paediatric rheumatology
Educational initiatives and training for paediatric rheumatology in Europe
... 2. The PReS Advanced courses (e.g. JIA, Slovenia 2017, Auto-inflammatory diseases Jerusalem, Israel 2018, childhood-onset SLE Lausanne, Switzerland 2018) target a more experienced audience and in the main, senior ...
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Proceedings of the 24th Paediatric Rheumatology European Society Congress: Part two
... for Paediatric Rheumatology in Europe and Latin America, PI ...(Pediatric Rheumatology INternational Trials Organisation) were invited to participate in the project by email, in order to provide the ...
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Strategies for the prevention and management of Methotrexate-related nausea and vomiting in Juvenile Idiopathic Arthritis: results of a UK Paediatric Rheumatology prescriber survey
... UK Paediatric Rheumatology consultants, 22 Paediatricians and 10 Consultant Adult Rheumatologists with an interest in Paediatric Rheumatology, and 21 other prescribing practitioners with a 62% ...
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Out-of-clinic patient communication in paediatric rheumatology: the extent and nature of demand
... in paediatric patients with chronic diseases and their ...the paediatric rheumatology population ...a paediatric neurology service [7] and from parents of children with congenital anomalies ...
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Proceedings of the 24th Paediatric Rheumatology European Society Congress: Part one
... in paediatric rheumatology may benefit from adopting these smart devices to enhance the understanding in dif- ferent aspects, such as: patient ’ s biological parameters, symptoms progression, and adherence ...
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Proceedings of the 23rd Paediatric Rheumatology European Society Congress: part one
... Methods: We describe 2 sisters with unusual clinical features resem- bling childhood SLE and targeted molecular investigation. The index patient presented with hemiplegia and complex partial seizures in in- fancy, ...
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Proceedings of the 23rd Paediatric Rheumatology European Society Congress: part three
... Results: 61 children were diagnosed with uveitis before the age of 18 and collectively followed in 3 ophthalmologic departments specialized in uveitis care in children along with 1 paediatric rheumatologist, each ...
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Proceedings of the 23rd Paediatric Rheumatology European Society Congress: part two
... attending rheumatology clinics of our Unit were ...of Rheumatology Pediatric (ACRPedi) response, Juvenile Arthritis Disease Activity Score (JADAS) 71, Clinically Inactive Disease (CID)) and adverse events ...
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Proceedings of the 24th Paediatric Rheumatology European Society Congress: Part three
... Methods: This is a retrospective study in which the serial anthropo- metric measurements (weights and heights) of patients with juvenile onset systemic lupus erythematosus (jSLE) following in pediatric ...
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Proceedings of the 25th European Paediatric Rheumatology Congress (PReS 2018)
... pediatric rheumatology consultation after two episodes of great saphenous vein superficial ...pediatric rheumatology and vascular surgery consultation, with- out any further occurences except for an episode ...
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Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use
... Currently, there is very little research published in JDM engaging patient/parent opinion. Our group has sought advice from senior members of COMET [9] and OMERACT [11] and consumer representatives of the National ...
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<p>Management of Pediatric Systemic Lupus Erythematosus: Focus on Belimumab</p>
... of Rheumatology; AE, adverse event; BAFF, B-cell activating factor; BILAG, British Isles Lupus Assessment Group; BLyS, B cell lymphocyte stimulator; CALIBRATE, Rituximab and belimumab for lupus nephritis; CNS, ...
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Adaptation of the methotrexate in rheumatoid arthritis knowledge questionnaire (MiRAK) for use with parents of children with juvenile idiopathic arthritis (JIA)
... 3 paediatric rheumatologists and one rheumatology nurse specialist was recruited to Panel ...in paediatric rheumatology, a professor in health psychology and 2 research assistants working in ...
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Multi-centre national audit of juvenile localised scleroderma: describing current UK practice in disease assessment and management
... a paediatric rheumatologist between April 2015 and April ...UK Paediatric Rheumatology tertiary centres (n = 14) were invited to take part and 11 centres participated (Birmingham, Bristol, Edinburgh, ...
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Clinical patterns of juvenile idiopathic arthritis in Zambia
... out-patient rheumatology clinics at the University Tea- ching Hospital [UTH] in Lusaka, Zambia from two dis- tinct time periods; a 5-year period from January 1994 to December 1998; a 4-year period from 2006 to ...
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Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research
... A detailed analysis of variables from three existing large registries of patients with Idiopathic Inflammatory Myopathies (IIM), namely JDCBS (www.juvenilederma- tomyositis.org.uk), CARRA (www.carragroup.org), and ...
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What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study
... main paediatric rheumatology units identified a team member with PPI included within their job description in only 5 units ...in rheumatology across the ...in paediatric rheumatology ...
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Same but different? A thematic analysis on adalimumab biosimilar switching among patients with juvenile idiopathic arthritis
... in paediatric rheumatology or biologic medications (HL and JL) ran the patient led, semi-structured ...in paediatric rheumatology or ...and paediatric rheumatology team) on the ...
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Systemic lupus erythematosus: state of the art on clinical practice guidelines
... of Rheumatology -ACR congress 2017, ERN ReCONNET meeting in Pisa, 4-6 of February 2018), web conferences, emails and the ERN Collaborative Platform (https:// ...
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Workforce requirements in rheumatology: a systematic literature review informing the development of a workforce prediction risk of bias tool and the EULAR points to consider
... in rheumatology and other medical fields as well as task force expertise, with a few informal rounds to define the number of factors, shape and optimise the ...
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