you say why not?

6. If you have managed to keep going with any aspect of the programme, can you say something about how you have organised yourself to do so? E.g. Have you established a routine, what’s helped, how you’ve overcome difficulties?

7. At the end of the 8 “core” sessions of the COPE Programme, we asked you to identify any “key moments” which occurred during the Programme when things “clicked” / you suddenly felt that you were making progress. Three months on, can you identify what now seem to have been the “key moments” on the programme for you.

THIS IS NOT ASKING YOU TO REMEMBER WHAT YOU WROTE BEFORE BUT TO REFLECT ON THE COPE EXPERIENCE 3 MONTHS ON AND TRY TO

IDENTIFY WHAT NOW SEEM TO HAVE BEEN “KEY MOMENTS” FOR YOU DURING THE PROGRAMME.

8. Have there been any "key moments” SINCE completing the Programme when things "ciicked” / you suddeniy feit that you were making

progress/further progress. Please say as much as you can about the circumstances at this time.

Parts

Overall Maintenance

1. Looking back over the Programme now, do you think you were sufficiently prepared to keep going at the end of the 8 sessions (both in terms of the content of the programme and of your own confidence to cope)?

If not, can you say something about what you think might have helped you to maintain your progress or even make more progress over the past 3 months?

2. Over the past three months, it is possible that you have had to deal with either minor or major events in your life. These can sometimes make it more difficult to keep going with your pain management strategies.

If you managed to keep going with your strategies (even if you had to stop for a short while) can you say what you think has helped you? Please say as much as you can.

If you found it hard to keep going with your strategies, can you say what seemed to make it difficult? Please say as much as you can.

Part 4

In retrospect, did the “core” sessions of COPE live up to your expectations? Did it meet your needs? Please say more about anything you found helpful about the Programme.

Again, in retrospect, were there any aspects of the programme that you found unhelpful? Please give us as much information as possible.

Looking back, is there anything which you now think was missing from the programme (i.e. that you expected to be there or think could have improved the Programme, bearing in mind the resources available to us).

Again, looking back, was there anything about BEING IN THE GROUP that you found particularly heipfui/ helped you make progress on the Programme?

Was there anything about BEING IN THE GROUP that you feel interfered with your progress during the “core” COPE programme?

In hindsight, was there anything OUTSIDE THE PROGRAMME (e.g.

events/circumstances at home) that you think may have helped you make progress whilst you were on the “core” COPE programme?

Was there anything OUTSIDE THE PROGRAMME (as above) that you feel may have Interfered with your progress whilst you were on the “core” COPE

Programme?

It is 3 months since you completed the “core” COPE Programme. Looking back, do you now think that you would have made the SAME progress learning pain

management skills on a one-to-one basis, or MORE progress, or LESS?

Once again, we are very grateful for you help with this study. We hope to be able to use our findings to help future Cope participants gain even more from the

Appendix (ix) Individual Scores and Rating of Improvement (n=30)

Patient No:

Measure Pre post 3/12 12/12 Improvement category

01. Pain Intensity (PI) 8 6 8 7

Pain Distress (PD) 8 6 8 7 0

PSEQ 29 48 54 47 1

PCS 6 2 9 6 1

PDI 39 21 8 1 1

WALK (m) 170 260 240 280 1

IMPROVED ON 2 PSYCHOLOGY AND 2 PHYSICAL MEASURES OVERALL RATING = 6 “ IMPROVED”

02 Pain Intensity (PI) 5 5 8 99

Pain Distress (PD) 5 7 9 99 0

PSEQ 28 34 10 99 0

PCS 36 19 28 99 1

PDI 67 33 60 99 1

WALK (m) 50 76 999 999 1

IMPROVED ON 1 PSYCHOLOGY AND 2 OVERALL RATING = 2 “ PARTIALLY III

PHYSICAL MEASURES IPROVED”

03. Pain Intensity (PI 6 6 5 99

Pain Distress (PD) 7 6 2 99 0

PSEQ 12 38 31 99 1

PCS 20 21 12 99 0

PDI 40 24 25 99 1

WALK (m) 300 290 280 999 0

IMPROVED ON 1 PSYCHOLOGY AND 1 OVERALL RATING = 2 “ PARTIALLY III

PHYSICAL MEASURE IPROVED”

04. Pain Intensity (PI) 7 7 8 6

Pain Distress (PD) 7 4 7 4 1

PSEQ 16 43 42 36 1

PCS 20 21 12 19 0

PDI 999 30 37 36 99

WALK (m) 285 320 300 325 0

IMPROVED ON 2 PSYCHOLOGY AND NO PHYS OVERALL RATING = 4 “ PARTIALLY IMPROVE

CAL MEASURES :d”

Patient No:

Measure Pre post 3/12 12/12 Improvement category

05 Pain Intensity (PI) 9 5 4 99

Pain Distress (PD) 9 5 5 99 1 PSEQ 24 44 25 99 1 PCS 33 38 21 99 0 PDI 48 26 11 99 1 WALK (m) 210 280 999 999 1

IMPROVED ON 2 PSYCHOLOGY AND 2 PHYSICAL MEASURES