Volume 13
Spring/Summer
2010
inside
2
A Message from the
Founding Director
3
Center Shines at
National NAPNAP
Conference
5
Center News
6
Honors & Awards
7
CE/Resouces
In her role as a core faculty member of the Center for Children with Special Health Care Needs (CSHCN), Wendy Looman, PhD, RN, CNP, is developing and testing new models of care coordination for families who care for children with special health care needs.
As a certified pediatric nurse practitioner, Looman is part of a interprofessional team at the Cleft Palate Clinic and the Craniofacial Anomalies Clinic in the School of Dentistry at the University of Minnesota. In this role, she works with a team whose primary purpose is to promote health for children diagnosed with cleft lip and/or palate and other craniofacial conditions. This team provides interprofessional
evaluation, determines treatment needs and priorities to facilitate long range planning, and communicates findings and recommendations to the family's health care
providers. In this clinic, Looman provides clinical care for families of children with a variety of craniofacial conditions, including cleft lip and palate, Crouzon and Apert syndromes, craniofacial synostosis, facial clefting syndromes, and acquired facial anomalies from trauma or tumor resection.
Dr. Looman’s primary role during the clinic visit is to obtain a holistic assessment of the child and family, and to evaluate the family’s access to and satisfaction with care coordination. She also helps families begin planning for the child’s transition to adult health care services. In addition to teaching pediatric graduate nursing students in class about family-centered, coordinated care, she also precepts graduate students in clinic. Pediatric nurse practitioner students are encouraged to observe the interdisciplinary team process in the clinic as a model of family centered care.
Continued on page 4.
improving care
coordination
through research, teaching, and practice
Wendy Looman PhD, RN, CNP
Dear readers,
The Center for Children with Special Health Care Needs (CSHCN) began inauspiciously in 1993 with two master’s students recruited from a current pediatric nurse practitioner (PNP) class. Federal funding from the Maternal Child Health Bureau provided an opportunity to develop three additional courses with both didactic and clinical content focused on children with special health care needs and their families. In subsequent years, the center faculty saw steady gains in student interest in the expanded PNP program and came to see that the CSHCN content was essential for all PNP graduates. The graduates, now numbering 159, continue to amaze us as they create new roles in caring for children with special health care needs and their families. Their advocacy is found in government, schools, academia, and clinical practice. One third of the first class of post
master’s doctor of nursing practice (DNP) students in 2007 were CSHCN graduates. There are now four PhD and 17 DNP graduates. The graduates are truly maternal child health leaders in the care of children with special health care needs.
Factors contributing to the success of the center include a faculty committed and passionate about the care of children with special health care needs and their families; highly qualified graduate students; a dedicated advisory council; an excellent, supportive academic environment; and our geographic location in a community replete with excellent clinical facilities.
Grants from the Maternal Child Health Bureau continue to be crucial to the center’s success, allowing faculty and students to focus on children with special health care needs population in ways it would not otherwise be able to do without federal funding. We are proud of our accomplishments over the past 17 years. We look forward to the future, knowing that it will be even brighter because of our graduates, who have truly surpassed our expectations. I retire this spring and leave with a great sense of gratitude for the opportunity of being part of the Center for Children with Special Health Care Needs.
center for
children
with
special health care
needs newsletter
The Center for Children with Special Health Care Needs Newsletter is published annually by the Center for Children Special Health Care Needs, at the Universiy of Minnesota School of Nursing.
Center Director:
Ann Garwick, PhD, RN, LP, LMFT, FAAN [email protected]
Center Staff: Suzanne Jimenez Revou,
[email protected] Center Faculty: Mary Chesney, PhD, RN, CNP [email protected] Cheri Friedrich, DNP, RN, CNP [email protected] Tondi Harrison, PhD, RN, CPNP [email protected]
Barbara J. Leonard, PhD, RN, FAAN [email protected] Linda L. Lindeke, PhD, RN, CNP [email protected] Wendy Looman, PhD, RN, CNP [email protected] Susan O'Conner-Von, PhD, RNc [email protected] Christine Poe, DNP, RN, CNP [email protected]
Graphic Design: Aneisha Tucker
Send correspondence to:
Center for Children with Special Health Care Needs University of Minnesota School of Nursing 5-140 Weaver-Densford Hall, 308 Harvard Street SE Minneapolis, MN 55455
Telephone: 612-626-7085 Fax: 612-626-6606 E-mail: [email protected] www.nursing.umn.edu/CSCHCN
The Center for Children with Special Health Care Needs is supported by nursing training grant T80-MC00010 from the Maternal and Child Health Bureau (MCHB), Health Resources and Services Administration, Department of Health and Human Services.
The University of Minnesota is committed to the policy that all persons shall have equal access to its programs, facilities, and employment without regard to race, color, creed, religion, national origin, sex, age, marital status, disability, public assistance, veteran status, or sexual orientation.
This publication/material can be made available in alternative formats. Direct requests to Suzanne Jimenez Revou at 612-626-7085, [email protected].
©2010 Regents of the University of Minnesota. All rights reserved.
Printed on recycled and recyclable paper with at least 10
a message from
the founding
director
Barbara Leonard with family in pediatic clinic at the University of Minneosta. Circa 1970.
The Center for Children with Special Health Care Needs celebrated a stellar presence of its PNP students, faculty, and alumni at the 31st annual National Association of Pediatric Nurse Practitioners (NAPNAP) held April 15-18, 2010 in Chicago, Illinois.
“We are incredibly proud of the U of M School of Nursing PNP students, graduates, and faculty participation this year,” stated Dr. Linda Lindeke, PhD, RN, CNP, School of Nursing associate professor and director of graduate studies. “This is evidence that nursing leadership and advocacy for children and families has a strong PNP presence and a promising future.”
NAPNAP is the professional association for PNPs and other advanced practice nurses who care for children. Established in 1973, NAPNAP has been actively advocating for children's health by: providing funding, education, and research opportunities to PNPs; influencing legislation that affects maternal/child health care; and producing and distributing educational materials to parents and families.
Dr. Lindeke will step down from her position as NAPNAP president July 1, 2010. Under her leadership, the organization has seen the highest national conference attendance ever with 1500 attendees; and the highest membership number in the history of the organization, with more than 7,200 members.
Kudos to our School of Nursing winners and presenters:
research poster winner
Kirsten Morse, MS, RN, CNP
"What Factors are Associated with Parental Concern Regarding their Child's Weight?"
Advisor: Dr. Martha Kubik
best research article
Wendy Looman, PhD, RN, CNP, Susan O'Conner-Von, PhD, RN, Debra Hildebrand, Gabriela Ferski, MS, RN. “Financial and
Employment Problems in Families of Children With Special Health Care Needs: Implications for Research and Practice”. March 2009, Vol. 23, Issue 2, Pages 117-125. Read the article online at
www.jpedhc.org.
scholarship winners
Anna Carlson and Abby Phillips received the NAPNAP
Foundation/Abbott Nutrition PNP Student Regional Education Grant. This highly competitive grant was awarded to provide Carlson and Phillips the opportunity to attend the NAPNAP conference.
leadership
Mary Chesney, PhD, RN, CNP, clinical assistant professor, joined
the national board of NAPNAP as the national health policy chair. Chesney is also leading a number of national policy initiatives such as the Medicaid Policy Committee.
Sarah Gutknecht, DNP, RN, CNP, School of Nursing alumni and
affiliate faculty member, joined the national board of NAPNAP as the national certification chair and is member-at-large of the pediatric nursing certification board. Gutknecht has already assumed national leadership in a number of areas such as the acute care PNP role analysis work that is currently a priority in pediatric nursing.
presentations
Linda Lindeke, PhD, RN, CNP, presented a number of updates about
Division of Nursing/Title VIII gains for nursing education and workforce development achieved through health care reform. She also participated in presenting the results of a project funded by the National Council of State Boards of Nursing that analyzed the curriculum and practice overlaps between the primary care and acute care pediatric nurse practitioner. Lindeke is co-principal investigator of this study and a co-author of two articles
submitted to disseminate the study.
Christine Poe, DNP, RN, CNP, clinical assistant professor,
participated in the discussion on acute and primary care PNP program development.
leadership & policy
center shines at annual
In conjunction with her clinical role in the clinic, Looman has focused her research on a particular population of children with velocardiofacial syndrome (VCFS), a genetic condition that results from the deletion of a small part of chromosome 22. The condition results in palate anomalies in addition to cardiac, cognitive, immune, and physical manifestations. Because individuals with this condition require care from multiple providers, the interdisciplinary team model of care facilitates communication among providers and enables the family to be the center of the treatment planning process. Improved care coordination is a natural outcome of this model of care. Looman is conducting research to identify whether this model of care facilitates effective care coordination for families of children with special health care needs.
continued from cover:
“Improving Care Coordination Through Research, Teaching, and Practice”
Young boy taking a hearing test.
t
Kudos DNP Graduates
Last December, Doreen K. Frusti, MSN, MS, RN, chair in the
Department of Nursing at the Mayo Clinic addressed the School of Nursing’s newest DNP graduates at the Master of Nursing/Doctor of Nursing Practice Programs commencement ceremony held at the McNamara Alumni Center. The center’s six post-master’s DNP students and their dissertation titles are listed below.
Janet Dutcher, DNP, RN
“Facilitation of Neonatal Advance Care Planning through a Perinatal Palliative Care Approach”
Mary Erickson, DNP, RN
“Parent Discharge Skills Checklist to Improve a Ventilator-Dependent Child’s Transition Home”
Patricia MacGillivray, DNP, RN
“Transitional Healthcare for Youth with Diabetes”
Kathleen Murphy, DNP, RN
“Epi-Pen Emergency Anaphylaxis Protocol in Schools”
Jannell Plouffe, DNP, RN
“Implementation of Post-Resuscitation Debriefing Intervention”
Anne Renaker, DNP, RN
“Implementation of a Family Presence Program for Children in the Emergency Department”
PhD Dissertation Completed
John Belew, PhD, RN, CDDN, successfully completed his PhD
dissertation “Participation of Young Adults with Mild Intellectual Disabilities and Cerebral Palsy in the Decision to Receive Botox Treatment for Muscle Spasticity” in May 2010. Belew is a nurse researcher at Gillette Children's Specialty Healthcare. He is also a community faculty member at Metropolitan State University and serves on the advisory board of Minnesota Life College
Advisor: Dr. Barbara Leonard.
John Belew with his advisor, Dr. Barbara Leonard at the School of Nursing Graduate Commencement reception.
center news
Erla Kolbrun Svavarsdóttir, PhD, RN, was a visiting Professor at the
U of M School of Nursing Center for Children with Special Health Care Needs in March-April 2010. Dr. Svavarsdóttir is a professor and academic chair of family nursing at the University of Iceland, School of Nursing and at Landspitali University Hospital. She also holds an adjunct faculty appointment at the University of Minnesota School of Nursing.
Her five-week visit focused on the continuation of work with Drs. Ann Garwick and Wendy Looman on the International School Nurse Asthma Project (I-SNAP). The project focuses on the critical role of school nurses in Reykjavik, Iceland and Saint Paul,
Minnesota, in coordinating and managing asthma care of school age children and adolescents.
Dr. Svavarsdottir‘s research focuses on intervention research with families of children and adolescents with chronic illnesses. She is now working on translational research with a team of nursing researchers in Iceland regarding implementing family system nursing at an institutional level at Landspitali University Hospital in Reykjavik.
Learn more. Read The Hidden Role of School Nurses in Asthma
Care in the spring issue of Minnesota Nursing at
www.nursing.umn.edu/magazine.
Welcome
Visiting Professor Erla Kolbrun Svavarsdóttir
from the University of Iceland
I-SNAP team (L-R): Ann Garwick, Wendy Looman, Erla Svavarsdóttir, Lori Anderson (School of Nursing post-doctoral fellow).
Three School of Nursing
Students Named LEND Fellows
Pediatric nurse practitioner students Abby Phillips, AannaJohannes, and Elizabeth Osowski were named fellows in the new
University of Minnesota Leadership Education in
Neurodevelopmental and Related Disabilities Program (LEND). LEND provides interdisciplinary, graduate-level leadership training as well as interdisciplinary services and care. The purpose of LEND is to improve the health of children with autism, or other neurodevelopmental and related disabilities, and their families. Traineeships include classroom course work, leadership development, clinical skill building, mentoring, research, and community outreach through clinics, consultations, and the provision of continuing education and technical assistance.
LEND is funded by the Material and Child Health Bureau of the U.S. Department with Health and Human Services and is a partner to the School of Nursing’s Center for Children with Special Health care Needs. Dr. Linda Lindeke, serves as a core faculty member on the LEND grant.
SoN Receives National
Recognition for PNP Preparation
Faculty members in the Center for Children with Special Health Care Needs are delighted to announce that the School of Nursing’s pediatric nurse practitioner (PNP) options (MS and DNP) have once again been successfully reviewed by the Pediatric NursingCertification Board (PNCB) and have met national standards. PNCB stated: "…you, your faculty, and students can be assured that you have met the highest standards in pediatric nurse practitioner education.” The school’s BSN-to-DNP PNP specialty is one of the first in the nation to be reviewed by PNCB.
Two PNP graduates, Alexis Macij and Wendy Clagett Kochevar, received top scores on the PNCB national certification
examination in 2004 and 2005 respectively. The School of Nursing’s pass rate is one of the highest nationally.
John Belew, PhD, RN, CDDN, received the Mary Hanna Memorial
Journalism Award.
Mary Chesney, PhD, RN, CNP, received the Minnesota Nurses
Association’s (MNA) 2009 Political Action Award at MNA’s annual convention and awards banquet last October. The award was given in recognition of Chesney’s legislative advocacy on behalf of advanced practice nurses and her work in promoting nursing’s vital role in health care reform.
Debra Hildebrand, Gabriela Ferski, MS, RN, Wendy Looman, PhD,
RN, CNP, and Susan O'Conner-Von, PhD, RN article “Financial and Employment Problems in Families of Children With Special Health Care Needs: Implications for Research and Practice” received the Ellen Rudy Clore Excellence in Research Writing Award from the
Journal of Pediatric Health Care.
honors & awards
congratulations
ms graduates
Back row L-R: Megan Hilden Rondeau, Aanna Johannes, Angie Drummond, Abby Phillips, Elizabeth Osowski Front row L-R: Anna Venn Carlson, Sommer Anderson, Nancy Jaworski, Sarah Thu
selected faculty
Grants
Adwan, Jehad, PhDcPediatric Nurses’ Grief Experience over the Death of Their Patients: Its Relationship with Burnout and Job Satisfaction
Sigma Theta Tau International – Zeta Chapter
John Belew, PhDc (Co-PI)
Leonard, Barbara (Co-PI)
The Participation of Young Adults with Mild Intellectual Disabilities in Health-Related Decision-Making
Special Olympics
Benbenek, Mary, PhDc
Sunlight Exposure, Dietary, and Dress Habits of Somali Girls
Sigma Theta Tau International - Zeta Chapter
Garwick, Ann (Co-PI)
Scal, Peter (PI)
Internet-Based Health Care Transition Program
Faculty Research Development Program/UMN Academic Health Center (AHC)
Garwick, Ann (Co-PI) Looman, Wendy (Co-PI)
A Comparison of the Roles of School Nurses in Coordinating Asthma Care for Pre-adolescents and Adolescents in Iceland and St. Paul, MN
School of Nursing Foundation
Harrison, Tondi
A Pilot Study of a Skin-to-Skin Care Intervention in Infants with Congenital Heart Defects
P20 Center for Health Trajectory Research/UMN School of Nursing; National Institutes of Health
Harrison, Tondi
A Follow-Up Study of Autonomic Nervous System Function in 3-Year-Old Children with Surgically Corrected Transposition
American Nurses Foundation, Inc.
Lindeke, Linda
Pediatric Nurse Practitioner Programs: A Dual Track for Acute Care and Primary Care
Association of Faculties of PNP Programs (AFPNP); NCSBN Center for Regulatory Excellence (Prime)
Looman, Wendy
Correlates of Quality of Life for Rural and Urban Families of Children with VCFS
P20 Center for Health Trajectory Research; National Institutes of Health
O’Conner-Von, Susan
Field Test of a Web-based Program to Help Youth Cope with Cancer Treatment
P20 Center for Health Trajectory Research; National Institutes of Health
selected faculty
Publications
Scal, P., Horvath, K., & Garwick, A. (2009). Preparing for adulthood: Health care transition counseling for youth with arthritis. Arthritis Care and
Research, 61(1), 52-57.
Harrison, T. M. (2009). Effect of
maternal behavior on regulation during feeding in healthy infants and infants with transposition. Journal of
Gynecologic, Obstetric, and Neonatal Nursing, 38(4), 504-513.
Lindeke, L. L. (2009). NAPNAP'S
responsibility to military children and families. Journal of Pediatric Health
Care, 23(1), 13A-14A.
Lindeke, L. L. (2009). "Value" in
challenging times. Journal of Pediatric
Health Care, 23(3), 17A-18A.
Lindeke, L. L., & Looman, W. (2009).
Systems of care for children with chronic conditions. In P. Jackson Allen, J. Vessey & N. Shapiro (Eds.), Primary care
of the child with a chronic condition
(pp. 131-41). Philadelphia: Elsevier.
Looman, W. S., & Farrag, S. (2009).
Psychometric properties and cross-cultural equivalence of the Arabic social capital scale: Instrument development study. International Journal of Nursing
Studies, 46(1), 45-54.
Liaschenko, J., O'Conner-Von, S., & Peden-McAlpine, C. (2009). The "big
picture." Communicating with families about end-of-life care in intensive care unit. Dimensions of Critical Care
Nursing, 28(5), 224-231.
O'Conner-Von, S. (2009). Coping with
cancer: A web-based educational program for early and middle adolescents. Journal of Pediatric
Oncology Nursing, 26(4), 230-241.
continuing education
Seven self-paced continuing education modules with Minnesota Board of Nursing or ANCC contact hours are available at no cost.
• Connecting with Children: The Therapeutic Interview
and Teaching Self-Regulation Skills
by Rebecca Kajander (2.3 contact hours)
• Providing Transition Services to Children and Youth
with Special Health Needs by Barbara Peterson and
Ceci Shapland (1.2 contact hours)
• Getting to the Heart of It: Ways to Provide Culturally
Competent Care to American Indian Children and their Families, produced by Ann Garwick
(.6 contact hours)
• Health Care Plan for the Child with Diabetes, by
Patricia MacGillivary (1.6 contact hours) • Family Health Nursing, by Sharon Denham
(1.88 contact hours)
• Hearing Loss: Everyday Effects and Education, by Susan Rose (1.9 contact hours)
• Allergic Rhinitis, Mechanisms and Management, by Mary Anne Elder (1.75 contact hours)
breeze presentations &
powerpoint slides
• Federal and Minnesota Health Care Reform
Initiatives: Implications for Child Health
by Mary Chesney
• Skin-to-Skin Care Intervention in Infants with
Congenital Heart Defects by Tondi Harrison
• Hot Topics In Pediatrics Leadership Forum The four topics include:
• Fatigue, Physical Performance and Carnitine Plasma
Levels in Children and Adolescents Receiving Chemotherapy by Casey Hooke
• Insulin Management: Preparing School Nurses to be
Transition Advocates for Students with Diabetes
by Patricia MacGillivray
• Implementation of a Family Presence Program for
Children in the Emergency Department
by Anne Renaker
• Coping with Cancer: A Web-based Program for
Adolescents by Susan O’Conner-Von
Learn more. Visit “Resources” on our Web site at www.nursing.umn.edu/CCSHCN.
Nonprofit Org. U.S. Postage
PAID Minneapolis, MN
Permit No. 155
5-140 Weaver Densford Hall 308 Harvard Street SE Minneapolis, MN 55455 Return service requested
Learn more at
www.nursing.umn.edu/CCSHCN
Mission
The center prepares pediatric nursing leaders to improve the quality of care and systems of care for children, youth, and their families with an added emphasis on special health care needs. The center’s holistic approach focuses on family-centered care within cultural and community contexts.
The center also offers educational programs, continuing education, and online resources for
Our Programs
• Doctorate with a research focus on children and families with special health care needs (PhD) • Doctorate of Nursing Practice (DNP) Advance your leadership skills and
prepare for faculty, research, clinical practice, administrative, advocacy and health policy roles.
Broaden your scope of practice and become a pediatric nurse practitioner or pediatric clinical
Join us
Join the CSHCN Care Coordination Listserv. This is a private list for those interested in resources related to CSHCN. All healthcare providers can join. If you are interested, send your e-mail address to [email protected].
