Texas Disability Resources

(1)

Texas Disability Resources

Affordable Care Act (ACA) http://www.hhs.gov/healthcare/facts/bystate/tx.html

HHS.gov: How the Health Care Law is Making a Difference for the People of Texas

To get coverage under the ACA, go to https://www.healthcare.gov/ to find out more about the Health Insurance Marketplace and the options available in your state. https://www.healthcare.gov/what-is-the-marketplace-in-my-state/#state=texas

Arts and Creativity http://www.vsatx.org VSA Texas 3710 Cedar Street Box 7, Room # 128 Austin, TX 78705 Phone: 512-454-9912 E-mail: [email protected] Assistive Technology http://www.southwestada.org/

Southwest ADA Center 2323 S. Shepherd #1000 Houston, TX 77019 Toll Free: 800-949-4232 Phone: 713-520-0232 v/tty http://techaccess.edb.utexas.edu Texas Technology Access Program Texas Center for Disability Studies The University of Texas at Austin, L4000 Commons Learning Center, Suite 1.154 10100 Burnet Road

(2)

Austin, TX 78758-4445

Phone: 512-232-0740, 800-828-7839 (Toll-free) TTY: 512-232-0762, 800-735-2989 (Toll-free) E-mail: [email protected] http://www.texasat.net/

Texas Assistive Technology Network (TATN)

Kirk D. Behnke, MEd., ATP, Senior Education Specialist Special Education Services

Region 4 Education Service Center 7145 West Tidwell

Houston, TX 77092-2096 Phone: 713-744-6559 E-mail: [email protected]

TATN consists of representatives from each of the Texas Education Services Centers, and the Texas Education Agency. The organization provides professional development and technical assistance.Works to ensure that students with disabilities receive AT devices and services when needed to benefit from a free, appropriate public education.

Caregivers

http://www.caregiver.com/regionalresources/states/TX/index.htm Caregiver.com: Texas Resources

This page has links to support groups, non-profit resources, financial aid, and rural caregiver resources in Texas.

http://www.wellspouse.org/ Well Spouse Association Houston WS Support Group Contact: Debbie Poynter Phone: 713-992-5090

E-mail: [email protected]

Community-Based Fitness Programs http://www.projectwalkaustin.org/

Project Walk-Austin

1905-B Kramer Lane, Suite 850 Austin, TX 78758

Phone: 512-966-7110

Email: [email protected]

Project Walk-Austin is a physical training program for people with spinal cord injuries using Active Nervous System Recruitment (ANSR).

(3)

http://pressingontx.com/ Pressing On 12001 Network Boulevard #314 San Antonio, TX 78249 Phone: 210-877-2228 E-mail: [email protected]

Pressing On provides a specialized exercise-based training program for those living with paralysis due to spinal cord injury, traumatic brain injury and other physical disabilities.

Crime Victim Assistance http://www.oag.state.tx.us/victims/about_comp.shtml

Attorney General of Texas: Crime Victims' Compensation P.O. Box 12198

Austin, Texas 78711-2198

Phone: 512-936-1200, 800-983-9933 (Toll-free) E-mail: [email protected] http://ovc.ncjrs.org/findvictimservices/Search.asp

Office for Victims of Crime: Directory of Crime Victim Services Choose your state and the type of assistance you are looking for. Disabled Crime Victims Assistance, Inc.

2501 Parkview, Suite 111 Fort Worth, TX 76102 Phone: 817-338-0220 E-mail: [email protected]

A non-profit organization that assists crime victims that become disabled as a result of that crime, as well as those that are already disabled and become a crime victim.

Domestic Violence Help http://www.thehotline.org/

National Domestic Violence Hotline

Phone: 800-799-7233 (Toll-free), 800-787-3224 (TTY) http://www.safeplace.org/

Safe Place P.O. Box 19454 Austin, TX 78760

Phone: 512-267-7233 (24 hour hotline) TTY: 512-927-9616 (24 hour hotline)

(4)

A.A.R.D.V.A.R.C.: Texas Domestic Violence Resources http://www.tcfv.org/

Texas Council on Family Violence P.O. Box 161810

Austin, TX 78716 Phone: 512-794-1133

Easter Seals Offices http://www.centraltx.easterseals.com/

Easter Seals Central Texas 1611 Headway Circle – Building 2 Austin, TX 78754

Phone: 512-478-2581

http://www.centraltx.easterseals.com/ Easter Seals Central Texas

Workforce Development 315 East St. Elmo Road Austin, TX 78745 Phone: 512-440-7819 http://east-texas.easterseals.com

Easter Seals East Texas

Brazos Valley Rehabilitation Center 1318 Memorial Drive

Bryan, TX 77802 Phone: 979-776-2872

http://east-texas.easterseals.com Easter Seals East Texas

Temple Memorial Rehabilitation Center 1315 Walnut Street

Texarkana, TX 75501 Phone: 903-794-2705 TDD: 903-793-0086 http://rgv.easterseals.com

Easter Seals Rio Grande Valley, TX P.O. Box 489

McAllen, TX 78505-0489 Phone: 956-631-9171 Toll-free: 800-728-5491

http://rgv.easterseals.com

Easter Seals Rio Grande Valley, TX Child Development Center

1217 Houston Street McAllen, TX 78501 Phone: 956-423-9171 http://ntx.easterseals.com/

Easter Seals North Texas 1424 Hemphill Street Fort Worth, TX 76104 Phone: 817-332-7171 Toll-free: 888-617-7171

http://ntx.easterseals.com/ Easter Seals North Texas Trinity Center

4443 North Josey Lane, Suite 100 Carrollton, TX 75010

Phone: 972-394-8900 Toll-free: 888-617-7171 http://ntx.easterseals.com/

Easter Seals North Texas Oak Cliff Center

4201 Brook Spring Drive, Building B Dallas, TX 75224

http://www.eastersealshouston.org/ Easter Seals Greater Houston 4500 Bissonnet, Suite 340 Bellaire, TX 77401

(5)

Phone: 214-372-3300 E-mail: [email protected]

http://www.christopherreeve.org/c.ddJFKRNoFiG/b.4518671/k.6ABA/Find_Your_Electe d_Official/siteapps/advocacy/search.aspx

Find your elected officials to contact them on legislation that is important to you.

Government Agencies and Programs http://www.state.tx.us

TexasOnline: Official Website of the State of Texas http://www.dars.state.tx.us

Texas Department of Assistive and Rehabilitative Services 4800 North Lamar Boulevard

Austin, TX 78756

Phone: 800-628-5115 (Toll-free) TTY: 866-581-9328

E-mail: [email protected] http://www.texaschildrenshealthplan.org/ Texas Children’s Health Plan

Texas offers two health insurance programs for children: Children’s Health Insurance Program (CHIP) and Children’s Medicaid.

CHIP Call Center: 877-543-7669 (Toll-free), 800-647-6558 (Toll-free) http://www.tdi.texas.gov/consumer/hicap/hicaphme.html

Texas Health Information Counseling and Advocacy Program (HICAP) Texas Department of Insurance

P.O. Box 149104 Austin, TX 78714-9104 Phone: 512-463-6169

Consumer Helpline: 800-252-3439 (Toll-free) http://www.hhsc.state.tx.us

Texas Health and Human Services Commission Office of the Ombudsman, MC H-700

P.O. Box 13247

Austin, TX 78711-3247

Phone: 877-787-8999 (Toll-free) TDD: 888-425-6889 (Toll-free)

Medicaid Client Hotline: 800-252-8263 (Toll-free)

(6)

http://www.dads.state.tx.us/providers/HCS/index.cfm

Texas Department of Aging and Disability Services: Home and Community-based Services http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Waivers.html Medicaid.gov: Waivers http://www.medicare.gov Medicare

Medicare is a federal program; this site is included for convenience. http://www.txhealthpool.org/

Texas Health Insurance Pool P.O. Box 6089

Abilene, TX 79608-6089

Phone: 888-398-3927 (Toll-free) TDD: 800-735-2989

The Texas Health Insurance Pool was created by the Texas Legislature to provide health insurance to eligible Texas residents who, due to medical conditions, are unable to obtain coverage from individual commercial insurers.

http://www.tdi.texas.gov/

Texas Department of Insurance P.O. Box 149104

Austin, TX 78714-9104 Phone: 512-463-6169

Consumer Helpline: 800-252-3439 (Toll-free) http://www.tdi.texas.gov/wc/indexwc.html

Texas Department of Insurance: Division of Workers’ Compensation Phone: 512-804-4000, 800-372-7713 (Toll-free)

Injured Employee Hotline: 800-252-7031

E-mail: [email protected] http://www.governor.state.tx.us/disabilities/

Governor’s Committee on People with Disabilities http://www.houstontx.gov/disabilities

City of Houston: Mayor’s Office for People with Disabilities 1475 West Gray, Box #10

Houston, TX 77019 Phone: 713-284-1990

E-Mail: [email protected]

(7)

Texas Long-Term Care Ombudsman Program Texas Department of Aging and Disability Services P. O. Box 149030

MC-W250

Austin, TX 78714-9030

Phone: 800-252-2412 (Toll-free)

Across Texas, through all 28 Area Agencies on Aging, certified ombudsmen serve residents, their families and friends. Ombudsmen advocate for quality of life and care for people living in nursing homes and assisted living facilities. Federal and state authority mandates ombudsmen to identify, investigate and resolve complaints made by, or on behalf of, residents and to provide services to help in protecting health, safety, welfare and rights. Information and assistance in choosing the most appropriate living residence is also a valuable service.

Housing

http://www.ilru.org/html/publications/directory/texas.html

Independent Living Research Utilization: Directory of Centers & SILCs in Texas http://portal.hud.gov/hudportal/HUD?src=/states/texas

Housing and Urban Development (HUD) in Texas Dallas

525 Griffin Street, Room 860 Dallas, TX 75202-5032 Phone: 214-767-8300

Fort Worth

801 Cherry Street, Unit #45 Suite 2500 Fort Worth, TX 76102 Phone: 817-978-5965 Houston 1301 Fannin Suite 2200 Houston, TX 77002 Phone: 713-718-3199 Lubbock 1205 Texas Avenue Room 511 Lubbock, TX 79401-4093 Phone: 806-472-7265 San Antonio

One Alamo Center

106 South St. Mary’s Street, Suite 405 San Antonio, TX 78205-3625

Phone: 210-475-6806

Library Services http://www.tsl.state.tx.us/tbp

(8)

Texas State Library and Archives Commission P.O. Box 12927

Austin, TX 78711-2927

Phone: 512-463-5458, 800-252-9605 (Toll-free) E-mail: [email protected]

The Talking Book Program provides free library service to Texans of all ages who are unable to read standard print material due to visual, physical, or reading disabilities – whether permanent or temporary. The Talking Book Program's collection is provided in alternative media formats: cassette, braille, and large print.

NeuroRecovery Network (NRN)

The Institute for Rehabilitation and Research (TIRR) Houston, TX

The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. For more info on qualifying for the program, please go to www.ChristopherReeve.org/NRN

Protection and Advocacy http://www.disabilityrightstx.org/

Disability Rights Texas (formerly Advocacy, Inc.)

Statewide intake for new callers: 800-252-9108 (Toll-free) Main Office

7800 Shoal Creek Boulevard Suite 171-E

Austin, TX 78757-1024 Phone: 512-454-4816

Central Texas Regional Office 7800 Shoal Creek Boulevard Suite 142-S

Austin, TX 78757-1024 Phone: 512-454-4816 East Texas Regional Office

1500 McGowen, Suite 100 Houston, TX 77004

Phone: 713-974-7691

El Paso Regional Office 300 East Main, Suite 205 El Paso, TX 79901 Phone: 915-542-0585 North Texas Regional Office

1420 West Mockingbird Lane Suite 450

Dallas, TX 75247-4932 Phone: 214-630-0916

South Texas Regional Office 6800 Park Ten Boulevard Suite 208-N

San Antonio, TX 78213 Phone: 210-737-0499 West Texas Regional Office

(9)

4747 South Loop 289, Suite 120 Lubbock, TX 79424

Phone: 806-765-7794 http://www.tlsc.org/

Texas Legal Services Center 815 Brazos, Suite 1100 Austin, TX 78701 Phone: 512-477-6000

TLSC is a non-profit legal office which provides assistance and training to poverty law advocates and their clients in the areas of litigation support, education and

communication. TLSC sponsors projects that assist individuals in Texas and, in some cases, nationwide. There is an online intake form to determine if you are eligible for services.

http://www.tlsc.org/programs/facilityvictims.asp

Texas Legal Services Center: Facility Victim Program Phone: 800-622-2520 x127 (Toll-free)

The Facility Victim Program offers legal advice and assistance to facility residents and those who receive at-home nursing services on issues of abuse, neglect, exploitation, residents’ rights, and other matters

http://www.tlsc.org/programs/healthlaw.asp

Texas Legal Services Center: Health Law Project Phone: 866-979-4343 (Toll-free)

The Health Law Project provides free legal services to Texans with modest incomes that have questions regarding healthcare issues.

http://www.tlsc.org/programs/legalhotline.asp Texas Legal Services Center: Legal Hotline Phone: 800-622-2520 (Toll-free)

The Legal Hotline for Texans gives free legal advice, self-help publications, and referrals to Texans over the age of 60 and Texans who receive Medicare.

Service Dogs http://www.servicedogs.org/

Texas Hearing and Service Dogs 4803 Rutherglen

Austin, TX 78749 Phone: 512-891-9090

Toll-free: 877-TEX-DOGS (877-839-3647) Training Center: 512-858-1495

(10)

http://campforall.org/ Camp for All

Houston Office 10500 NW Freeway, Suite 220 Houston, TX 77092 Phone: 713-686-5666 E-mail: [email protected] Campsite 6301 Rehburg Road Burton, TX 77835 Phone: 979-289-3752 E-mail: [email protected] Camp for All hosts campers with cancer, muscular dystrophy, epilepsy, severe burns, sickle cell, cerebral palsy, cognitive challenges, cardiac issues, spinal cord injuries, PKU, neurofibromatosis, HIV, dermatological issues, autism and more. http://www.morganswonderland.com

Morgan’s Wonderland

Morgan's Wonderland is a 25-acre park located in San Antonio. It was designed

specifically for children and adults with special needs, their family members, caregivers, friends and the entire community.

http://www.dsusa.org/

Disabled Sports USA (DS/USA)

Click on “Chapters” to find a chapter near you. http://www.operationcomfort.org/ Operation Comfort 4900 Broadway, Suite 400 San Antonio, TX 78209 Phone: 210-826-0500 E-mail: [email protected]

Operation Comfort provides recreational opportunities to wounded soldiers who have served in Iraq and Afghanistan and are being treated at Brooke Army Medical Center and Audie Murphy VA Hospital in San Antonio.

http://www.taasports.org Texas Adaptive Aquatics 103 Page Lane

Huffman, TX 77336 Phone: 281-324-4653

Texas Adaptive Aquatics provides water skiing for disabled children and adults. http://www.turningpointnation.org

Turning Point Nation

Turning Point teaches people with mobility impairments the skills necessary to fully enjoy the outdoors and sponsors a wide variety of activities. The organization has East Texas, West Texas, and North Texas chapters.

(11)

Grand Prairie Parks & Recreation 2750 Graham Street

Grand Prairie, TX 75050 Phone: 972-237-7529

Contact: Mariana Espinoza, [email protected]

http://www.memorialhermann.org/locations/tirr/content.aspx?id=1250 TIRR Memorial Hermann Sports

Phone: 713-797-5997

TIRR Memorial Hermann Sports was developed to give athletes with all types of

disabilities an outlet to continue playing sports both competitively and through intramural programs under the following adaptive sports programs: basketball, golf, rugby, sled hockey, hand cycling, sitting volleyball, and swimming.

http://www.ci.pasadena.tx.us/default.aspx?name=prk.fac-v_cox City of Pasadena: Multipurpose Recreation Center

5200 Burke Road Pasadena, TX 77504 Phone: 281-487-1755

The Multipurpose Recreation Center is a facility specifically dedicated to recreational activities, programs, and events for youth and adults ages 5 to 55 years of age with any type of physical and/or cognitive disability. Programs include: wheelchair sports, Special Olympics, after-school, support groups, fitness, aquatics and summer day camps.

http://www.sanantonio.gov/parksandrec/sports.aspx

San Antonio Parks and Recreation: Adaptive Sports and Recreation Program Phone: 210-207-3018

The Adapted Sports & Recreation Program provides recreational programs and adapted sports activities for both youth and adults with physical and intellectual challenges. Sports include football, softball, golf, rugby, and cycling.

Therapeutic Riding Programs http://www.hannahshorseshoesofhope.org

Hannah’s Horseshoes of Hope P.O. Box 574

Bonham, TX 75418 Phone: 903-965-9300

A therapeutic horseback riding center for people with disabilities. http://www.SIRE-HTEC.org

SIRE, Houston’s Therapeutic Equestrian Centers 24161 Spring Drive

Hockley, TX 77447 Phone: 281-356-7588

(12)

United Way Offices http://www.unitedway.org/

United Way

Enter your postal code to find an office in your area. http://www.uwtexas.org

United Ways of Texas 701 Brazos Street, Suite 500 Austin, TX 78701

Phone: 512-478-6601 http://unitedwayhouston.org/ United Way of Greater Houston 50 Waugh Drive

Houston, TX 77007 Phone: 713-685-2300

Veterans Benefits http://www1.va.gov/directory/guide/home.asp?isFlash=1 U.S. Department of Veterans Affairs: VA Facility Locator

Enter your postal code or click on your state to find a facility in your area. http://www.tvc.state.tx.us/

Texas Veterans Commission

http://www.pva.org/

Paralyzed Veterans of America

To locate a chapter near you, scroll to the bottom of the page, click on Chapters and NSOs.

Chapter Offices http://mypva.org/ Lone Star Chapter 3925 Forest Lane Garland, TX 75042 Phone: 972-276-5252, Toll-free: 800-583-5252 http://www.texaspva.org/ Texas Chapter

2656 South Loop West, Suite 130 Houston, TX 77054

Phone: 713-520-8782 Toll-free: 800-933-4261

(13)

E-mail: [email protected] E-mail: [email protected] Satellite Offices South Texas 4531 Ayers, No. 228 Corpus Christi, TX 78415 Phone: 888-382-3830 (Toll-free) San Antonio 3830 River Falls San Antonio, TX 78259-3647 Phone: 210-494-4205

National Service Offices Houston VA Regional Office 6900 Almeda Road, Room 1028 Houston, TX 77030-4200

Phone: 713-383-2727, 713-383-2723 Toll-free: 800-795-3571

Houston VA Medical Center

Michael E. DeBakey VA Medical Center 2002 Holcombe Boulevard, Room 1-B-164 Houston, TX 77030

Phone: 713-794-7993 Waco TX

1 Veterans Plaza

701 Clay Avenue, Room 115 Waco, TX 76799

Phone: 254-299-9944, 254-299-9942 254-299-9941

Toll-free: 800-795-3573

Audie Murphy VAMC

7400 Merton Minter Boulevard Room C-014

San Antonio, TX 78229 Phone: 210-617-5300 x6819 Toll-free: 800-795-3572

Dallas Spinal Cord Injury Center 4500 S. Lancaster Road, Room 1-A-102 Dallas, TX 75216

Phone: 214-857-0105, 214-857-0106 Toll-free: 800-795-3570

ALS http://www.alsa.org

The ALS Association National Office 1275 K Street NW, Suite 1050

Washington, DC 20005 Phone: 202-407-8580

Care services (providing information and referrals): 800-782-4747 (Toll-free) E-mail: [email protected]

ALS Association Chapters Houston Office

(14)

P.O. Box 271561 Houston, TX 77277 Phone: 972-714-0088

Muscular Dystrophy Association’s ALS Research Centers: MDA/ALS Center at the University Of Texas

Jeffrey L. Elliott, M.D., Director Southwest Medical Center at Dallas 5323 Harry Hines Boulevard Dallas, TX 75235-8897 Phone: 214-648-2871

MDA/ALS Center at Methodist Hospital Neurological Institute Stanley H. Appel, M.D., Director

Ericka P. Simpson, M.D., Co-Director

The Methodist Hospital Neurological Institute 6560 Fannin, Suite 802

Houston, TX 77030 Phone: 713-441-3760 E-mail: [email protected]

MDA/ALS Center at the University of Texas Health Science Center at San Antonio Carlayne E. Jackson, M.D., F.A.A.N., MDA Clinic Director

Department of Neurology

University of Texas Medicine San Antonio/UTHSCSA Medical Arts & Research Center

8300 Floyd Curl Drive San Antonio, TX 78229 Phone: 210-450-9700

Brain Injury http://www.biatx.org

Texas Brain Injury Alliance 316 West 12th Street, Suite 405 Austin, TX 78701

http://www.msktc.org/researchcenter/detail/TexasTBI North Texas Traumatic Brain Injury Model System

(15)

University of Texas Southwestern Medical Center and Baylor Institute of Rehabilitation Dallas, TX

Cerebral Palsy

http://chat.houston-texas.org/chatrooms/Cerebral-Palsy.html Houston Cerebral Palsy Chat

Friedreich’s Ataxia http://www.ataxia.org

National Ataxia Foundation (NAF) 2600 Fernbrook Lane, Suite 119 Minneapolis, MN 55447

Phone: 763-553-0020

National Ataxia Foundation Ambassadors Dana Leblanc 2801 West Sunset #59H Orange, TX 77630 Phone: 409-883-5570 E-mail: [email protected] Debra Whitcomb 6821-b Escondido El Paso, TX 79912 Phone: 915-329-0721 E-mail: [email protected] Support Groups

Central TX Support Group Linda Crawley

200 Spring Grove Drive Liberty Hill, TX 78642 Phone: 512-635-9478

Houston Ataxia Support Group Angela Cloud

9405 Highway 6 South Houston, TX 77083

North Texas Support Group David Henry, Jr.

7 Wentworth Court Trophy Club, TX 76262

Guillain-Barré Syndrome / CIDP http://gbs-cidp.org/

(16)

GBS/CIDP Foundation International 104½ Forrest Avenue

Narberth, PA 19072

Phone: 610-667-0131, 866-224-3301 (Toll-free) Call for information in your area

Multiple Sclerosis http://www.nationalmssociety.org

National Multiple Sclerosis Society

Toll-free phone: 800-FIGHT MS (800-344-4867)

http://www.nationalmssociety.org/find-a-chapter/index.aspx National Multiple Sclerosis Society: Find a Chapter Search for chapter by state or zip code.

National Multiple Sclerosis Society Offices http://www.nationalmssociety.org/txh Lone Star

8111 North Stadium Drive, Suite 100 Houston, TX 77054 Phone: 713-394-2900 Toll-free: 800-323-4873 Austin 9600 N. Mopac, Suite 150 Austin, TX 78759 Phone: 512-340-2700 Toll-free: 877-524-4044 Amarillo 6222 Canyon Drive Amarillo, TX 79109 Phone: 806-468-8005 Corpus Christi 4601 Corona, Ste. 2303 Corpus Christi, TX 78411 Phone: 361-855-1974 Dallas 2105 Luna Rd., Ste. 390 Carrollton, TX 75006 Phone: 469-619-4700 Toll-free: 800-686-7415 Fort Worth 4086 Sandshell Drive Fort Worth, TX 76137 Phone: 817-306-7003 Lubbock 3610 22nd Street, Suite 201 Lubbock, TX 79410 Phone: 806-687-4816 Midland

1031 Andrews Highway, Suite 201 Midland, TX 79701

Phone: 432-522-2143 San Antonio

9830 Colonnade Boulevard, Suite 130 San Antonio, TX 78230-2203

(17)

Toll-free: 800-683-1627 http://www.msassociation.org/

Multiple Sclerosis Association of America National Headquarters 706 Haddonfield Road Cherry Hill, NJ 08002 Phone: 856-488-4500, 800-532-7667 (Toll-free) E-mail: [email protected] Support Groups Beaumont Phone: 409-866-2837

Meets 3rd Saturday of each month

Fort Worth

Phone: 817-460-8503

Meets 2nd Wednesday of each month

Muscular Dystrophy http://www.mdausa.org

Muscular Dystrophy Association (MDA)

Enter your zip code in the “Find your local MDA” section for MDA offices and clinics that treat MD in your area.

Post-Polio Syndrome http://www.post-polio.org

Post-Polio Health International 4207 Lindell Boulevard #110 Saint Louis, MO 63108-2930 Phone: 314-534-0475

http://www.post-polio.org/net/poldir.pdf

The Post-Polio Directory 2012 lists – by state – clinics, physicians, support groups and associations which specialize in post-polio syndrome. It can be downloaded for free; print copies are available for $12.

Spina Bifida http://www.spinabifidaassociation.org

(18)

4590 MacArthur Boulevard, NW Suite 250 Washington, DC 20007 Phone: 202-944-3285, 800-621-3141 (Toll-free) E-mail: [email protected] SBA Chapters http://www.sbatx.org/ Spina Bifida Texas

1550 NE Loop 410, Suite 224 San Antonio, TX 78209 Phone: 210-826-7289

http://spinabifidant.org/ SBA of North Texas

705 West Avenue B, Suite 409 Garland, TX 75040

Phone: 972-238-8755

E-mail: [email protected] http://www.sbahgc.org/

SBA of Houston Gulf Coast 440 Benmar, Suite 3052 Houston, TX 77060 Phone: 281-447-2707 Clinics

Dell Children's Medical Center of Central Texas Specialty Care Center (pediatric, will refer adults) 4900 Mueller Boulevard

Austin, TX 78723 Phone: 512-324-0137

http://www.moodyclinic.net/ Moody Clinic (pediatric only) 1901 E. 22nd Street

Brownsville, TX 78521 Phone: 956-542-8504

http://www.tsrhc.org

Texas Scottish Rite Hospital for Children Spina Bifida Clinic (pediatric)

2222 Welborn St. Dallas, TX 75219 Phone: 214-559-7857

http://www.tsrhc.org Texas Tech

Orthopaedic Clinic (pediatric and adult orthopaedic only)

4801 Alberta El Paso, TX 79905

http://www.cookchildrens.org Cook Children's Medical Center Department of Neurology (pediatric, will refer adults)

901 Seventh Avenue, Suite 120 Fort Worth, TX 76104

Phone: 682-885-2500

University of Texas Medical Branch Special Services Clinic

301 University Boulevard Galveston, TX 77555-0340 Phone: 409-772-2331

(19)

Myelo Program (pediatric only) 6977 Main Street

Houston, TX 77030 Phone: 713-797-1616

Spina Bifida Clinic (pediatric, will refer adults)

6701 Fannin Street Houston, TX 77030 Phone: 832-822-4308 Wilford Hall Medical Center

Department of Urology (pediatric and adult)

2200 Berquiest Drive, Suite 1 Lackland AFB, TX 78236-5300 Phone: 210-292-5767

Christus Santa Rosa Center for Children and Families

Spina Bifida Evaluation Center 333 N. Santa Rosa San Antonio, TX 78207 Phone: 210-704-2963, 210-704-2335 (ask for SB clinic) http://www.sahealth.com/ Methodist Healthcare

Pediatric Specialty Clinics (pediatric only)

4499 Medical Drive Sublevel 1 @ Methodist Plaza San Antonio, TX 78229

Spinal Cord Injury http://www.spinalcord.org

National Spinal Cord Injury Association (NSCIA) http://www.spinalcord.org/about/nscia-chapters/ NSCIA Chapters

Rio Grande Chapter

Highlands Regional Rehabilitation Hospital 1395 George Dieter

El Paso, TX 79936 Phone: 915-532-3004 Contact: Sukie Armendariz

Phone: 915-298-7241, 915-241-2805 Contact: Ron Prieto

http://www.txspinalcord.org Houston Chapter of NSCIA P.O. Box 70515

Houston, TX 77270 Phone: 713-364-4724 Contact: Rafferty Laredo

http://www.spinalcord.org/about/nscia-chapters/ NSCIA Support Groups

Recovery with E.A.S.E. (Education, Advocacy and Support for Everyone) Friday: 7 – 8:30 pm

Central Market

Strength Unlimited

Health and Wellness Activity and Support Monday and Wednesday: 4 – 8 pm

(20)

Room: Community Lounge 3815 Westheimer Road Houston, TX 77027

Contact: Suzette Sova Shaikh, MA, LPC E-mail: [email protected] Phone: 832-584-3810

Saturday 9 am – 1 pm TIRR Memorial Hermann Outpatient Rehabilitation 2455 Braeswood

Houston, TX 77030 Contact: Anna de Joya, PT E-mail:

[email protected] Phone: 713-797-7627, 713-524-9702 Spinal Cord Injury Survivors of Houston

Facilitated by persons living with SCI Monday, 3 – 4 pm

TIRR Memorial Hermann Outpatient Rehabilitation Room: Staff Lounge 2455 S. Braeswood Houston, TX 77030

Contact: Kathy Carrico, LCSW E-mail:

[email protected] Phone: 713-383-5613

Survivors!

Wednesday, 3 – 4 pm TIRR Memorial Hermann Outpatient Rehabilitation Room: Staff Lounge 2455 S. Braeswood Houston, TX 77030

Contact: Kathy Carrico, LCSW E-mail:

[email protected] Phone: 713-383-5613

Texas Regional Model SCI System

The Institute for Rehabilitation and Research (TIRR) 1333 Moursund Avenue

Houston, TX 77030 Phone: 713-797-5908 Sherman support group Phone: 903-647-0387 http://pressingontx.com/ Pressing On 12001 Network Boulevard #314 San Antonio, TX 78249 Phone: 210-877-2228

Pressing On is a non-profit organization which provides a specialized exercise-based training program for those living with paralysis due to spinal cord injury, traumatic brain injury, multiple sclerosis, stroke and other physical disabilities.

http://www.lonestarparalysis.org/ Lone Star Paralysis Foundation 1215 Red River, Suite 421

(21)

The mission of the Lone Star Paralysis Foundation is to cure spinal cord paralysis through funding research, advanced recovery, and community outreach.

Stroke http://www.strokeassociation.org/

American Stroke Association Phone: 888-478-7653 (Toll-free) Call for a support group in your area.

Syringomyelia/Chiari Malformation

http://www.asap.org/

American Syringomyelia & Chiari Alliance Project (ASAP) P.O. Box 1586

Longview, TX 75606-1586

Support Groups

North Houston Chiari & Syringo Support Group Kerry Chu

Cypress, TX

Phone: 516-330-7152

E-mail: [email protected] San Antonio / Houston Area Susie Brasseal

P. O. Box 859

Cypress, TX 77410-0859

Phone: 281-246-1909 (leave message)

E-mail: [email protected] or [email protected] Central Houston Chiari & Syringo Support Group Eva Storey

Houston, TX

Phone: 713-820-8095

(22)

http://texastm.tripod.com/

Texas Transverse Myelitis Coalition Dallas/Fort Worth

Contact: Barbara Lamb

Central Texas

Contact: Cossy Hough E-mail: [email protected] Houston

Contact: Bob Cook

http://transmyelitis.meetup.com/cities/us/tx/ TM MeetUp

Click on a city to see if it has a TM meet-up group.

General Disability Resources http://www.disabilityresources.org/TEXAS.html

DRM Regional Resource Directory: Texas

http://www.familyvillage.wisc.edu/comm/texas.html Family Village: Texas Disability Resources

http://nichcy.org/state-organization-search-by-state

National Dissemination Center for Children with Disabilities: Search by State Search for state agencies, disability-specific organizations, organizations for parents, and other disability organizations in Texas.

http://www.yellowpagesforkids.com/help/tx.htm Texas Yellow Pages for Kids

http://www.abilityconnectiontexas.org/

Ability Connection Texas (formerly UCP Dallas) 8802 Harry Hines Boulevard

Dallas, TX 75235

Ability Connection Texas provides a full range of services for people with physical and intellectual disabilities as they strive to achieve their highest level of independence. http://www.tpta.org/

Texas Physical Therapy Association 900 Congress Avenue, Suite 410 Austin, TX 78701

(23)

The Texas Physical Therapy Associationis the representative body for physical therapists, physical therapist assistants and students in the state of Texas. http://www.tota.org

Texas Occupational Therapy Association 1106 Clayton Lane, Suite 516W

Austin, TX 78723 Phone: 512-454-8682 http://www.apse.org

APSE (formerly Association for Persons in Supported Employment)

Membership organization which works to improve and expand employment

opportunities, services, and outcomes for people with disabilities. Currently has no Texas chapter. http://www.projectmend.org/ Project MEND 5727 IH 10 West San Antonio, TX 78201 Phone: 210-223-6363, 888-903-6363 (Toll-free)

Project MEND helps many low-income people with disabilities obtain medical

equipment and specialized, fitted devices, and other assistive technologies necessary for rehabilitation and recovery.

http://www.PartnersTx.org Partners Resource Network 1090 Longfellow Drive, Suite B Beaumont, TX 77706

Phone: 409-898-4684, 800-866-4726 (Toll-free, TX parents only) E-mail: [email protected]

Their mission is to empower parents of children and youth with disabilities in their roles as parents, decision makers, and advocates for their children and to promote partnerships among parents and professionals.

http://www.setworks.org

Workforce Solutions Southeast Texas P.O. Box 3607 Beaumont, TX 77704 Career Centers Beaumont 304 Pearl Street Beaumont, TX 77701 409-839-8045 Port Arthur

3901 Twin City Highway Port Arthur, TX 77642 Phone: 409-962-1236

(24)

Orange

320 Green Avenue Orange, TX 77630 Phone: 409-882-0302 http://www.txamr.org

Texans for Advancement of Medical Research E-mail: [email protected]

A non-profit organization of scientists, physicians, ethicists, leading health groups, and individuals that educates and advocates for stem cell research in Texas.

http://www.varietytexas.org/

Variety, the Children’s Charity of Texas 11300 N. Central Expressway, Suite 602 Dallas, TX 75243

Phone: 214-346-0920

Variety assists children with mobility and medical needs. http://www.mswheelchairtexas.org/ Ms. Wheelchair Texas 6315 S. Wintersage Lane Houston, TX 77066 Phone: 866-697-3016 (Toll-free) S http://neuroassistance.org/home

Neuro Assistance Foundation (NAF) 2320 Bridgewood Drive

Keller, TX 76262 Phone: 214-288-5438

NAF is a non-profit organization dedicated to assisting spinal cord injured and disabled individuals in the greater Dallas/Fort Worth area to achieve self-sufficiency and mobility through assistive vehicles, equipment, technology and home modifications.

http://txagrability.tamu.edu Texas AgrAbility

2251 TAMU

College Station, TX 77843-2251 Phone: 979-845-3727

Contact: Rick Peterson, Project Director, [email protected]

The Texas AgrAbility Project’s goal is to inform, educate, and assist individuals with disabilities to stay actively engaged in agriculture.

http://www.thinkfirst.org

ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F

(25)

ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. Click “Find a Chapter” for contact information for Texas chapters.

The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.