Massachusetts Disability Resources
Affordable Care Act (ACA)http://www.hhs.gov/healthcare/facts/bystate/ma.html
HHS.gov: How the Health Care Law is Making a Difference for the People of Massachusetts
To get coverage under the ACA, go to https://www.healthcare.gov/ to find out more about the Health Insurance Marketplace and the options available in your state.
https://www.healthcare.gov/what-is-the-marketplace-in-my-state/#state=massachusetts
ARTS and CREATIVITY
http://www.vsamass.org
http://www.accessexpressed.net VSA arts of Massachusetts 89 South Street, Suite 101 Boston, MA 02111 Phone: 617-350-7713 TTY: 617-350-6836 Fax: 617-482-4298 Email: [email protected] ASSISTIVE TECHNOLOGY http://www.massmatch.org/ MassMATCH
Massachusetts Rehabilitation Commission 600 Washington St.
Boston, MA 02111 Phone: 617-204-3851 Toll free: 866-682-9955 Email: [email protected]
http://www.newenglandada.org New England ADA Center
Adaptive Environments Center, Inc. 180-200 Portland St., Suite 1 Boston, MA 02114 Phone: 617-695-1225 Toll Free: 800-949-4232 Fax: 617-482-8099 Email: [email protected]
Massachusetts Assistive Technology Loan Program Easter Seals Massachusetts
484 Main Street Worchester, MA 01608 Phone: 508-751-6431 Email: [email protected] CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/states/MA/support/index.htm Caregiver Support Groups for Massachusetts by County
Tel: (954) 893-0550 1-800-829-2734 Fax: (954) 893-1779
Email: [email protected] Well Spouse Association Greater Boston WSA Support Boston Martha Scott Phone: (617) 924-5206 [email protected] Northampton WS Support Northampton
Mary Beth Averill Phone(413) 584-0631 [email protected] Cape Cod WS Group Sandwich
(508) 563-5457
COMMUNITY-BASED FITNESS PROGRAMS http://www.journey-forward.org/
Journey Forward 755 Dedham Street Canton, MA 02021
Phone: 781-828-3233, 866-680-5636 (Toll-free)
Journey Forward is an exercise based program designed to assist those with spinal cord injuries so they too can achieve some of these most basic lifelong functions and benefits.
CRIME VICTIM ASSISTANCE Massachusetts Crime Victim Compensation
Phone: 617-727-2200 Fax: 617-367-3906
http://www.state.ma.us/mova
Massachusetts Crime Victim Assistance 1 Ashburton Place, Suite 1101
Boston, MA 02108 Phone: 617-727-5200 Fax: 617-727-6552
http://ovc.ncjrs.org/findvictimservices/Search.asp
Office for Victims of Crime’s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for
http://www.safehorizon.org/index/get-help-8/for-additional-resources-47.html Safe Horizon’s Links for General Crime Victim Resources/Issues
DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: 1-800-799-SAFE (7233) National Resource Center on Domestic Violence: 800-537-2238 Statewide Hotline: 877-785-2020
www.janedoe.org Jane Doe, Inc.
The Massachusetts Coalition Against Sexual Assault and Domestic Violence 14 Beacon Street Suite 507 Boston, MA 02108 Phone: 617-248-0922 TTY: 617-263-2200 Fax: 617-248-0902 http://www.aardvarc.org/dv/states/massdv.shtml
Aardvarc’s Massachusetts Domestic Violence contact information by City/County EASTER SEALS OFFICES
http://www.eastersealsma.org Easter Seals Massachusetts Technology and Training Center 89 South Street
Boston, MA 02111 Phone: 617-226-2640
http://www.eastersealsma.org Easter Seals State Headquarters 484 Main Street
Worcester, MA 01608-1817 Phone: 508-757-2756
GOVERNMENT OFFICES
http://www.mass.gov
Massachusetts State Website http://www.mass.gov/mod/
Massachusetts Office on Disability 1 Ashburton Place Room 1305 Boston, MA 02108 Phone: 617-727-7440 800-322-2020 Fax: 617-727-0965
http://www.medicare-partd.com/PartD-Medicare-PartD-PDP-Massachusetts.php?st=MA&prodid=240
Massachusetts Medicare Part D
http://www.mass.gov/?pageID=eohhs2homepage&L=1&L0=Home&sid=Eeohhs2 Massachusetts Office of Health and Human Services
One Ashburton Place 11th Floor
Boston, MA 02108 Phone: 617-573-1600
The Massachusetts Rehabilitation Commission Administrative Offices
Fort Point Place 27 Wormwood Street Boston, MA 02210-1616 Phone: 617 204-3600 800-245-6543 Fax: 617-727-1354 http://www.mass.gov/eohhs/utility/contact-us.html Massachusetts Medicaid Office
One Ashburton Place, 11th Floor
Boston, MA 02108 Phone: 617-573-1770
http://massresources.org/masshealth.html
Massachusetts SCHIP Office (State Children’s Health Insurance Program) MassHealth (Medicaid and CHIP)
Phone: 888-665-9993 TTY: 888-665-9997
http://www.800ageinfo.com/
Massachusetts SHIP Program (State Health Insurance Program for Seniors) 800AgeInfo
Executive Office of Elder Affairs 1 Ashburton Place
5th Floor (the McCormack Building) Boston, MA 02108
Phone: 800-872-0166
800-AGE-INFO (243-4636)
http://www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/ Home and Community Based Services Waiver (HCBS)
http://www.communityfirstgrant.org/index.aspx Community First Grant
http://www.mass.gov/doi/
Massachusetts Insurance Commissioner 1000 Washington Street, Suite 810
Boston MA 02118-6200 Phone: (617) 521-7794 Fax: (617) 753-6830
Consumer Line: (617) 521-7794 http://www.mass.gov/dia/
Massachusetts Worker’s Compensation Boston Office
Department of Industrial Accidents 600 Washington Street 7th Floor Boston, MA 02111 Phone: 617-727-4900 800-323-3249 Fax: 617-727-6477 Fall River Office
Department of Industrial Accidents 30 Third Street
Fall River, MA 02720 Phone: 508-676-3406 Fax: 508-677-0655 Lawrence Office
Department of Industrial Accidents 160 Winthrop Avenue
Lawrence, MA 01843 Phone: 978-683-6420 Fax: 978-683-3137 Springfield Office
Department of Industrial Accidents 436 Dwight Street
Room 105
Springfield, MA 01103 Phone: 413-784-1133 Fax: 413-784-1138
Worcester Office
Department of Industrial Accidents 340 Main Street
Worcester, MA 01609 Phone: 508-753-2072 TTY: 508-791-3225
Massachusetts Governor’s Committee on Employment of People with Disabilities Department of Employment and Training Policy Office
19 Stanford Street 3rd Floor Boston, MA 02114 Phone: 617-626-5190 Fax: 617-727-0315 http://www.christopherreeve.org/c.ddJFKRNoFiG/b.4518671/k.6ABA/Find_Your_Electe d_Official/siteapps/advocacy/search.aspx
Find your elected officials to contact them on legislation that is important to you. www.mass.gov
http://www.mass.gov/elders/service-orgs-advocates/ltc-ombudsman/ltc-ombudsman-overview.html
State LTC Ombudsman Mary McKenna
Massachusetts Exec Office of Elder Affairs 1 Ashburton Place
5th Floor
Boston, Massachusetts 2108 Phone: (617) 727-7750 Fax: (617) 727-9368
The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities.
HOUSING
http://www.ilru.org/html/publications/directory/massachusetts.html Massachusetts Independent Living Centers
www.fanniemae.com Fannie Mae offices:
Northeastern Regional Office 1900 Market Street
Suite 800
Philadelphia, PA 19103 Phone: 215-575-1400
Massachusetts Partnership Office 265 Franklin Street
10th Floor
Boston, MA 02110 Phone: 617-345-8040
http://www.hud.gov/local/index.cfm?state=ma
Massachusetts Housing and Urban Development (HUD) Office New England Regional Office
Thomas P. O’Neill, Jr. Federal Building 10 Causeway Street 3rd Floor Boston, MA 02222-1092 Phone: 617-994-8200 TTY: 617-565-5453 Fax: 617-565-6558 http://www.mass.gov/eohhs/consumer/disability-services/housing-disability/home-mod-loan/index.html
Home Modifications for Persons with Disabilities Loan Program
A Collaboration of the Massachusetts Rehabilitation Commission (MRC) and Community Economic Development Assistance Corporation (CEDAC) http://www.massaccesshousingregistry.org/
Mass Access: The Accessible Housing Registry
a free program that helps people with disabilities find rental housing in Massachusetts, primarily accessible and barrier-free housing.
LIBRARY SERVICES
http://mblc.state.ma.us/libraries/braille/index.php Massachusetts Braille and Talking Book Libraries 98 North Washington St., Suite 401
Boston, Massachusetts 02114 Tel: 617-725-1860
800-952-7403 (in state) Fax: 617-725-0140
The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to
www.ChristopherReeve.org/NRN.
PROTECTION and ADVOCACY
http://www.dlc-ma.org
Massachusetts Protection and Advocacy Disability Law Center, Inc.
11 Beacon Street Suite 925 Boston, MA 02108 Phone: 617-723-8455 800-872-9992 TTY: 617-227-9464 800-381-0577 Fax: 617-723-9125 Email: [email protected] http://www.mass.gov/mod/ClientAssistance.html Massachusetts Client Assistance Program (CAP) Massachusetts Office on Disability
1 Ashburn Place Room 1305 Boston, MA 02108 Phone: 617-727-7440 800-322-2020 Fax: 617-727-0965 Email: [email protected] http://www.gbls.org/
Greater Boston Legal Services 197 Friend Street Boston, MA 02114 Phone: 617-371-1234 800-323-3205 TDD: 617-371-1228 Fax: 617-371-1222 www.state.ma.us/dppc
Disabled Persons Protection Commission 300 Granite Street, Suite 404
Braintree, MA 02184 Phone: 617-727-6465 888-822-0350 V/TTY Fax: 617-727-6469 SERVICE DOGS http://www.dogsfordisabled.org/
Tutor Service Dogs & Coast to Coast SAR, Inc. 8595 Pelham Road
Suite 400, #141 Greenville, SC 29615 Tel: 864-810-0134
Training Privately-Owned Dogs: 864-810-0607 Email: [email protected]
National Hearing Dog Center, Inc. 1116 South Main Street
Athol, MA 01331 Phone: 978-249-9264 http://www.neads.org
National Education for Assistance Dog Services (NEADS) PO Box 213
West Boylston, MA 01583 Phone/TTY: 978-422-9064 Fax: 978-422-3255
SPORTS and RECREATION
http://www.accessportamerica.org/ AccesSportAmerica
119 High Street Acton, MA 01720 Tel: 978.264.0985
Toll Free: 866.45.SPORT (77678) Kartwheels in Motion, Inc. 526 North Avenue
Phone: 781-893-6516 Email: [email protected]
http://www.capecoddisability.org/ Cape Cod Disability Access Directory http://www.kidsindisabilitysports.com Kids in Disability Sports
P.O. Box 1397 Lowell, MA 01853 Tel: 866-712-7799 Dial: 1 for General Info 2 for Registration Info 3 for Sports Info 4 for Volunteer Info Email: [email protected] http://www.stride.org/
STRIDE (Sports and Therapeutic Recreation Instruction/Developmental Education)
476 North Greenbush Rd, Suite 9 Rensselaer, NY 12144
Phone: 518-598-1279 Fax: 518-391-2563 Email: [email protected]
Some of their winter programs are in Massachusetts http://www.mass.gov/dcr/rec-act.htm
Mass Parks
Department of Conservation and Recreation 251 Causeway Street Suite 900 Boston, MA 02114-2104 Phone: 617-626-1250 Fax: 617-626-1351 Email: [email protected] http://www.mass.gov/dcr/universal_access/index.htm Universal Access Program
Department of Conservation and Recreation 251 Causeway Street, Suite 900
Boston, MA 02114-2104
DCR Main Phone: 617-626-1250 DCR Main Fax: 617-626-1351 E-Mail: [email protected]
UNITED WAY OFFICES
http://national.unitedway.org/ National United Way
Enter postal code for a United Way office in your area United Way National Headquarters
701 North Fairfax Street Alexandria, VA 22314 Phone: 703-836-7112
VETERAN BENEFITS
http://www1.va.gov/directory/guide/fac_list_by_state.cfm?State=MA&dnum=ALL&map=1&flash=1 US Department of Veterans Affairs VA Hospital Locator
VA Boston Healthcare System - West Roxbury Division 1400 VFW Parkway
West Roxbury, MA 02132 Phone: 617-323-7700 http://www.nepva.org/
New England PVA Chapter 1600 Providence Highway Suite 143 Walpole, MA 02081 Phone: 800-660-1181 Fax: 508-668-9412 Email: [email protected] http://www.als-ma.org
The ALS Association’s Massachusetts Chapter 315 Norwood Park South, 1st Floor
Norwood, MA 02062 Phone: 781-326-8884
888-CURE-ALS Fax: 781-326-4940 Email: [email protected]
Massachusetts ALS Chapter - Wakefield Office 7 Lincoln Street Wakefield, MA 01880 Phone: 800-258-3323 Email: [email protected] http://falmouth.ccals.org/falmouth/default.asp Compassionate Care PO Box 1052 West Falmouth, MA 02574 Phone: 508-444-6775
Muscular Dystrophy Association’s ALS Research Centers: MDA/ALS Center at Massachusetts General Hospital Boston
(617) 726-5750
E-mail: [email protected]
MDA/ALS Center at the University Of Massachusetts Medical Center Worcester
(508) 856-4147
E-mail: [email protected]
BRAIN INJURY http://www.biama.org
Brain Injury Association of Massachusetts 30 Lyman Street Suite 10 Westborough, MA 01581 Phone: 508-475-0032 508-475-0036 800-242-0030 Fax: 508-475-0040 Email: [email protected] http://www.spauldingrehab.org
Spaulding/Partners TBI Model System at Harvard Medical School Spaulding Rehabilitation Hospital
Boston, MA 02114 Phone: 617-573-2456 Gen Info: 617-573-7000
CEREBRAL PALSY
http://www.ucpberkshire.org/ UCP of Berkshire County 208 West Street Pittsfield, MA 01201 Phone: 413-442-1562 Fax: 413-499-4077 Email: [email protected] http://www.ucpboston.org UCP of MetroBoston 71 Arsenal Street Watertown, MA 02472 Phone: 617-926-5480 Fax: 617-926-3059 Email: [email protected] FRIEDREICH’S ATAXIA http://www.ataxia.org/ National Ataxia Foundation 2600 Fernbrook Lane
Suite 119
Minneapolis, MN 55447 Phone: 763-553-0020 Fax: 763-553-0167
New England Support Group Donna and Richard Gorzela 45 Juliette St.
Andover, MA 01810 (978) 475-8072
Massachusetts Support Groups Contact: Michael Martignetti
Phone: 781-862-1979 Contact: Ben Canton Phone: 617-484-7733
GUILLAIN-BARRÉ SYNDROME / CIDP http://gbs-cidp.org/
Guillain-Barré Syndrome / CIDP Foundation International The Holly Building
104 1/2 Forrest Avenue Narberth, PA 19072 Phone: 610-667-0131
Call for information in your area
MULTIPLE SCLEROSIS http://www.nationalmssociety.org/chapters/MAM/index.aspx National Multiple Sclerosis Society
Central New England Chapter 101A First Avenue
Suite 6 Waltham, MA 02451-1115 Phone: 781-890-4990 800-493-9255 800-FIGHT-MS Email: [email protected] http://www.msassociation.org/regional/
Multiple Sclerosis Association of America Northeast Regional Office 706 Haddonfield Road Cherry Hill, NJ 08002 Phone: 800-532-7667 ext. 106 856-488-4500 Fax: 856-488-8257 Email: [email protected] MUSCULAR DYSTROPHY http://www.mdausa.org/
Muscular Dystrophy Association National Headquarters
3300 East Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717
Enter your postal code in the “Find your local MDA” section of the website for MD clinics in your area.
POST-POLIO SYNDROME http://www.post-polio.org
Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO 63108-2915 Phone: 314-534-0475 Email: [email protected] http://www.post-polio.org/net/poldir.pdf
Directory lists Health Professionals, Clinics, and Support Groups. http://www.spauldingrehab.org/OurLocations/Framingham/IRCP International Rehabilitation Center for Polio (IRCP) at Spaulding Spaulding-Framingham Outpatient Center
Phone: 617-573-7000
SPINA BIFIDA
http://www.msbaweb.org
Massachusetts Spina Bifida Association 733 Turnpike Street #282 North Andover, MA 01845 Phone: 617-742-2574 888-479-1900 Fax: 978-649-8725 Email: [email protected] Massachusetts Spina Bifida Clinics: Children’s Hospital Myelodysplasia Clinic 300 Longwood Avenue Fegan 3 Boston, MA 02115 Phone: 617-355-7704
Massachusetts General Hospital Myelo Clinic Gray
502 Fruit Street Boston, MA 03224 Phone: 617-726-8523
New England Medical Center Myelodysplasia Clinic
750 Washington Street #340
Boston, MA 02111 Phone: 617-636-5452
Massachusetts Hospital School (DPH) 3 Randolph Street
Canton, MA 02021 Phone: 781-828-2440
Shriner’s Hospital for Children Myelodysplasia Clinic
516 Carew Street Springfield, MA 01104 Phone: 413-787-2064
SPINAL CORD INJURY
http://www.sciboston.com/
Greater Boston Chapter of NSCIA Two Rehabilitation Way
Woburn, MA 01801 Phone: 781-933-8666 Fax: 781-933-0043
Email: [email protected]
http://www.bmc.org/rehab/nerscicnetwork.htm New England Regional Spinal Cord Injury Center Boston Medical Center
One Boston Medical Center Place Boston, MA 02118
Phone: 617.638.6800 TTY: 800.439.2370
Boston University Medical Center 88 East Newton Street
F-511
Boston, MA 02118 Phone: 617-638-7300
http://carecure.org/forum/index.php? CareCure State Forum
Must become an online member to access information Scroll down to New England States
STROKE
http://www.cdc.gov/dhdsp/programs/nhdsp_program/ma.htm CDC’s Massachusetts Cardiovascular Health
http://www.strokeassociation.org/ American Stroke Association National Center
7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653
Call them for the stroke support group in your area
http://www.heart.org/HEARTORG/localization/chooseState.jsp# Massachusetts American Heart Association offices
SYRINGOMYELIA/CHIARI MALFORMATION www.asap.org
American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079 800-ASAP-282 Fax: 903-757-7456 Email: [email protected]
TRANSVERSE MYELITIS
http://www.myelitis.org/local/ma/index.htm
Transverse Myelitis Association Massachusetts Support groups Contact: Leslie Cerio
781-740-8421 [email protected] http://transmyelitis.meetup.com/ TM MeetUp
Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants.
GENERAL DISABILITY RESOURCES
http://www.disabilityresources.org/MASSACHUSETTS.html Disability Resources.org: Massachusetts
http://www.familyvillage.wisc.edu/comm/massachusetts.html Family Village Resources for Massachusetts
www.nichcy.org
Massachusetts NICHCY: National Dissemination Center for Children with Disabilities http://www.yellowpagesforkids.com/help/ma.htm
Massachusetts Yellow Pages for Kids with Disabilities http://justcan.com/state1.html
JustCan.com Massachusetts Disability Services http://www.maot.org
Massachusetts chapter of the American Occupational Therapy Association 57 Madison Road Waltham, MA 02453-6718 Phone: 781-647-5556 Fax: 781-642-9742 Email: [email protected] http://www.aptaofma.org/
15 North River Rd Tolland, CT 06084 Telephone: 617-532-0344 Fax: 860-656-9069 Email: [email protected] http://www.massachusettsapse.org/
Massachusetts Association for Persons in Supported Employment Boston: 781-322-040 Central MA: 617-204-3695 Northeast MA: 978-459-8711 x227 Southeast MA: 508-992-5978 West MA: 413-788-6986 http://www.healthboards.com/boards/index.php
Healthboards.com – message boards on health related topics. Topics include SCI, CP, Stroke, and more.
http://aahd.webchoices.us/page.php?pname=publications/newsletters/2004/fall/stateGrant ee1
American Association on Health and Disability’s Health and Disability News, Fall 2004 article “Massachusetts’ Mammography Access Project”.
http://www.pyd.org
Partners for Youth with Disabilities 95 Berkeley Street Suite 109 Boston, MA 02116 Phone: 617-556-4075 617-314-2989 Fax: 617-556-4074 www.MassLongTermCare.org Mass Long Term Care
a consumer-focused website developed for the people who will use or need information about the continuum of senior and long term care services and facilities available across Massachusetts.
http://www.mass.gov/cicrf/cicrf.htm
Massachusetts’ Catastrophic Illness in Children Relief Fund 1-800-882-1435
Jackins, Barbara D. Legal Planning for Special Needs in Massachusetts. Brookline, Mass.: DisabilitiesBooks, Inc., 2006.
www.thinkfirst.org
ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F
Naperville, IL 60563 Phone: 630-961-1400
800-THINK56
Email: [email protected]
ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter
information in your area, please go to their website and click on the “Chapter Site” tab.
The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.
