life-limiting illness
A hierarchy of personal agency for people with life-limiting illness
... the life-limiting illness, and so they tried to connect to their historic selves through memories of the self they had previously known (Level ...in life was experienced by Barbara: “I am so ...
13
INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness
... a life-limiting illness in Limerick, considered by a member of the primary care/hospice at home team to be in their last year of life and/or their carer are eligible to partici- pate in this ...
10
Caring for a family member with a life-limiting illness: Examining the interactions between patients, family carers and health care professionals across the illness trajectory.
... A pilot study conducted by Walsh and Schmidt (2003) indicated that carers caring for their relative at home benefited from telephone support from hospice nurses. However, this was a small pilot study consisting of 14 ...
290
Advance care planning: a systematic review about experiences of patients with a life threatening or life limiting illness
... vided with adequate knowledge and training about all aspects of ACP (e.g. appointment of proxy decision-mak- ers as well as techniques for sensitive discussion of diffi- cult topics). It may be helpful for HCPs to have ...
17
Beyond `Breaking Bad News': clinicians' experiences of disclosing a life limiting illness to their patients
... Dr V:“. . . the fundamental truth is that it doesn’t matter if we cure cancer tomorrow because the person whose cancer is cured will at some later point in their life be struggling with the thing that can’t be ...
156
‘I don’t think I’d be frightened if the statins went’: a phenomenological qualitative study exploring medicines use in palliative care patients, carers and healthcare professionals.
... believe that they will be taking specific medication until the day they die. This has recently been highlighted in a set of recommendations to support deprescribing approaches in life-limiting ...
7
Respite Services for Children with Life Limiting Conditions and their Families : A Needs Assessment for HSE Dublin/Mid Leinster and HSE Dublin/North East
... a life-limiting illness is inevitably a huge challenge for parents and siblings, who themselves need all the support they can ...a life-limiting condition in ...
48
More comprehensively measuring quality of life in life-threatening illness: the McGill Quality of Life Questionnaire – Expanded
... of life (QOL) is that it assesses the do- mains important to the population whose QOL it is de- signed to ...relevant life domains, and each has many ...of life necessarily need to be ...a ...
11
The lived experience of compassionate love at end of life
... Borne from a deep desire to know how people experience the death and final arrangements of a significant other person who died at home "from a life limiting illness, this research intend[r] ...
326
Young people's perspectives on open communication between family members when a parent is dying
... of life-limiting illness trajectories and end of life ...parent’s illness trajectory may confront them with information that is inaccurate, or that they are simply not ready to ...
19
The lived experience of parenting a child with a life limiting condition: A focus on the mental health realm
... tion. In other words, the essence of the phenomenon is uncovered by gathering text from those living it and then interpreting this text (van Manen, 1990, p. 7). A convenience sample in West Yorkshire was achieved, and 10 ...
6
Intranasal fentanyl for respiratory distress in children and adolescents with life-limiting conditions
... During the retrospective chart review, we also noticed that vital signs are not recorded routinely during AARD. Only in approximately 50% of all AARDs, vital signs were documented prior to the administration of INF. The ...
8
Intact stability of passenger ships : safety issue or design concern? Neither!
... From a wider perspective, maritime safety permeates all physical and temporal boundaries and, as such, is one of the most influential goals in ship design and operation. All human activity in a "risky" ...
7
Predicting wellbeing
... • While doing sport or exercise may not predict children’s wellbeing at this young age, enjoyment of PE did. Children who said that they liked PE ‘a lot’ had much higher odds of happiness than children who said that they ...
150
Siblings of children with life limiting conditions : psychological adjustment and sibling relationships
... significantly lower compared to the general population. This was unexpected as quantitative and qualitative evidence suggests the complex life experiences of these children may equip them with higher levels of ...
24
The Revitalization of the Community based Management of Acute Malnutrition Program in Haiti
... than illness onset at the more socially normative life stages of mid-life (36-64) and late-life (65 years and older)? Lastly, does mastery mediate or moderate the relationship between timing ...
167
Life course influences on quality of life at age 50 years: evidence from the National Child Development Study (1958 British birth cohort study)
... in life expectancy at middle age and the spread of second pensions, both private and occupational, which in some countries supplement the State Pension, have combined to create a new phase of the life ...
13
‘A contributing life’: Living a contributing life as ‘a person’, ‘an artist’ and ‘an artist with a mental illness’
... contributing life’ to acknowledge the importance of full and meaningful participation in community ...of life experiences for people with lived experience of mental ...mental illness, in Australia to ...
26
Sociodemographic and clinical factors affecting the quality of life of patients with chronic obstructive pulmonary disease
... Results: Among the most significant results, there were no statistically significant differences between the patients’ sex and their QOL and LIA (P.0.05). It has been observed that with an increase in the age of ...
14
Psychotherapeutic work with Families with Life threatening Maternal Illness
... the life-threatening illness on the patient, partner and children’s roles, and on relationships and family life; (2) Lost in the panic – The focus is wholly on the ill parent leading to children ...
230