[PDF] Top 20 PRACTICE PARAMETER: THE CARE OF THE PATIENT WITH AMYOTROPHIC LATERAL SCLEROSIS (AN EVIDENCE-BASED REVIEW)
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PRACTICE PARAMETER: THE CARE OF THE PATIENT WITH AMYOTROPHIC LATERAL SCLEROSIS (AN EVIDENCE-BASED REVIEW)
... is based on an assessment of current scientific and clinical ...of care for a particular neurologic problem or all legitimate criteria for choosing to use a specific ...specific patient care ... See full document
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Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidence-based review)Report of the Quality Standards Subcommittee of the American Academy of Neurology
... for Amyotrophic Lateral Sclerosis; has received honoraria from the American Institute for Biological Studies (grant reviews); served as a consultant to Acceleron Pharma; holds equity in Amgen; and ... See full document
11
Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review)Report of the Quality Standards Subcommittee of the American Academy of Neurology
... palliative care, diagnosis, telling the diagnosis, breaking the news, advance directives, botulinum toxin A, botulinum toxin B, parotid irradiation, anticholin- ergic drugs, amitriptyline, glycopyrrolate, ... See full document
8
What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives
... ALS care occurs when the patient’s personal values and philosophies are supported by collaborative relationships between the patient and the multidisciplinary ALS ...between patient-centered and ... See full document
10
Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals
... This study extends and adds to our knowledge base by exploring the impact of ALS in a multidisciplinary ALS care setting. ALS represents a known, common, and inevitable path of decline, leading to death. The ... See full document
11
Palliative Care in Neurology: Integrating a Palliative Approach to Amyotrophic Lateral Sclerosis Care
... to care. To enable this right to be met, issues regarding palliative care, specifically equity, access, affordability, and integration in care plans, need to be considered for both current and future ... See full document
9
Using technology to improve access to specialist care in amyotrophic lateral sclerosis: A systematic review
... a patient with amytrophic lateral sclerosis (ALS) aims to improve quality of life and ...usually based in ...day-to-day care is provided by non-specialists ...nurses care for ... See full document
33
Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach
... Abstract: Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, leading to death within an average of 2–3 ...ALS care has been shown to extend survival and improve ... See full document
11
Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach
... Abstract: Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, leading to death within an average of 2–3 ...ALS care has been shown to extend survival and improve ... See full document
11
Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives
... palliative care services through multidisciplinary ALS clinics. A dynamic, evidence based framework for inte- grating palliative care into the management of ALS is urgently required, and would ... See full document
7
Quality improvement in neurology: Amyotrophic lateral sclerosis quality measuresReport of the Quality Measurement and Reporting Subcommittee of the American Academy of Neurology
... literature review and evidence search identified 378 recommendation statements from 20 guidelines and consensus papers 5–7,16,18,25,26 and many supporting evidence papers (references in appendix e – ... See full document
6
Patient perspectives on transitioning to amyotrophic lateral sclerosis multidisciplinary clinics
... with patient and family navigation of the disease process, provide emotional support, reduce duplication of services, promote research opportunities, and maximize patient access and participation in ... See full document
6
Symmetric Temporal Abnormalities on MR Imaging in Amyotrophic Lateral Sclerosis with Dementia
... Bi- lateral temporal lesions produce a severe anterograde learn- ing disorder (ie, an inability to store new memories, often with retained ability to recall old ... See full document
6
Astroglia acquires a toxic neuroinflammatory role in response to the cerebrospinal fluid from amyotrophic lateral sclerosis patients
... involved. Based on our results, we would like to advocate the need for combinatorial therapies to combat the multidimensional glial pathology and its compounding effect on the degeneration of motor ... See full document
14
Chitotriosidase - a putative biomarker for sporadic amyotrophic lateral sclerosis
... Discoverer based on difference in the peak intensity of reporter ions in the MS/MS spectra of each peptide that was ultimately used for quantifying the corresponding ... See full document
9
The Tampa Scale of Kinesiophobia and neck pain, disability and range of motion: a narrative review of the literature
... She had previously seen her medical doctor for this complaint. The doctor felt her symptoms were due to carpal tunnel syndrome and had scheduled an electro- myogram in three months. No previous imaging had been ... See full document
7
Therapeutic applications of mesenchymal stem cells for amyotrophic lateral sclerosis
... Experimental studies have examined the effects of MSC- based trophic factor delivery on ALS disease progression, symptoms, and pathology. Recently, our group examined the beneficial role of hMSCs genetically ... See full document
10
Observation of c.260A > G mutation in superoxide dismutase 1 that causes p.Asn86Ser in Iranian amyotrophic lateral sclerosis patient and absence of genotype/phenotype correlation
... The patient belonged to a small FALS pedigree that in addition to the proband included one additional ALS patient who was deceased at the time of this study (Figure ... See full document
6
The genetics of amyotrophic lateral sclerosis: current insights
... the majority of cases. This review summarizes the current insights that have been gained from the four most common causes of FALS: SOD1, TARDBP, FUS, and C9ORF72. These genes have highlighted the roles of ... See full document
16
A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial
... Since PMA is a rare subtype of motor neuron disease, research studies on PMA caregivers are limited. How- ever, PMA shows substantial overlap with ALS and is considered to be a form of ALS [5]; PMA caregivers are, ... See full document
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