An overview of the
Department of
Health funded
initiatives to
integrate genetics
into the NHS
.Genetics
Service Development
Projects
National Genetics Education and
Development Centre
Contents
Introduction 2
Project Descriptions:
• Addenbrooke’s NHS Trust
“Integration and development of renal genetics” 3 • Birmingham Women’s Hospital Healthcare Trust
“Development of patient pathways” 5
• Blackburn with Darwen PCT
“Establishment of community based genetic services” 7 • Cheshire & Merseyside Medical Genetics Directorate 9
“DialGen – pathways and targeted training”
• Great Ormond Street Hospital NHS Trust “Establishing clinic the community and education” 11
• Guy’s & St Thomas NHS Trust
“Genetics education seminars – London” 13 • University Hospitals of Leicester NHS Trust
“Genetics in the community, South Asian” 15 • Central Manchester & Manchester Children’s Hospitals University
NHS Trust
“Development of integrated care pathways and guidelines” 17 • Nottingham City Hospital NHS Trust
“Development of integrated care pathways for FH” 19 • Oxford Radcliffe Hospitals NHS Trust
“Specialist ophthalmic-genetic counsellor and pathways” 21
Overview of Main Themes 23
Diagram 24
Resources on website 25
Appendices:
Content page – Appendices 26
Appendix 1 - Patient Information 27
Appendix 2 - Job Descriptions 30
Appendix 3 - Pathways 55
Appendix 4 - Job Descriptions 59
Appendix 5 - Job Descriptions 71
Appendix 6 - Courses 76
Appendix 7 - Poster / Leaflet 78
Service Development Projects
Introduction
The Department of Health (DH) has funded 10 projects across England to develop innovative models, which integrate genetics into mainstream NHS services.
The NHS National Genetics Education and Development Centre is working with the staff from these projects to provide a forum for sharing experiences,
resources and good practice.
The projects are:
Addenbrooke’s NHS Trust
Birmingham Women’s Hospital Healthcare Trust Blackburn with Darwen PCT
Cheshire & Merseyside Medical Genetics Directorate Great Ormond Street Hospital NHS Trust
Guy’s & St Thomas NHS Trust
University Hospitals of Leicester NHS Trust
Central Manchester & Manchester Children’s Hospitals University NHS Trust
Nottingham City Hospital NHS Trust Oxford Radcliffe Hospitals NHS Trust
This publication is a joint collaboration between project staff and the Centre’s Service Development Facilitator, Sukvinder Kaur.
The first part of the booklet details the description of the projects, with the attachments/supporting information at the back in the appendices (each appendix relates to one of the projects).
Addenbrooke’s NHS Trust
Project Description
Project Title: Integrate renal genetic and nephrology services into a single patient model (alter patterns of referral to specialist services)
Start date of project: • January 2005 Date project due to end:
• January 2007 Duration:
• 2 years Project Description:
• Integrate renal genetic and nephrology services in a single patient care model.
• Assess its impact on the efficiency and efficacy of overall care
provision, patient and kindred satisfaction, and physician and patient education.
• Develop an integrated clinical service for renal patients, comprising clinical assessment and management, genetic diagnosis and appropriate genetic counselling.
• Establish a separate weekly nephrology clinic directed towards patients with structural and functional tubular disorders.
• Improve care pathways to ensure consistent and clinically effective care.
• Alter patterns of referral to specialist services.
• Improve waiting times for referral to specialist services.
• Consistency of information provided across the area serviced and patient satisfaction.
Staff:
• Nurse Specialist • Clinical Specialists • Renal dietician – ‘on call’ • Administration Support
• Research scientists – genetic tests • IT support
• Genetic Counsellor (to be recruited) Training:
• Training for Specialist Registrars in-house (clinic attendance) Target Audience:
Awareness:
• Healthcare professionals – Consultants/ GP’s • Users of service – Patients, families, and carers Evaluate/Measure:
• Patient satisfaction
• Access to specialist genetics personnel • Referral rates
• Genetic tests • New diagnosis
Tools:
• ODBC – compliant relational database
• On-line support for patients and their primary care physicians • Patient-administered questionnaire
• Disease specific information
• Real time integrated access to patient data Guidelines:
• Letter to GPs/other consultants
Birmingham Women’s Hospital Healthcare Trust
Project Description
Project Title: Develop patient pathways to identify patients at risk of cardiac, endocrine or renal genetic conditions in primary care and introduce specialist nurse-led and MDT clinics to manage and follow-up in secondary care
Start date of project: • December 2004 Date project due to end:
• November 2006 Duration:
• 2 years Project Description:
• Introduce pathways for initial assessment and referral at primary care and secondary care level.
• Introduce specialist nurse-led multidisciplinary clinics – cardiology, endocrinology and renal medicine (3 disease areas).
• Introduce joint consultant-led multidisciplinary clinics in the 3 disease areas.
• Improve referral pathways from practices involved.
• Improve appropriateness of referrals and monitor equity of access. • Improve patient outcomes (in terms of appropriateness of referral and
service usage). Partnership:
• Patients (public involvement)
• Health care professionals (GPs, Practice Nurses, Specialist nurses, Secondary Care Clinicians)
• Community groups
• University Hospital Birmingham NHS Trust • Primary Care (HoBtPCT)
• (University of Birmingham) Staff:
• Nurse Specialist – Renal Genetic Disorders (Appendix 2) • Nurse Specialist – Cardiac Genetic Disorders (Appendix 2) • Nurse Specialist – Endocrine Genetic Disorders (Appendix 2)
• Highly Specialist Nurse in Genetic Education/Highly Specialist Genetic Counsellor (Appendix 2)
• Multidisciplinary Clinic Administrator (Appendix 2) •
Training:
• Nurse Specialist (disease areas) • Primary care clinicians
• Genetics training programme Target Audience:
• Patients attending renal, cardiology and endocrinology services • Primary care contacts (new and existing patients)
Awareness:
• Through clinics to raise Nurse awareness • Primary care awareness
Evaluate/Measure:
• Patient satisfaction
• Estimate impact of introduction of the multidisciplinary clinics: o Clinical genetics
o Medical referrals
o Molecular genetic testing o Screening services • Referral and clinic activity
• Patient/user and staff experience, including barriers/levels to access
Tools:
• Patient pathway
• Management protocols • Risk assessment materials • Family history filter questions
• Family history questionnaire (completed by patient) Guidelines:
Blackburn with Darwen PCT
Project Description
Project Title: Establish community based, hospital linked, genetic services for families in East Lancashire where there is a high incidence of autosomal recessive disorders. Start date of project:
• February 2005 Date project due to end:
• January 2007 Duration:
• 2 years Project Description:
• To improve the clinical service available to families of South Asian origin who have children affected by autosomal recessive disorders. • To provide and discuss genetic information with extended family
members in consanguineous families so that they understand their own personal risk of having affected children and can make informed
reproductive choices.
• To enable parents to make informed choices about arranging future marriages for their children.
Partnership:
• Blackburn with Darwen PCT
• East Lancashire Acute Hospitals Trust
• Regional Genetics Services at Central Manchester & Manchester • Children’s Hospitals University NHS Trust.
• Genetic Specialists Staff:
• Asian speaking Primary Care Genetic Co-worker • Database maintenance (A&C 3)
• Administrative Support (A&C 3) • Genetic Counsellor
• Consultant Paediatrician Training:
• Ongoing Target Audience:
• Families of South Asian origin - especially where there is consanguinity.
Awareness:
• Community Evaluate/Measure:
• Acceptability and update of the service • Value to the individual family member • Baseline figures initially for service uptake
Tools:
• Family pedigree • Written information
• Semi structured questionnaire • Intervention care pathway Guidelines:
Cheshire & Merseyside Medical Genetics Directorate
Project Description
Project Title: Neurology, Cardiology, MODY diabetes, Nephrology (all adult)
Start date of project:
• September 2005 Date project due to end:
• August 2007 Duration:
• 2 years Project Description:
• To develop a liaison service – for a liaison genetic counsellor to work with medical specialities– ‘DialGen’.
• To effectively deliver an increasing range of medical genetic services to the population.
• Increase the level of genetic knowledge in the medical specialties. • Develop pathways between medical specialties and clinical genetics. • Improve knowledge, proficiency and confidence in core genetic skills
among specialist health professionals.
• Improve care pathways and patient referral times. • Improve patient satisfaction.
• Identify other medical specialities requiring genetics education. Partnership:
• Joint liaison clinics managed as a training session as an opportunity to raise awareness and increase the knowledge base of the specialist link nurse from the medical speciality (adult clinic).
Staff:
• ‘DialGen’ – Liaison Genetic Counsellor - Grade H (Appendix 4) • Consultant Support
• Administrative Support - A&C 3/4 (Appendix 4) Training:
• Identify the educational and training needs Target Audience:
• Specialist Nurses Awareness:
• Medical specialities aware of services • Increase level of proficiency
Evaluate/Measure:
• Evaluate existing knowledge, skills and attitudes • Recording professional time and other costs • Assess knowledge proficiency
• Referral pathways (pre and post) Tools:
• Utilise existing knowledge, skills and attitude assessment tools (where not available use descriptive analysis)
• Family history taking tools
• Process map referral pathway – cardiology and neurology • 7 competencies framework – Genomics Policy Unit
Guidelines:
• Work within existing Cheshire and Merseyside clinical protocols and guidelines
Great Ormond Street Hospital NHS Trust
Project Description
Project Title: Proposal for genetics nurse practitioners/counsellors to work in the community
Start date of project: • April 2005
Date project due to end: • March 2007
Duration: • 2 years Project Description:
• Work with community based nurses and GPs – facilitating education of community based health professionals.
• Protocols – referrals to secondary/tertiary care.
• Gatekeeper – decrease unnecessary referrals and increase efficiency. • Establish clinics in the community.
• Establish network of genetic counsellors based at the North East Thames Regional Genetics Service to work with PCTs.
Partnership:
• Chronic disease teams Staff:
• Genetic Counsellor (Appendix 5) • Project Manager & Clinical Consultant • Project Lead
Training:
• Education programme (example) Target Audience:
• Ethnic minority groups – Bangladeshi & Jewish • Recent immigrants
Awareness:
• Community (patients & public) Evaluate/Measure:
• Knowledge based questionnaire (start and end of project) • Waiting times, DNA rates, Referrals
Guidelines:
• Protocols for referral to secondary and/or tertiary care • Evidence based protocols (examples)
Guy’s & St Thomas’ NHS Trust
Project Description
Project Title: Genetic education seminars, London. A targeted education programme for health professionals, covering a wide range of genetic diseases Start date of project:
• February 2005 Date project due to end:
• February 2007 Duration:
• 2 years Project Description:
• Establish a targeted education programme covering a wide range of genetic diseases, open to health care professionals in primary,
secondary and tertiary care – from Genetics and a wide range of other specialities.
.
Partnership:
• Primarily clinicians in the SE Thames region, but open to anyone in the UK
Staff:
• Education Programme Administrator Training:
• Training offered to healthcare professionals attending courses - details of seminars, flyers and programme attached (Appendix 6).
Target Audience:
• Health Care Professionals o Primary o Secondary o Tertiary Awareness: • Healthcare professionals Evaluate/Measure: • Uptake of courses • Feedback of courses Tools:
Guidelines:
• In areas where a need for clinical management guidelines is identified, these will be developed.
University Hospitals of Leicester NHS Trust
Project Description
Project Title: “Genetics in Health - Community Project”
Start date of project: • October 2004 Date project due to end:
• September 2006 Duration:
• 2 years Project Description:
• To raise awareness of genetics and the genetic service in the South Asian community.
• To explore the South Asian community’s understanding of genetics and the genetic service.
• It is hoped that this information will inform the development of culturally sensitive strategies.
Partnership:
• Members of the clinical genetic team • Public health representatives
• Primary care representatives
• Community representatives (religious and community leaders, users) • GPs
Staff:
• Project Worker
• Secretarial/Administration support Project Worker job dimensions:
• Individual with health, social science or other related discipline to help develop, implement and evaluate an innovative approach to engage with the community.
• Post holder will act as the project leader under the guidance of the project management team.
• Post holder will research, develop and pilot strategies to improve the Asian Community's understanding of and access to genetic services. • Post holder will need to be highly motivated, confident, thoroughly
conversant with Asian cultures and able to speak at least one Asian language.
Target Audience:
Awareness:
• South Asian Community • Health Care Professionals Evaluate/Measure:
• Investigate prior understanding of genetics and genetic service and reassess towards end of the project.
• Type, frequency and outcome of all contacts. • Strategies identified and effectiveness evaluated.
Tools:
• Semi-structured individual and group discussions. • Patient Satisfaction Survey.
• Clinical Genetics Poster and Leaflet (Appendix 7). • Website: www.uhl-tr.nhs.uk/clinicalgenetics.
Central Manchester & Manchester Children’s
Hospitals University
Project Description
Project Title: Develop integrated care pathways and guidelines for routine monitoring of selected genetic disorders in primary and secondary care
Start date of project: • March 2005
Date project due to end: • February 2007 Duration:
• 2 years Project Description:
• To facilitate the development of integrated care pathways, guidelines and patient held records where appropriate, for the management of genetic disorders in primary and secondary care. Conditions focused on include: neurofibromatosis type 1, achondroplasia, tuberose
sclerosis, Huntington’s, Marfan, Turner and Williams Syndromes. • Also, undertaking a trial of methods in tertiary heart centres to identify
families with conditions who may be at risk of sudden cardiac death and offer appropriate genetic counselling, testing and medical management, including: long QT, Brugada Syndrome, hypertrophic cardiomyopathy, and hypercholesterolemia).
• A series of study days and consensus meetings will be held to inform and obtain guideline consensus, and disseminate findings (Appendix 8).
Staff:
• Genetic Service Development Co-ordinator • Senior Cardiac Nurse - Grade G
• Administration support - A&C 4 Target Audience:
• Consultants, Surgeons, nursing staff and community health professionals across a broad range of specialisms including:
o Clinical Genetics o Cardiology o Ophthalmology o Paediatrics o Neurology o Orthopaedics o Genetic Counselling
Awareness:
• Healthcare professionals in specialist areas. Evaluate/Measure:
• Appraise and evaluate the effectiveness and appropriateness of existing management guidelines and care pathways; using this processes to inform the design and development of new ones. Tools:
• Pathway Guidelines:
Nottingham City Hospital NHS Trust
Project Description
Project Title: Development of integrated care pathway for familial haemochromatosis
Start date of project: • October 2004 Date project due to end:
• June 2006 Duration:
• 18 months Project Description:
• Development of integrated care pathways (ICP) for counselling, testing, management of family history of haemochromotosis.
• ICP will allow a common point of contact for patients.
• Care appropriately co-ordinated between primary, secondary and clinical genetics service.
Partnership:
• Nottingham City Hospital NHS Trust
• East Midlands & South Yorkshire Specialist Commissioning Group Staff:
• Clinical Nurse Specialist (secondment for 1 year) Training:
• Education for healthcare professionals Awareness:
• Relevant referrers Target Audience:
• Healthcare professionals referring 1st degree relatives Evaluate/Measure:
• Targeted use of resources • Share learning forum • Written information
• Action plan for implementation • Disseminate outcomes
Tools:
Guidelines:
• Single policy • Guidelines
Oxford Radcliffe Hospitals NHS Trust
Project Description
Project Title: Development of specialist ophthalmic-genetic counsellor and care pathways
Start date of project: • November 2004 Date project due to end:
• November 2006 Duration:
• 2 years Project description:
• Development of a specialist ophthalmic-genetic counsellor.
• Development of robust care pathways – referral to the combined clinic and back to referring doctor.
• Assess educational needs of regional eye hospital staff and primary care and provide genetics education and information where
appropriate.
• Improve the co-ordination in clinics to improve attendance rates and patient experience.
• Improve ‘patient experience’, through information, psychosocial support, specialist counselling.
• Develop good practice in collection and audit of routine data. • Development of ophthalmic genetic register.
Partnership:
• Regional Eye Hospital • District General Hospitals Staff:
• OphthalmicGenetic Counsellor Training:
• MSc Genetic Counselling; RNIB/City University Eye Clinic Support Studies Course; Visual Impairment Awareness Training.
Target Audience:
• Healthcare professionals (primary, secondary care, optometry and nursing staff)
• Patient support groups
• Statutory and voluntary agencies • Patients
Evaluate/Measure:
• Audit of routine data , assessment of educational needs and subsequent evaluation, patient satisfaction.
Tools:
• Questionnaire and feedback Guidelines:
Enhancing Genetics in Mainstream Medicine – Overview of
Main Themes
Service Development project activities cluster into three main themes; setting up/enhancing multidisciplinary clinics, delineating integrated care pathways and referrals and providing education.
The diagram on the next page illustrates the spread of these themes across the projects. Each row represents an area of activity for one or more projects and highlights the processes and structures that are being put in place to implement genetics into mainstream services.
* Autosomal Recessive Conditions - Congenital Adrenal Hyperplasia, Cystinosis, Sandhoffs Disease, Sanfillipo Disease, Spinal Muscular Atrophy, Thalassaemia
Enhancing Genetics in Mainstream Medicine – Overview of Main Themes
Setting up / Enhancing
Multidisciplinary Clinics
Delineating Integrated Care
Pathways & Referrals
Providing Education
Groups of disorders Healthcare professionals Service Users / Community
Adult chronic disease Adult chronic disease Adult chronic disease
Cardiology Cardiology Cardiology
Endocrinology Endocrinology Endocrinology
Eye disease Eye disease
Nephrology Nephrology Nephrology
Neurology Neurology
Sudden Death in Adults
Individual disorders
Achondroplasia
Haemochromatosis Haemochromatosis
MODY (Maturity Onset Diabetes of the Young)
MODY (Maturity Onset Diabetes of the Young)
Neurofibromatosis Tuberosesclerosis Family Screening for Autosomal
Recessive Disorders* within the Asian Community
Family Screening for Autosomal Recessive Disorders* within the
Asian Community
Raising Community Awareness (South Asian Community) Courses for Health Care
Resources on website
Resources for Projects
During the Evaluation and Education Mainstreaming Genetics event held on the 12th April 2005, a needs assessment workshop was carried out to determine resources that project staff would find useful. These resources are now available on our website
(www.geneticseducation.nhs.uk). The collated information and resources may be useful to all health professionals developing services for genetics.
The National Genetics Education and Development Centre has provided links to external websites with the aim of assisting the Service Development projects with their work. It cannot take any responsibility for the content of these external resources.
The information provided has been split up into 4 categories as detailed below: • General Information
• Project Management • Education
• Providing a genetics service
Under each category the information made available is as follows: 1. General Information
Improvement Leaders’ Guide Structure of the NHS
Genetics Knowledge Parks Links to Genetic Centres
How to write patient information
Patient Records
2. Project Management
Business Planning
Commissioning Guidelines
Integrated Care Pathways Referrals
Sustainability
Raising Awareness
Sources of Research funding – Route Map
3. Education
Core Competencies in Genetics Education and learning theory
Genetic Resources
Taking a family history 4. Providing a Genetics Service
Appendices
Appendix1 Patient Information (Renal Genetics and Tubular Disorder Clinic) (Addenbrooke’s NHS Trust)
Appendix 2 Job Descriptions (Birmingham Women’s Hospital Healthcare Trust)
Nurse Specialist – Renal Genetic Disorders Nurse Specialist – Cardiac Genetic Disorders Highly Specialist Nurse in Genetic Education Multidisciplinary Clinic Administrator
Project Manager
Appendix 3 Pathways for Referrals (St Mary’s Clinical Genetics) Intervention Care Pathway – Referral Criteria
Intervention Pathway for Contacting Extended Family Pathways for Referrals by Paediatricians
(Blackburn with Darwen PCT)
Appendix 4 Job Descriptions (Cheshire & Merseyside Genetics Directorate) Directorate Administration Support Manager
Specialist Liaison Genetic Counsellor
Appendix 5 Job Descriptions (Great Ormond Street Hospital NHS Trust) Clinical Nurse Specialist/Counsellor (Community)
Appendix 6 Courses (Guy’s & St Thomas’ NHS Trust)
Familial Adenomatous Polyposis
Psychiatry & Genetics Symposium
Appendix 7 Poster / Leaflet (University Hospitals of Leicester NHS Trust)
Clinical Genetics Poster
Leicester Genetics Service – Basic Genetics
Appendix 8 Courses (Central Manchester & Manchester Children’s Hospitals University)
Achondroplasia study day
Appendix 1
Patient Information
Renal Genetics and Tubular Disorders Clinic
Why am I attending this clinic?
• You have been asked to come to this clinic because you or one of your relatives have a condition that affects your kidneys
• We aim to:
Provide an opportunity for you to have a more specialist in-depth consultation
Not only take care of you, but also hope to highlight any potential problems in the family
Combine Consultants from different areas of renal care and a specialist nurse
Prevent unnecessary visits to the hospital
What will happen in clinic?
• You will be asked to: Give a urine sample
Have your blood pressure checked
Be weighed and have your height measured • You will then be seen by one or more of the following:
A renal specialist A clinical geneticist A clinical biochemist A kidney stone specialist
• After you have seen the doctors you may be asked to go to phlebotomy (in the Outpatient Department on level 2) to provide a blood sample
Will I need any scans or other tests?
• It may be necessary for you to have an x-ray whilst you are here, but if you need any other investigations they will be booked for you at a later date and the
appointment sent to you
Will I need to come back?
• It is likely you will require further follow up, this will be decided between you and the doctor and an appropriate appointment made
Will I get the results of the tests?
• You may receive a phone call the following day to discuss your blood test results • We will send the results to your GP in a letter
• If you would particularly like us to let you know your results please tell us in the clinic
What can I do to prepare for the clinic?
• This condition may be inherited (passed within families). It would therefore be helpful for you to find out if any of your relatives have had problems with their kidneys, or high blood pressure
• Please bring an up to date list of your tablets with you, and any test results you may have received from your GP or other doctors you have seen
• Please be prepared to produce a fresh urine sample when you arrive. We will provide a container
Where can I get further information?
• Sister Deborah Spencer, the Renal Nurse Specialist, will usually be available in clinic. You can also contact her by:
phone: 01223 257194
e-mail: [email protected]
• As part of this clinic, we are developing patient information about some disorders of the kidney. We would like to include patients’ views and experiences in this.
If you would like to be involved as a patient representative, please let us know in clinic or on the contact number above.
Contacts
Renal Genetics and Tubular Disorders Clinic PA: Ms. Mary Footner, Box No. 118
Direct dial: 01223 256318 Fax: 01223 586506 Consultants:
Dr Fiona Karet (nephrology) 01223 762617 Dr Anthony Norden (clinical biochemistry) 01223 586820 Dr Richard Sandford (clinical genetics) 01223 762616 Mr Nimish Shah (urology) 01223 257215 Renal Specialist Nurse:
Sr Deborah Spencer 01223 257194
This document is also available in other languages, large print and audio format upon request – 01223 216032 Cantonese Gujarati Italian Kurdish Urdu Document history
Renal Genetics and Tubular Disorders Clinic Authors
Department Renal Genetics and Tubular Disorders Clinic, Box 118
Addenbrooke’s Hospital, Cambridge University Hospitals NHS Foundation Trust, Hills Road, Cambridge, CB2 2QQ
www.addenbrookes.org.uk 01223 256318 Contact number July 2005 Published July 2007 Review date
Renal genetics and tubular disorders clinic.doc (word) File name
Appendix 2
JOB DESCRIPTION
Job Title: Nurse Specialist – Renal Genetic Disorders
Grade: H grade 1.0 WTE
Fixed-term until 30/11/2006
Location: Renal Service, University Hospital Birmingham and
Clinical Genetics Service, Birmingham Women’s Hospital
Reports to: Lead Clinician for Speciality
Genetic Service Development Lead
Key Working Relationships: Project Lead and Project Manager for Genetics Service Development, Genetics Services at The Birmingham Women’s Healthcare Trust, NHS Genetics Education and Development Centre, PCTs and GP
representatives, Consultant Nephrologists and Clinical Geneticists, and other members of the Renal
Multidisciplinary Team, Senior Nurse (Renal Dialysis & Outpatients), Service Users
Job Purpose: The post holder will be a senior member of the renal and
genetic counselling multidisciplinary teams and will lead the development and delivery of a nurse-led service for the management of patients with a family history of genetic renal disease. The post holder will develop networked links with primary care, general practitioner and clinical genetic services. The post holder will contribute toward the development of a data collection system to support the identification and management of genetic renal disorders. The post holder will provide a service which enables patients and their families to access genetic counselling and psychological support.
KEY RESPONSIBILITIES 1 Clinical
1.1 To develop protocols for nurse-led services for patients and their families accessing specialist genetic clinics, newly diagnosed and existing patients with renal genetic disorders
1.2 To develop, and review as appropriate, the patient referral and management pathways in liaison with the project team and the renal clinical leads.
1.3 To develop a process for the triage of new referrals for renal genetic assessment, in liaison with the clinical genetics service. This will include referrals received from:
• General Practitioners, Practice Nurses and Community Practitioners
• Hospital clinicians
• Outside NHS and private care providers
1.4 To undertake nurse led clinics upon receipt of a referral to undertake genetic and nursing assessment of patient’s and their families with specific reference to:
• Detailing the patient’s family history and detailed pedigree. Ensure that patients’ and their relatives’ right to privacy and confidentiality, is maintained.
• Eliciting patient’s concerns and expectations, and
understanding of reason for referral, clarifying information with the patient as appropriate
• Confirm diagnostic information
• Interpret medical, family and psychological history
These functions will include the exercise of diplomacy and tact and ensuing that the patients and their relatives’ rights to privacy and confidentiality are maintained.
1.5 To undertake nurse-led referral to the relevant clinical genetic
services, on the basis of the patient’s family history/pedigree, for those individuals identified as “at risk”. This includes, where appropriate, discussion and information giving to the patient and/or their relatives prior to the referral.
1.6 To support the specialist genetic counselling and renal teams through the co-ordination of patients with genetic renal disease, the provision of nurse-led renal specialist information and follow-up to patients
relatives, ensuring that highly complex and sometimes conflicting information is conveyed in such a way that:
• Patient and relative understanding of the information is accurate
• Patient and relative right to confidentiality is maintained at all times
• Supporting information is available to the patient and their relatives
1.8 To act as a support to patients, liaising where appropriate with the specialist genetic counselling team, in situations where risks
associated with commencement or continuation of pregnancy requires information and clarification.
1.9 To provide support, through education and information, to patients who present with newly diagnosed renal dysfunction associated with a genetic renal disease. This includes:
• Providing advice on factors to reduce risks to health • Providing advice on likely renal diagnostic and genetic
diagnostic interventions
1.10 To lead the development of Patient Group Directives and Clinical Management Pathways within specialist renal genetic disorder care. 1.11 On an ongoing basis, provide a regular (weekly, although frequency
may change) nurse-led clinic, in accordance with defined protocols for care, to include:
• Physical assessment
• Review of Renal Function including Se Creatinine, Cr Clearance/GFR, Hgb, etc
• Assessment of compliance with medications • Review of health promoting behaviours • Dietary compliance
1.13 To accurately record all patient information either in written or computerised form, in line with Trust standards for documentation, and safekeeping of patient information
1.14 To attend and actively participate in multi-professional team meetings.
2. RESEARCH AND DEVELOPMENT
2.1 Access and interpret literature reviews and incorporate these into clinical practice
2.2 In liaison with the Project and Management Leads, undertake small projects/studies for publication and/or submission to
and project team lead, to design and assist in the development of a database for genetic disorders
2.4 To undertake audit of own practice including nurse led service protocols
2.5 In liaison with the project team, renal and clinical genetic leads, develop and action a strategy to raise the profile of genetic renal disease. This will involve working with, and across, primary care, secondary care and tertiary level services.
3. EDUCATION AND TRAINING
3.1 To undertake learning needs assessment for and provide training programmes for medical students, junior doctors, primary care clinicians and nurses caring for patients with renal genetic disorder 3.2 Foster links with educational institutions and be involved in the
education and training of students and qualified staff in all disciplines at diploma, graduate and post graduate level
3.3 Provide health promotion advice for patients, relatives and carers 3.4 To facilitate others to deliver appropriate strategies of patient
education and monitor and evaluate the effectiveness of these approaches.
3.5 To develop Patient Information resources and contribute to initiatives to disseminate such information widely
4.0 MANAGEMENT
4.1 Ensure collaborative working relationships and effective
communications between all members of the multidisciplinary team by attending ward rounds and MDT meetings.
4.2 Ensure Trust policies and guidelines are complied with and adhered to.
4.3 Activelycontribute to the clinical governance agenda within the Trust. This includes undertaking the annual risk assessment within the clinical area, implementing action plans and dealing with complaints as delegated and reporting and monitoring any untoward incidents, within agreed time frames Initiate investigations and develop action plans for untoward incidents in conjunction with the Associate Director of Nursing.
4.4 Responsible for changing clinical practice in response to deficits in nursing care as identified in patient complaints, clinical incidents, the
Registry, Quality Assurance, and local service review and
development initiatives, ensuring that these are presented in a timely manner. This includes review of data and development of action plans, in liaison with the Clinical Service Lead and Senior Nurse, where deficits are identified. (for their specialist aspect)
5. PROFESSIONAL
5.1 The post holder is expected to be fully conversant with the NMC Code of Professional Conduct and associated national guidelines and abide by their guidance.
5.2 Take responsibility for personal and professional updating and development, including mandatory training and IT skills...
5.3 To establish and maintain links with organisations providing support and information for patients with genetic disorders
5.4 Network with local and national organisations pertaining to genetic disorders.
5.5 Maintain professional contemporaneous records at all times. 5.6 Participate in personal development review and ensure set
dimensions and objectives are achieved within agreed timeframes. 5.7 Maintain a high standard of personal behaviour and ensure effective
communication with all members of the multidisciplinary team, patients carers and relatives.
JOB OUTLINE - SESSIONS
Role: work area (proportions within each area
may change with duration of project) Expected number of
sessions per week Clinical (attend existing clinics/run own clinics) 4.0 Genetics (education/clinician contact) 2.0 Family history workup and related work 2.0 Database/pathway/primary care
development/evaluation
2.0
Total sessions per week
BIRMINGHAM WOMEN’S HEALTH CARE NHS TRUST
PERSON SPECIFICATION
JOB REFERENCE NO: LOCATION: UHB/BWH
DEPARTMENT: Renal/Clinical Genetics GRADE: Nursing H (subject to AFC) Criteria/ Categories Essential Method Of Assessment Qualifications Academic and/or professional/ vocational RGN Level 1
Relevant specialty course, or equivalent Teaching/assessor course, or equivalent
A, I A, I A, I Previous experience Special knowledge
Minimum 7 years post registration
Minimum 3 years at senior level within the specialty
Evidence of continuing post basic study/ development
Ability to demonstrate up to date experience and depth of knowledge and clinical
competence
Ability to demonstrate extended clinical practice skills such as phlebotomy and venepuncture
Knowledge of the NHS modernisation agenda and relevant Department of Health strategies A, I A, I A, I A, I A, I A, I A, I
Skills/abilities Audit and research project experience Demonstrate skills, ability and experience in the following:
• Clinical leadership • Nurse-led initiatives
• Interpersonal and influencing skills • Ability to think strategically
• Ability to present ideas effectively • Ability to work within teams •
A, I A, I
Criteria/ Categories
Essential Method Of
Assessment Special aptitudes Ability to act on own initiative, with sound
decision making abilities
Demonstrate significant contribution to innovative practice or change management
A, I A, I Personal Qualities Communication skills
Ability to relate to, and motivate others Proven personal organisational skills Positive and enthusiastic attitude Approachable and supportive Ability to deal with sensitive and/or contentious situations
Politically astute Flexible
Ability to communicate articulately (written, verbal and non-verbal)
A, I
Practical requirements of post
The post will be based in the Renal Service at the Queen Elizabeth Hospital but the post holder will be required to liase with colleagues at the Clinical Genetics Unit, Birmingham Women’s Hospital, for two sessions per week.
Requirement to attend meetings and visit participating units in Birmingham/West Midlands region.
Car owner and full driving license.
A, I
JOB DESCRIPTION
Job title: Nurse Specialist – Cardiac Genetic Disorders
Grade: H grade
0.7 WTE
Fixed-term for 18 months
Location: Cardiology Service, University Hospital Birmingham and
Clinical Genetics Service, Birmingham Women’s Hospital
Reports to: Lead Clinician for Speciality
Genetic Service Development Lead
Key Working Relationships: Project Lead and Project Manager for Genetics Service Development, Genetics Services at The Birmingham Women’s Healthcare Trust, NHS Genetics Education and Development Centre, PCTs and GP
representatives, Consultant Cardiologists and other members of the Cardiac Multidisciplinary Team, Senior Nurse (Cardiology), Service Users
Job Purpose: The post holder will be a senior member of the cardiac
and genetic counselling multidisciplinary teams and will lead the development and delivery of a nurse-led service for the management of patients with a family history of genetic cardiac disease. The post holder will develop networked links with primary care, general practitioner and clinical genetic services. The post holder will contribute toward the development of a data collection system to support the identification and management of genetic cardiac disorders. The post holder will provide a service which enables patients and their families to access genetic counselling and psychological support.
KEY RESPONSIBILITIES 2 Clinical
1.1 To develop protocols for nurse-led services for patients and their families accessing specialist genetic clinics, newly diagnosed and existing patients with cardiac genetic disorders
1.2 To develop, and review as appropriate, the patient referral and management pathways in liaison with the project team and the cardiology clinical leads.
1.3 To develop a process for the triage of new referrals for cardiac genetic assessment, in liaison with the clinical genetics service. This will include referrals received from:
• General Practitioners, Practice Nurses and Community Practitioners
• Hospital clinicians
• Outside NHS and private care providers
1.4 To undertake nurse led clinics upon receipt of a referral to undertake genetic and nursing assessment of patient’s and their families with specific reference to:
• Detailing the patient’s family history and detailed pedigree. Ensure that patients’ and their relatives’ right to privacy and confidentiality, is maintained.
• Eliciting patient’s concerns and expectations, and understanding of reason for referral, clarifying information with the patient as appropriate
• Confirm diagnostic information
• Interpret medical, family and psychological history
These functions will include the exercise of diplomacy and tact and ensuing that the patients and their relatives’ rights to privacy and confidentiality are maintained.
1.5 To undertake nurse-led referral to the relevant clinical genetic services, on the basis of the patient’s family history/pedigree, for those
individuals identified as “at risk”. This includes, where appropriate, discussion and information giving to the patient and/or their relatives prior to the referral.
1.6 To support the specialist genetic counselling and cardiology teams through the co-ordination of patients with genetic cardiac disease, the provision of nurse-led cardiac specialist information and follow-up to patients newly diagnosed with a cardiac genetic disorder
relatives, ensuring that highly complex and sometimes conflicting information is conveyed in such a way that:
• Patient and relative understanding of the information is accurate • Patient and relative right to confidentiality is maintained at all
times
• Supporting information is available to the patient and their relatives
1.8 To act as a support to patients, liaising where appropriate with the specialist genetic counselling team, in situations where risks
associated with commencement or continuation of pregnancy requires information and clarification.
1.9 To provide support, through education and information, to patients who present with newly diagnosed cardiac dysfunction associated with a genetic cardiac disease. This includes:
• Providing advice on factors to reduce risks to health • Providing advice on likely cardiac diagnostic and genetic
diagnostic interventions
1.10 To lead the development of Patient Group Directives and Clinical Management Pathways within specialist cardiac genetic disorder care. 1.12 On an ongoing basis provide a regular (weekly, although frequency
may change) nurse-led clinic, in accordance with defined protocols for care, to include:
• Physical assessment
• Review of Cardiac Function including ECG • Assessment of compliance with medications • Review of lifestyle issues
• Dietary compliance
1.13 To accurately record all patient information either in written or
computerised form, in line with Trust standards for documentation, and safekeeping of patient information
1.14 To attend and actively participate in multi-professional team meetings.
2. RESEARCH AND DEVELOPMENT
2.1 Access and interpret literature reviews and incorporate these into clinical practice
2.2 In liaison with the Project and Management Leads, undertake small projects/studies for publication and/or submission to
national/international conferences
2.3 In liaison with the Speciality (cardiology) Consultant, clinical genetics leads and project team lead, to design and assist in the development of
protocols
2.5 In liaison with the project team, cardiology and clinical genetic leads, develop and action a strategy to raise the profile of genetic cardiac disease. This will involve working with, and across, primary care, secondary care and tertiary level services.
3. EDUCATION AND TRAINING
3.1 To undertake learning needs assessment for and provide training programmes for medical students, junior doctors, primary care
clinicians and nurses caring for patients with cardiac genetic disorder 3.2 Foster links with educational institutions and be involved in the
education and training of students and qualified staff in all disciplines at diploma, graduate and post graduate level
3.3 Provide health promotion advice for patients, relatives and carers 3.4 To facilitate others to deliver appropriate strategies of patient education
and monitor and evaluate the effectiveness of these approaches. 3.5 To develop Patient Information resources and contribute to initiatives
to disseminate such information widely 4.0 Management
4.1 Ensure collaborative working relationships and effective
communications between all members of the multidisciplinary team by attending ward rounds and MDT meetings.
4.2 Ensure Trust policies and guidelines are complied with and adhered to.
4.3 Activelycontribute to the clinical governance agenda within the Trust. This includes undertaking the annual risk assessment within the clinical area, implementing action plans and dealing with complaints as
delegated and reporting and monitoring any untoward incidents, within agreed time frames Initiate investigations and develop action plans for untoward incidents in conjunction with the Associate Director of
Nursing.
4.4 Responsible for changing clinical practice in response to deficits in nursing care as identified in patient complaints, clinical incidents, the environment, research, and untoward events.
4.5 Lead and supervise the collection of statistical data required for Cardiac Registry, Quality Assurance, and local service review and development initiatives, ensuring that these are presented in a timely manner. This includes review of data and development of action plans, in liaison with the Clinical Service Lead and Senior Nurse, where deficits are identified. (for their specialist aspect)
5. Professional
5.1 The post holder is expected to be fully conversant with the NMC Code of Professional Conduct and associated national guidelines and abide by their guidance.
5.2 Take responsibility for personal and professional updating and development, including mandatory training and IT skills.
5.3 To establish and maintain links with organisations providing support and information for patients with genetic disorders
5.4 Network with local and national organisations pertaining to genetic disorders.
5.5 Maintain professional contemporaneous records at all times.
5.6 Participate in personal development review and ensure set dimensions and objectives are achieved within agreed timeframes.
5.7 Maintain a high standard of personal behaviour and ensure effective communication with all members of the multidisciplinary team, patients carers and relatives.
JOB OUTLINE - SESSIONS
Role: work area (proportions within each area
may change with duration of project) Expected number of
sessions per week Clinical (attend existing clinics/run own clinics) 2.0 Genetics (education/clinician contact) 2.0 Family history workup and related work 1.0 Database/pathway/primary care
development/evaluation
2.0
Total sessions per week
BIRMINGHAM WOMEN’S HEALTH CARE NHS TRUST
PERSON SPECIFICATION
JOB REFERENCE NO: LOCATION: UHB/BWH
DEPARTMENT: Cardiology/Clinical Genetics GRADE: Nursing H (subject to AFC) Criteria/ Categories Essential Method Of Assessment Qualifications Academic and/or professional/ vocational RGN Level 1
Relevant specialty course, or equivalent Teaching/assessor course, or equivalent
A, I A, I A, I Previous experience Special knowledge
Minimum 7 years post registration
Minimum 3 years at senior level within the specialty
Evidence of continuing post basic study/ development
Ability to demonstrate up to date experience and depth of knowledge and clinical
competence
Ability to demonstrate extended clinical practice skills such as phlebotomy and venepuncture
Knowledge of the NHS modernisation agenda and relevant Department of Health strategies A, I A, I A, I A, I A, I A, I A, I
Skills/abilities Audit and research project experience Demonstrate skills, ability and experience in the following:
• Clinical leadership • Nurse-led initiatives
• Interpersonal and influencing skills • Ability to think strategically
• Ability to present ideas effectively • Ability to work within teams • Ability to manage resources • Change management/clinical
development skills
A, I A, I
Criteria/ Categories
Essential Method Of
Assessment Special aptitudes Ability to act on own initiative, with sound
decision making abilities
Demonstrate significant contribution to innovative practice or change management
A, I A, I Personal Qualities Communication skills
Ability to relate to, and motivate, others Proven personal organisational skills Positive and enthusiastic attitude Approachable and supportive Ability to deal with sensitive and/or contentious situations
Politically astute Flexible
Ability to communicate articulately (written, verbal and non-verbal)
A, I
Practical requirements of post
The post will be based in the Cardiac
Service at the Queen Elizabeth Hospital but the post holder will be required to liaise with colleagues at the Clinical Genetics Unit, Birmingham Women’s Hospital, for two sessions per week.
Requirement to attend meetings and visit participating units in Birmingham/West Midlands region.
Car owner and full driving license.
A, I
JOB DESCRIPTION
Job title: Highly Specialist Nurse in Genetic Education/Highly
Specialist Genetic Counsellor (Development of Genetic Services in Mainstream Medicine)
Grade: Nursing H
Location: Clinical Genetics Unit
Birmingham Women’s Hospital
Reports to: Service Development Lead
Key Working Relationships: Service Development Lead, Project Manager,
Consultant Geneticists, Consultants and senior nursing staff in Endocrinology, Cardiology and Renal Medicine, Outreach and Research Co-ordinator, other members of the project evaluation team, NHS Genetics Education and Development Centre staff, West Midlands Centre for Education in Medical Genetics staff, PCT/GP
representatives, Patient and Public Development Liaison Officer, and the Multidisciplinary Clinic Administrator.
Job purpose: The West Midlands Regional Clinical Genetics Service
has been awarded funding, for two years in the first instance, by the Department of Health to develop and evaluate multidisciplinary clinics in cardiac, endocrine and renal medicine. The Genetic Counsellor/Nurse Specialist in Genetic Education will be a senior member of the multidisciplinary team and will lead the planning, delivery and evaluation of the educational programme for practice and specialist nurses involved in the project. The postholder will also act as a significant educational resource to the nursing groups involved in the project.
JOB PURPOSE
To devise, develop and deliver educational packages in genetics for the clinical nurse specialists and practice nurses involved in the service development project.
To act as a significant educational resource to nurse specialists and practice nurses involved in the project.
To identify, undertake and evaluate research initiatives in the genetic education requirements of practice nurses and clinical nurse specialists in mainstream medicine areas.
Educational Activities, Research and Development
1 In collaboration with University colleagues, undertake educational needs assessments for practice and specialist nurses involving:
Designing and distributing questionnaires Designing and undertaking interviews Collating information obtained
Interpreting and reporting results Writing for publication
2 Assess the training needs and work towards providing those of the relevant nursing groups.
3 Devise appropriate educational initiatives to meet identified educational needs 4 Develop and produce educational material relevant to the nursing groups. 5 Organise, run and speak at education sessions held locally, regionally and
nationally.
6 Network with others undertaking genetics nursing research nationally and regionally
7 Liaise with other bodies with a particular interest in genetics education, such as the West Midlands Centre for Education in Medical Genetics and the National Genetics Education and Development Centre.
8 Initiate and carry out research relevant to genetic education in the nursing groups, in collaboration with University colleagues.
9 Present findings of research, audit and clinical practice to large groups of staff or members of the public, within the Trust, regionally, nationally, or internationally 10 Act as an educational resource for the nurses, and other personnel, associated
with the project. 11
Access, interpret and appraise literature relating to genetic education, clinical practice, policy and service development.
Communication with Colleagues
12 Develop and maintain collaborate links with clinical and research colleagues within the project team, West Midlands Centre for Education in Medical Genetics, National Genetics Education and Development Centre, primary care practices, University collaborating departments, and other units in the region/UK.
Planning & Organisation
15 Plan the development and implementation of the project educational initiatives in relation to the project timescales.
16 Maintain a record of educational initiatives related to the project.
17 Contribute to regular progress reports for the Department of Health and other bodies, in collaboration with the Project Manager and other colleagues.
Policy and Service Development
18 Propose working practices, and possible changes to working practices, within the mainstream genetic clinic e.g. care pathways.
19 Design protocols and polices with guidance from clinical colleagues and relevant national/Department of Health Policies, and with reference to the relevant
published literature and feedback from patient/public related to the service development project.
20 Design standard letters, patient questionnaires and information leaflets to support the mainstream services, in collaboration with colleagues.
21 Design guidelines for Clinical Nurse Specialists and/or genetic counsellors within the region, with guidance from colleagues.
Information Resources
22 Use word processing packages to accurately send standard and non-standard letters and other communications as appropriate.
23 Occasional requirement to take minutes of meetings. 24 Accurately record data on information systems.
Staff Supervision & Training
25 Write job descriptions for specialist nurses in the mainstream clinical areas, in collaboration with colleagues.
26 Contribute to the selection and appointment of the specialist nurses in the mainstream clinical areas.
27 Organise training and induction packages for new staff members.
Self Development
28 Take personal responsibility for continuing professional self-development and keep up-to-date with changes in the practice of genetic counselling.
Review of Job Content
29 This job description is intended as an outline of general areas of activity and will be amended in the light of the changing needs of the organisation and in
Legal aspects
30 Maintain confidentiality of information about patients, staff and other health service business in accordance with the Data Protection Act of 1998
31 Carry out all responsibilities with regard to the Trust’s Equal Opportunities Policy 32 Be aware of the responsibilities resulting from The Health and Safety at Work Act
1974. Ensure that the agreed safety procedures are carried out to maintain a safe working environment for patients, visitors and employees
33 All Employees at Birmingham Women’s Hospital Trust must not, without prior permission, disclose any information regarding patients or staff. In circumstances where it is know that a member of staff has communicated to an unauthorised person, he/she is liable to be dismissed. Moreover, the Data Protection Act 1998 also renders an individual liable to prosecution in the event of an unauthorised disclose of information
34 This post is exempt from the Rehabilitation of Offenders Act 1974 i.e. any criminal conviction must be made known at the time of application for the post
BIRMINGHAM WOMEN’S HEALTH CARE NHS TRUST
PERSON SPECIFICATION
JOB REFERENCE NO: LOCATION: Birmingham Women’s Hospital
DEPARTMENT: Clinical Genetics Unit GRADE: Nursing H
Criteria/ Categories Essential Method of Assessment Qualifications Academic and/or professional/vocational
(a) MSc in Genetic Counselling (following BA/BSc in relevant subject). At least 4 years professional clinical experience.
or
(b) Professional qualification (e.g. RGN, social work) and relevant first degree or MSc in related field. At least 7 years professional clinical experience in a health or social care setting.
Recognised qualification in education.
A, I
A, I
Previous experience
Special knowledge
Designing and delivering education initiatives to nurses in a clinical or academic setting.
Experience of working in a multidisciplinary setting. Developing, carrying out and reporting research. Knowledge of genetics obtained through graduate/postgraduate level courses.
Awareness of current policy relating to clinical genetics services, plus healthcare professional education.
A, I A, I A, I A, I A, I Skills/abilities Special aptitudes
Ability to teach in groups and on a one-to-one basis to nurse groups/peers.
Presentation skills.
Ability to work on own initiative and as part of a team.
A, I
A, I A, I Personal qualities
Communication skills
Flexible and well-motivated . Pleasant and professional.
Excellent verbal and written communication skills.
I I I Practical requirements
of post
Requirement to attend meetings and visit participating units in Birmingham/West Midlands region.
Car owner and full driving license.
A, I
Prepared by: Vicky Sleightholme Designation: Project Manager Date: November 29, 2005
JOB DESCRIPTION
Job title: Multidisciplinary Clinic Administrator
Grade: A & C Grade 4
Location: Clinical Genetics Unit
Birmingham Women’s Hospital
Reports to: Project Manager
Unit Administration Manager
Key Working Relationships: Project Manager, Unit Administration Manager (Clinical Genetics), Administration Managers (University Hospital Birmingham), Medical Secretaries, Service Development Lead, Consultant Geneticists, Consultants and senior nursing staff in Cardiology, Endocrinology and Renal Medicine, Genetic Counsellors, other project team members.
Job purpose: The West Midlands Regional Clinical Genetics Service
has been awarded a grant to develop multidisciplinary clinics in cardiac, endocrine and renal medicine. The post holder will be responsible for providing high quality administrative support for the multidisciplinary clinics, and clerical and administrative support for the project.
DUTIES AND RESPONSIBILITIES
1. To use departmental computer systems to organise and book multidisciplinary clinic appointments, in accordance with local protocols/procedures.
2. To liaise with clinicians, other teams/departments and units regarding all aspects of the multidisciplinary clinics administration.
3. To deal sensitively and courteously with patients, their relatives and clinical staff and ensure that urgent matters are drawn to the attention of relevant staff quickly and accurately.
4. To act as clinic receptionist during relevant clinic sessions. 5. To maintain patient confidentiality at all times.
6. To register patient demographic and clinic information on the departmental computer systems in accordance with local procedures/protocols, ensuring the completeness and accuracy of data entered, and resolving discrepancies where appropriate.
7. To type and format standard letters, forms and questionnaires, ensuring that electronic and paper supplies are kept up to date and available to staff.
8. To send standard letters, forms and questionnaires to patients, their relatives and health professionals as required and in accordance with local protocols/procedures. 9. To ensure that patient records are kept up to date and in good order.
10. To enter data into databases relating to audit and evaluation projects concerning the multidisciplinary services.
11. To sort, distribute and open mail, dealing with any urgent enquiries as appropriate. 12. To liaise with staff to arrange meetings, keep a record of meetings held, prepare
agenda items and take minutes if required.
13. To attend relevant team and other meetings relating to the multidisciplinary clinics and service development project.
14. To undertake other general administrative duties: photocopying, filing, collecting and delivering patient records from medical records storage.
BIRMINGHAM WOMEN’S HEALTH CARE NHS TRUST
PERSON SPECIFICATION
JOB REFERENCE NO: LOCATION: Birmingham Women’s Hospital
DEPARTMENT: Clinical Genetics Unit GRADE: A & C Grade 4
Criteria/ Categories Essential Method of Assessment Qualifications Academic and/or professional/vocational
Educated to O level/GCSE standard or equivalent, including English Language (grade C or above).
RSA level 3, or equivalent ECDL, or equivalent A, I A, I A, I Previous experience Special knowledge
Minimum 2 years experience in an office administrative environment.
Minimum 2 years experience in a healthcare environment. Experience of dealing with the public.
Experience and knowledge of data abstraction, entry and retrieval, and checking data for accuracy and validity Understanding of confidentiality issues.
General Information Management and Technology (IM&T) skills including familiarity with Microsoft Office programmes, or equivalents, and use of Email and Internet
A, I A, I A, I A, I A, I A, I Skills/abilities Special aptitudes
Accurate keyboard/word processing skills. Good organisational skills.
Ability to work on own initiative and prioritise own workload. Ability to develop good team-working relationships. Flexibility and willingness to co-operate.
A, I A, I A, I A, I A, I Personal qualities Communication skills Well-motivated. Reliable.
Pleasant and professional. Diplomatic and discrete.
Good verbal and written communication skills.
I I I I A, I Practical requirements of post
The post will be based in the clinical genetics unit but the post holder will be required to liaise with colleagues and attend meetings at University Hospital Birmingham.
A, I
