Big Data and Data Governance
Nicolet A. Araujo, RHIA Director
California Health Information Association Board Principal
Primeau Consulting Group
Learning Objectives
•
Explain emerging terminology and define terms
•
Define and outline a Data Governance Program
•
Provide insight to new and upcoming roles that
CURRENT STATE OF HEALTHCARE
Insert content slides here – as many as you need for your
presentation. Generally, CHIA recommends not more than 45 slides per hour of program content, but this may differ depending on the speaker’s needs for the topics to be covered.
Adoption of an EHR
Few providers today have a dynamic inventory and understanding of data sources, characteristics, uses, access requirements and flow of information.
Without this providers will be unable to establish and enforce consistent policies across the enterprise.
As a result, digital systems will continue to promulgate the same redundancies and inefficiencies evident in paper.
e-Health/Population Health
“e-Health is the use of digital information and
communication technologies to improve people’s health and health care. The increasing use of technologies,
especially the Internet and mobile devices, to manage health highlights the potential of e-Health tools to
Government Regulation
•
Changing Payment Models
– Value Based Purchasing / Pay for Performance
– Paying for Outcomes /”P-4-O”
• Encouraging reduction in potentially preventable events
Patient Consumerism
• Legislation
• Cost of Care Transparency
• Online and Mobile Cost of Care Tools
Privacy and Security Breaches
•
Reducing Risk
– “Average cost of a security incident from the era of big data is $40 million” Aberdeen Group
– “75% of data breaches come from inside the company” Forrester Research
e-Discovery
"Govern your information before your information governs you!"
"A fully developed information governance strategy will reduce at source the risk, cost and volume of data in future eDiscovery exercises. Get it right and you get a measure of control. Get it wrong and your data controls you, and it becomes expensive."
DATA GOVERNANCE
Insert content slides here – as many as you need for your
presentation. Generally, CHIA recommends not more than 45 slides per hour of program content, but this may differ depending on the speaker’s needs for the topics to be covered.
Data and Data Bases
• Data is distinct pieces of information, usually formatted in a special way.
• Data can exist in a variety of forms -- as numbers or text on pieces of paper, as bits and bytes stored in
electronic memory, or as facts stored in a person's mind. • Databases are a collection of data with a specific well
“Overcoming deficiencies in correct disease management will require nothing less than a transformation of
healthcare from a system that is essentially reactive,
responding when a person is sick, to one that is proactive and focused on keeping a person as healthy as possible.”
Data Governance Framework (DGF)
• Mission and vision statements
• Goals, metrics and measures, and
funding
• Data rules and definitions • Decision rights • Accountabilities • Controls • People • Processes Rules and Rules of Engagement:
DGF - Mission and Vision Statements
– Developing a clear statement outlining what your formal Data Governance program will address and improve within the organization
DGF - Goals, Metrics and Measures,
and Funding
– Goals
– Metrics and Measures
DGF - Data Rules and Definitions
– The rules and definitions developed, collected and utilized in your Data Governance program
The Tip of the Iceberg
• July 13, 2013 HHS through ONC issued the final rule providing details on an initial set of standards,
specifications and criteria for EHR technology.
• HITECH requires the demonstration of meaningful use of “certified technology” in order for organizations to qualify for incentive payments.
Data Dictionary
“A simple data dictionary is an organized collection of data element names and definitions, arranged in a table. It may describe all the data holdings of an organization, a
Data Dictionary (simple example)
Variable Variable name Variable type Variable Width Values/notes Patient Medical
Record number MR Number
Numeric 10
0000000001-9999999999
Age in months AGE Numeric 2.1 6.0-59.9
Date of birth DOB dd/mm/yyyy
1-31/01-12/1900-2014
Sex SEX Numeric 1 1 = male 2 = female
DGF - Decision Rights
– Who
– What
– When
DGF - Accountabilities
– Define clear accountabilities
– Define roles and responsibilities
DGF - Controls
–
All data is at risk
DGF - People
– Data Stewards
– Key Stakeholders
DGF - Process
–
Common processes include:
• Defining the data
• Establishing and aligning Data Governance
policies, procedures, requirements and protocols with the larger organization
• Communication
• Issue resolution
How do I get there from here?
• Current State
Risk Mitigation Strategy
• Future State
Data Governance Outcomes
• Effectiveness • Confidentiality • Efficiency • Integrity • Availability • Compliance • ReliabilityEmerging Roles
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Data Integrity Analyst
•
Mapping Specialist
•
Clinical Data Analyst
•
Data Governance
Senior Specialist
•
Information Steward
•
Data Steward
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Health Data Analyst
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ETL Developer
•
Data Scientist
Resources and References
• www.forrester.com • www.Wikipedia.com • http://www.webopedia.com/TERM/D/data.html • http://ranger.uta.edu/~zikos/courses/5339-4392_content_repository/week3/WEEK3-Notes.pdf • http://www.middlepassagetomigration.com/willstream-big-data/ • http://www.nj.gov/military/vmh-policies/35-02-004.pdf • http://blog.softwareadvice.com/articles/medical/ehr-timeline-113/ • http://www.qualified-audit-partners.be/?cont=315&lgn=1 • www.datagovernance.com • http://www.cio.com/slideshow/detail/135970#slide5 • www.health.gov • https://www.voa.va.gov • www.fiercehealthcare.com • http://www.pnamp.org/ • http://www.ehow.com/about_5542349_data-steward-job-description.html • http://ironmountain.cp,/knowledge-center • http://multimedia.3m.com/mws/mediawebserver?mwsId=SSSSSufSevTsZxtU48men8_ZevUqevTSevTSevTSeSSSSSS--Resources and References
• http://www.gartner.com/it-glossary/information-governance Published 2013
• Precyse – Health Information Management in 2016 – Guiding Principles and a Governance Framework for a Digital Age
• http://www.webopedia.com/TERM/D/data.html
• http://www.planetofsuccess.com/blog
• http://www.middlepassagetomigration.com/willstream-big-data/
• EDiscovery in an Information Governance World by MARTA FARENSBACH
• “Building Data Stewardship is a New Customer Intelligence Imperative” by Forrester Research Analyst Fatemeh Khatibloo.
• www.kaiserhealthcarenews.org/columns/2011/May/050911mcdonough.aspx
Many thanks to Susan Valentini and Carolyn Coker, HIM students finishing their practicum, who performed some of the research for this presentation.
