children’s palliative care
Developing children’s palliative care in Africa through beacon centres: lessons learnt
... of palliative care across sub-Saharan Africa, however much still remains to be done, particularly in the area of children ’ s palliative care ...
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Priorities for global research into children’s palliative care: results of an International Delphi Study
... some children having more sophisticated views of death and dying than others, dependent on other issues including social, cultural, personal, and emotional issues [35], alongside their experience of ill- ness ...
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Evidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar
... current children ’ s palliative care was about ...annual care cost per child was £22,771 using 2007 prevalence estimates and £2,437- £11,045 using new 2012/13 population-based ...
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Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS)
... Children’s Palliative Care Needs has been conceived to incorporate exactly these multi- dimensional elements, grouping children who are eli- gible for PPC into five prognostic-based categories with ...
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A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
... standard care and ACP process, which worked well for pregnant mothers, have been reported, supporting the guidance for perinatal pathway for babies with palliative care needs ...health care ...
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Children in Scotland Requiring Palliative Care: identifying numbers and needs (The ChiSP Study)
... experiences of their child’s death. Whilst only a few studies were identified which explored this topic, they do represent experiences of end of life across the entire age range, from perinatal death forwards. In ...
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Palliative Care for Children
... Although palliative care services may not be nec- essary for all families, the full range of clinical and educational resources must be made ...comprehensive palliative care cannot be ...
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Challenges of palliative care in children with inborn metabolic diseases
... Most children with metabolic diseases reported by us who died during PPC did so in hospital or even in ...on children dying in PPC, in that most of the children died at home [2, 9, 14, ...these ...
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Barriers to Palliative Care for Children: Perceptions of Pediatric Health Care Providers
... initiate palliative care, rather than to avoid it, even when it is not yet appropriate to begin EOL ...Health care providers must acknowl- edge uncertainties and allow families to “try on” the “what ...
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Palliative Care for Children with Central Nervous System Malignancies
... primary palliative care is to assist with establishing goals-of-care with patients and ...of children with brain tumors are numerous, frequent, high-stakes, and should align with goals of ...
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Characteristics of a Pediatric Hospice Palliative Care Program Over 15 Years
... their care will primarily occur in the hospice, in a hospital, or at ...admissions. Children with cancer had a median of 1 admission (Fig ...362 children from 2007 to ...EOL care (n = 85). Our ...
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Palliative nursing care for children and adolescents with cancer
... to occur in the last week of life in adolescents with leukemia/ lymphoma than those with central nervous system tumors or solid tumors. Conversations initiated early in the illness trajectory do not always need to focus ...
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Pediatric Palliative Care Programs in Children’s Hospitals: A Cross-Sectional National Survey
... (0.2 FTE) (Table 4). The range of total staff across the programs was very broad; for physicians, 0 to 3.8 FTE, and for nurses, 0 to 6.6 FTE (Table 4). Social workers were members of 66.1% of programs, but with an ...
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Differences in Characteristics of Dying Children Who Receive and Do Not Receive Palliative Care
... ZIP CODES AND ME: I was at the checkout counter the other day when, as so often happens, the woman at the register asked for my zip code. I am always irked by this request. After all she already had my credit card and a ...
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Pediatricians' Perceptions of and Preferred Timing for Pediatric Palliative Care
... define palliative care, how they access palliative care services, and when they would refer patients with spe- cific ...defined palliative care in a way and reported referral ...
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Challenges of palliative care for children with cancer in Iran: a review
... Pediatric palliative care is a patient- centered approach that should be applied in conjunction with respect towards the family in a variety of ways, such as parent and child participation in the plan of ...
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Changes in professionals’ beliefs following a palliative care implementation programme at a surgical department: a qualitative evaluation
... Studies have shown that there can be difficulties with both collaboration [9, 15, 43] and communication [9, 44] within different professional groups in acute care. How- ever, it is possible that results may have ...
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Development of palliative care attitude and knowledge (PCAK) questionnaire for physicians in Kuwait
... Members of the advisory committee generated a pool of approximately 102 items covering all dimensions [16, 18]. For the attitude, 33 items were identified and measured through Likert scale [22–24]. It helped to quantify ...
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Palliative Care A Beginning
... Palliative Care A Beginning EDITORIAL Palliative Care A Beginning TPDevaraj 6, ]esselton Avenue, 10450 Penang The WHO has defined palliative care as "the active total care of patients whose disease is[.] ...
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Experiences of Dutch general practitioners and district nurses with involving care services and facilities in palliative care: a mixed methods study
... how palliative care with regard to services and facilities could be improved, and 144 participants (104 DNs and 40 GPs) mentioned one or more areas of improvement, which can be clustered in three different ...
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