Advocacy Groups
Finding a Cure: Incentivizing Partnerships Between Disease Advocacy Groups and Academic Commercial Researchers
... disease advocacy groups have risen in recent years in an effort to find cures for orphan ...disease advocacy groups assuming a more active role in drug development through the use of “venture ...
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The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network
... To respond to the challenges of research on rare dis- eases the NIH Office of Rare Diseases Research (ORDR), now located in the National Center for Advancing Trans- lational Sciences (NCATS), established the Rare ...
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The principal constraints confronting advocacy groups in the process of democratic consolidation in post-transitional Africa: a comparative study of Kenya and Zambia
... constrained advocacy sub-sector of civil ...confronting advocacy groups in Kenya and Zambia at the sub-systemic level, used deductive research strategy with apriori propositions, operated with a ...
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Health Policy and Social Change: Women’s Advocacy Groups and Narrative Mobilization
... One of the main goals of the Expressions group was to ‘raise awareness’, and to use storytelling to ‘allow people in the audience to connect what they’re hearing with their own stories, which may be quite different’ ...
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The serial murder of sex workers: The social construction of serial killers by sex worker advocacy groups.
... worker advocacy groups, texts available on Commercial Sex Information Service (CSIS) and similar telecommunication sites designed to generate dialogue, discourse and debate among sex worker advocates, ...
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Using Registries to Identify Adverse Events in Rheumatic Diseases
... family advocacy groups, have developed a novel phar- macosurveillance model that will be based on an established multicenter observational pediatric rheumatic dis- ease registry (The CARRA ...
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Role of Advocacy Organizations in Promoting Inclusive Education Policies for Students with Rare Chronic Health Conditions: Insights for Education Leaders
... different advocacy groups, only participants from five groups agreed to ...diverse advocacy groups of children with any rare condition, some important and specific issues related to ...
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Nevada
... During the examination period of this article, only one case was decided which notably affected oil and gas development in Nevada; however, this decision pertained to minerals managed by the BLM, and thus, may have ...
7
Deafies in drag : Role models at the intersection of queer and deaf representation
... and advocacy groups such as Roze Gebaar, and the current work of the deaf drag performers Deafies in Drag, Feenstra and van Kessel argue that a more practical attention to the intersection of minoritizing ...
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Quality improvement in neurologyDistal symmetric polyneuropathy quality measures
... patient advocacy groups with a special interest in peripheral neuropathy, includ- ing the American Association of Neuromuscular & Elec- trodiagnostic Medicine (AANEM), American Academy of Physical ...
5
Re-imagining Inclusive Urban Futures for Transformation
... Despite the research agenda’s grounding in rights approaches, challenges emerge from the civil society and advocacy groups. For example, civil society engagement in the People’s Visioning of the City in ...
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Can town and country both be green? A comparative study of green building programs and policies in urban and fast-growing rural counties in North Carolina
... building advocacy groups that have published policy guidelines and handbooks for state and local governments wishing to enact green building programs (USGBC, 2002; BCAP, 2008; Global Green USA, ...housing ...
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Sterilization and the retarded female: Is advocacy depriving individuals of their rights?
... need for changes in the stance of advocacy groups and the legal system to permit hysterectomy for certain severely or profoundly retarded female adolescents when the procedure woitld imp[r] ...
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Exploring the Limits of International Human Rights Law
... As I discuss below, advocacy groups have recognized that importation of the language of international human rights into domestic legal systems-through direct litigation, domestic [r] ...
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How do interest groups legitimate their policy advocacy? Reconsidering linkage and internal democracy in times of digital disruption
... in advocacy groups, which in turn (re)structures the ways in which internal democracy ...which advocacy is authorized and to which groups account for their advocacy ...
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Ethical Implications for Providers Regarding Cannabis Use in Children With Autism Spectrum Disorders
... Families may encounter information about potential benefits from online advocacy groups, such as Mothers Advocating Medical Marijuana for Autism, 38 the Autism Support Network, 3[r] ...
9
An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry
... patient advocacy groups may work closely with scientists and clinicians, there are few publications available describ- ing the type of interactions that occur, how regularly they occur and what input to the ...
9
The intersections of industry with the health research enterprise
... (namely advocacy groups, funding agencies, experts, professional organisations, regulatory agencies and health practitioners), and the influencing research ...
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Vol 3, No 1 (2014)
... I had long wished for a way to combine my passion for cycling and my broader commitment to leading an ecologically responsible life with my academic interests. In the context of Medieval Studies, this is simply not ...
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Thesis
... an advocacy group must work to maintain the status of a legitimate issue actor in order to endure (Sommerfeldt & Xu, ...and advocacy groups often delegitimize governments and other influential ...
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