Life-limiting conditions
Prevalence of life-limiting conditions in children and young people in England: Time trends by area type.
... Palliative care services in England lack of data on the number of children with ‘life limiting conditions’ (LLCs). Recent research determined that the prevalence of LLCs in children in England was ...
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Children with life-limiting conditions in paediatric intensive care units: a national cohort, data linkage study
... Life-limiting conditions (LLCs) are those for which there is no reasonable hope of cure and from which children will ultimately die, for example, Duchenne muscular dystrophy or neurodegenerative ...
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Paediatric palliative care : development and pilot study of a ‘Directory’ of life limiting conditions
... not life-limiting conditions according to the ACT/RCPCH criteria or were not primary were ...of life-limiting conditions was piloted by analysing Death Certificate data of ...
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Respite services for children with life limiting conditions and their families in Ireland : a national needs assessment
... with Life-limiting Conditions in Ireland – A National ...with life-limiting conditions and their families primary care services need to be developed, including the provision of a ...
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“Transition from children’s to adult services for adolescents/young adults with life-limiting conditions: developing realist programme theory through an international comparison”
... with life-limiting conditions Transition theory was developed from a realist literature review [21] followed by observational research in the is- land of Ireland (the geographical term describing ...
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Decision making and future planning for children with life limiting conditions: a qualitative systematic review and thematic synthesis
... with life-limiting conditions, as many have some degree of cognitive impairment and may need additional support to participate in such ...with life-limiting conditions have in ...
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Children with Life-Limiting Conditions in Paediatric Intensive Care Units: : a national cohort, data linkage study
... Life-limiting conditions (LLC) are those for which there is no reasonable hope of cure and from which children will ultimately die, ...disease. Life- threatening conditions (LTC) are ...
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Patterns of diagnoses among children and young adults with life-limiting conditions: a secondary analysis of a national dataset
... of Life-Limiting Conditions with age is informative when planning services as the age when transition would be occurring parallels the lowest ...
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Comparing routine inpatient data and death records as a means of identifying children and young people with life limiting conditions
... a life limiting condition in England and Scotland, which used an International Classification of Diseases Version 10 6 coding framework to identify life limiting conditions within ...
Parental experiences of end of life care decision making for children with life limiting conditions in the paediatric intensive care unit : a qualitative interview study
... of life-limiting ...of life care meetings, the care of siblings, spiritual needs and bereavement care; all are worthy of further ...of life care decisions for their children, or the views of ...
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'Why does it happen like this?' : consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families
... those who provide services and with an even smaller number of those who receive them. It is important to consult with a whole group, which in this case is not only those who receive services but also those who might for ...
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Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents, and all those who care for them : a systematic scoping review
... orcid.org/0000-0002-7963-211X, Wright, Kath et al. (2 more authors) (2018) Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their ...
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Respite Services for Children with Life Limiting Conditions and their Families : A Needs Assessment for HSE Dublin/Mid Leinster and HSE Dublin/North East
... Currently funding for respite services for children with life-limiting conditions is allocated to a range of different services within the HSE (e.g. disability services, palliative care services, ...
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Rising National Prevalence of Life-Limiting Conditions in Children in England
... their conditions, these fi gures are likely to be underestimates; anecdotally, clini- cians working in pediatric palliative care consider that the currently avail- able data underrepresents the burden of ...
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Quality of life information and trust in physicians among families of children with life-limiting conditions
... Some potential limitations of our study merit attention. First, this study was restricted to children who were enrolled in Florida’s Medicaid program. Our population was at or below 100% of the federal poverty level. ...
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Intranasal fentanyl for respiratory distress in children and adolescents with life-limiting conditions
... The primary purpose of this study is to report the ap- plication of INF for RD treatment in a sample of pallia- tive attended children and adolescents with various LLCs based on data from a retrospective chart analysis. ...
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Parents' perspectives on the important aspects of care in children dying from life limiting conditions: A qualitative study
... Malacca Hospital is a government hospital with 10% (96) paediatric beds. PPC was first introduced into the department in 2007, with training and focus on symptom control; 40% of the deaths (2008/9) were found to be ...
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How many children and young people with life-limiting conditions are clinically unstable? A national data linkage study
... Deprivation category was not a significant predictor of risk of instability. It has been previously found that socioeconomic status did not significantly influence access to healthcare within Britain. 30,34 Other than ...
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Siblings of children with life limiting conditions : psychological adjustment and sibling relationships
... family life differently to families where children do not have ...consider conditions under the broader grouping of chronic ...chronic conditions are not life-limiting ...clinical ...
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Young adults as users of adult healthcare : experiences of young adults with complex or life-limiting conditions
... In making his case, Arnett pointed to a wide range of evidence. The ages at which individuals in many societies in the developed world achieve the so-called milestones of adulthood (eg employment and leaving the family ...
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