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Quantity and quahty are two important dimensions of life (Ware 1987). The

former tends to be evaluated in terms of survival rates, morbidity and

mortahty (NCHS 1981), whilst the latter is more (hfficult to define and often

involves a philosophical approach particularly in the medical arena

(Donabedian 1980). Because of the abstract nature of quahty, definitions

may be influenced by the person defining it, environmental factors and time

(Sherman 1968). The concept of QOL in the context of health and sickness

is relatively new (Mostehar et al 1989, Spilker et al 1990, Wilkin et al 1992).

The issue of quahty is inherent in the WHO definition of health (1947) which

enq)hasises aspects other than the absence of illness. These aspects are

inq)ortant for the person with a chronic disease or disabihty for whom

quahty, and not sinq)ly length, of survival is crucial. The definition of health

offered by the World Health Organisation is that it is

" a state of complete physical, mental and social weU-being and not merely the absence of disease or infirmity'* (WHO 1947).

This definition was later operationahsed by a working party (WHO 1957)

when health was described as.

" a condition or quahty of the human organism expressing the adequate functioning of the organism in given conditions, genetic or environmental."

These definitions of health can provide a starting point for discussing how

However it is inq)ortant to enq)hasise that the concept of QOL is more

conq)rehensive than that of health (Ware 1984a). QOL can represent a

range of dimensions of life experiences. Single basic requirements such as

safety, food and shelter are iuq)ortant (Andrews and Withey 1976) and it is

only when these have been met that the higher order QOL factors such as

the achievement of self-fidfilment come to the fore (Maslow 1943).

It was following the Second World War that the term "quahty of life" first

appeared in the American vocabulary, although this was not linked with

health or health related concepts. Rather it referred to the acquisition of

material goods e.g. house, car, travel etc. A report in 1960 of President

Eisenhower's Commission on National Goals redefined or broadened the

concept so that it included education, economic development, defence,

health and welfare. This theme continued throughout the 1960s so that at

the beginning of the fohowing decade QOL was interpreted as being less

consumer oriented, and the achievment of "good" QOL dependent on more

than just the acquisition of material goods or wealth.

Health too may be an iroportant factor. Vanden Berg (1993) describes QOL

as "a concept of total weh-being incorporating both physical and

psychological factors". When illness or disabihty has affected an individual,

the perception of good QOL may be one which includes a return to the

premorbid state. Another individual may be concerned with achieving some

sort of ideal state (Caiman 1984, Schipper and Levitt 1986).

Recent years have seen a plethora of research into quahty of life (QOL)

issues, most noticeably in the last 20 years. It appears fi*om the hterature

that the construct of QOL is multidimensional. The variety in definitions of

been equally varied and hence the absence of a universal tool (Schmale

1980). The components of QOL may be as varied as individual personahties

(Gough et al 1983). It can mean different things to different people (Caiman

1984) and they should therefore be allowed to create their own definitions

so that the concept is described and measured in individual terms (Ebbs et al

1989).

Whilst professional clinical judgement tends to be based on the return to

optimum fimctioning e.g. return to work, abatement of synq)toms and

biochemical and physiological norms, patients with different medical

conditions tend to be more idiosyncratic in their criteria for QOL. They may

be more concerned with their abihty to enjoy themselves or to fulfill their

household duties or they may be disturbed by feelngs of lack of energy and

loss of interest (Hunt and McKenna 1993). Most authors recognise that the

issue of QOL must be based on individual judgement and that differences

will exist in patients' perceptions of their QOL (Selby 1993). A definition

which moves away fi'om the usual objective norms and focuses on individual

perceptions is appropriate:

" the individual's perception of their position in life, in relation to their goals and the value system which they have incorporated into their decision- making" (Sartorius 1993).

There is evidence of conceptual confusion m that the term quahty of life is

used interchangeably with fiinctional status and health status (Birren and

Dieckmann 1991, Brooks 1991). QOL has also been equated with

performance in social roles that conq)are to those of others similar in age,

sex or class. Objective indicators have been used for example, economic

status and human rights as weh as the subjective feelings of the individual in

"Just what constitutes quality of life for a particular patient is often extremely difficult to judge" (Elkington 1966).

Although health status has often been equated with QOL, it does not in fact

encoDopass such aspects of QOL as self esteem, interpersonal relationships,

economics etc (Deyo 1993). In a study of patients with rheumatoid arthritis

self esteem, perceived control over health and a person's social network

were demonstrated to be important attributes that were not acknowledged

by health status measures (Burkhardt 1985). Spitzer (1987) offers a way

out of this confusion. He suggests that health status should be considered in

the context of "healthy individuals" and that QOL should be measured in

those who are "definitely sick". An alternative approach would be to

consider health or functional status as a facet of QOL .

Health status then may be defined as a measure of an individuars function in

terms of physical, social and mental well-being. Quahty of fife is more

related to how a person feels and fimctions in his everyday life i.e. it is

subjective. This concept has been described as encompassing several

characteristics - physical and psychological - as weh as limitations which

examine a person's abihty to function and derive satisfaction fi*om doing so

(Walker 1993). The confusion surroundiug the terms health status and QOL

has led to the emergence of the term health related quahty of life which has

been adopted by some researchers. This refers to the level of weh-being and

satisfaction associated with an mdividual's life and how this is affected by

disease, accident and treatment. It has also been defined as:

" the value assigned to the duration of life as modified by the impairments, functional states, perception and social opportunities that are influenced by disease, injury, treatment or pohcy" (Patrick and Erikson

Research in health care outcome measures seeking to monitor the effects of

different interventions has triggered the development of several tools

focusing on heahh-related QOL (Bergner 1989, Birren and Dieckmann

1991, Brooks 1991). However, although health i.e. the absence of disease,

may be regarded as a component of QOL it may not necessarily be an

in^ortant one for all individuals. Thus, a person who has a chronic disease

and is very disabled may perceive their QOL as being "good", whilst the

person in reasonable health may, for some reason, feel they have a "poor"

QOL (Birren and Dieckmann 1991).

An understanding of physical function may be an important aspect of

investigating QOL and has often been achieved by measuring restrictions in

certain activities e.g. walking and various self-care activities such as

washing, dressing and feeding (Patrick and Erikson 1993). Spitzer (1987)

argues that such measures are often a useful means of evaluating various

types of interventions e.g. therapeutic, preventative and rehabilitative and

therefore would be more appropriately employed by those interested in how

specific treatments may affect an indrvidual's level of function.

Hunt and McKenna (1993) described three components of QOL namely,

experiential, functional and symptomatic. The experiential category is

concerned with subjective values and expectations of the individual, feelings

of malaise, distress and discomfort. The functional category encompasses

activities of daily living e.g. social and occupational obhgations, intellectual

functioning and personal relationships. The final symptomatic category

examines consequences of disease, illness, disabihty and the adverse effects

of treatment. Hunt and Mckeima (1993) argue that these components are

A number of variables have been identified as important in determining

QOL. It has been suggested that QOL may be influenced by cultural,

financial, spiritual, psychological and political aspects (Caiman 1987).

Physical aspects would include a person's abihty to carry out activities of

daily living e.g. walking, washing and dressing. FinaUy the spiritual

dimension refers to a person's abihty to transcend every day life by aesthetic

or rehgious experiences (Fletcher and Bulpitt 1993). Levine and Croog

(1984) specified demographic variables such as status, income, family and

social interactions. The psychological dimension might incorporate

psychiatric morbidity, inteUectual performance, emotional level, hbido etc.

A common theme amongst these definitions is one of physical,

environmental and psychological factors ah contributing to QOL.

Gough and associates (1983) suggested that not ah of these components wih

constitute QOL for ah individuals. Values that are considered important

prior to the onset of an illness or disabihty may change during the treatment

stage or fohowing this period, so that "...what was once hqportant may seem

insignificant, whhst things once ignored have great weight" (Morris et al

1986). Patterson (1975) identified the main constituents of QOL as health,

fimction, comfort, emotional response and economics. This approach is

similar to that of Caiman (1987) and Levine and Croog (1984) in that

physical, psychological, social and economic domains are mentioned.