Patient registry
Comorbidity profile in dementia with Lewy bodies versus Alzheimer’s disease: a linkage study between the Swedish Dementia Registry and the Swedish National Patient Registry
... Considering the date of registration in SveDem and the Swedish National Patient Registry, occurrence of the selected neuropsychiatric comorbidities was determined as either before or after dementia ...
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Predictive value of pediatric thrombosis diagnoses in the Danish National Patient Registry
... Abstract: Data on the validity of pediatric thrombosis diagnoses are missing. We aimed to examine the predictive value of a diagnosis of venous and arterial thrombosis using the Dan- ish National Patient ...
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<p>The Positive Predictive Value of Hip Fracture Diagnoses and Surgical Procedure Codes in the Danish Multidisciplinary Hip Fracture Registry and the Danish National Patient Registry</p>
... rate of almost 30% within 1 year, 1 high risk of postoperative complications, 7 and increased disability among the survivors. 8 This has led to the establishment of clinical quality databases on hip fracture patients in ...
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The completeness of chest X-ray procedure codes in the Danish National Patient Registry
... Objective: The aim of this validation study was to assess the completeness of the registrations of chest X-rays (CXR) in two different versions of the Danish National Patient Registry (DNPR). Material and ...
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The RENAPE observational registry: rationale and framework of the rare peritoneal tumors French patient registry
... small patient population. This is how an observational patient registry constitutes a key instrument for the development of epidemiological and clinical research in the field of these rare ...
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Nationwide patient registry for GNE myopathy in Japan
... and patient recruitment for clinical trials [10] Translational Research in Europe–Assessment and Treatment of Neuromuscular Diseases (TREAT-MND ALLIANCE), a research network for neuromuscular disorders, developed ...
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The incidence of hip fractures in Norway –accuracy of the national Norwegian patient registry
... Norwegian Patient Registry (NPR) based on both the International Statistical Classification of Diseases and Related Health Problems (ICD) by the World Health Organisation (WHO) [5] and Nordic Medico- ...
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Economic Aspects of the Missing Data Problem – the Case of the Patient Registry
... UENAL HATICE, HAMPEL DAVID. 2017. Economic Aspects of the Missing Data Problem – the Case of the Patient Registry. Acta Universitatis Agriculturae et Silviculturae Mendelianae Brunensis, 65(5): 1779 –1791. ...
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<p>Validity of First-Time Diagnoses of Inherited Ichthyosis in the Danish National Patient Registry and the Danish Pathology Registry</p>
... National Patient Registry (DNPR) and The Danish Pathology Registry (DPR) are two large nationwide data- bases which provide a potential framework; however, in a recent study of another ...
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<p>Validity of first-time diagnoses of congenital epidermolysis bullosa in the Danish National Patient Registry and the Danish Pathology Registry</p>
... Danish patient registries – The Danish National Patient Registry (DNPR) and The Dan- ish Pathology Registry (DPR) – using a review of medical records as reference ...
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Validity of the coding for herpes simplex encephalitis in the Danish National Patient Registry
... Methods: The DNPR was used to identify all hospitalized patients, aged ≥15 years, with a first- time diagnosis of HSE according to the International Classification of Diseases, tenth revision (ICD-10), from 2004 to 2014. ...
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The Danish National Patient Registry: a review of content, data quality, and research potential
... each patient contact, one primary and optional secondary diagnoses are recorded according to the International Classification of ...the patient level with data from other Danish administrative registries, ...
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The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry
... as patient registries) are more prone than other study designs (such as clinical trials) to the risk of artificial differences due to ...the registry validates the data to en- sure that the differences seen ...
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Hydatidiform mole: validity of the registration in the Danish National Patient Registry, the Danish Cancer Registry, and the Danish Pathology Registry 1999–2009
... specimen, patient data, date of registration, the requesting and investigating hospitals and departments, gross and microscopy descriptions, and diag- noses are ...
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Validation of second trimester miscarriages and spontaneous deliveries
... the registry. We calculated sensitivity as ( + patient registry + records)/[( + patient registry + records) + ( - patient registry + ...- patient registry - ...
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Microbial Interactions in the Cystic Fibrosis Airway
... The presence of different organisms alters long-term outcomes for patients with CF. MSSA appears to enhance survival, while B. cepacia complex may presage a cata- strophic decline in health (6, 7). Acquisition of ...
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An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry
... support patient-centred actions, and facilitate drug ...input patient groups ...of patient organisations advocating for patients with atypical haemolytic uraemic syndrome (aHUS), the aHUS Alliance, ...
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<p>The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders</p>
... pre-surgical patient-reported data through standardized ...the patient receives access to the web-based patient questionnaire at the outpatient ...The patient completes information regarding ...
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Demographic, clinical, and treatment characteristics of the juvenile primary fibromyalgia syndrome cohort enrolled in the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry
... The majority of the JPFS patients in the registry cohort were White, non-Hispanic, adolescent females. These characteristics are similar to those observed in all studies of youth with juvenile fibromyalgia to date ...
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Design of the familial hypercholesterolaemia australasia network registry: Creating opportunities for greater international collaboration
... clinical registry for FH in Australia and New Zealand, the FH Australasia Net- work ...the registry is deployed, contributes to its long-term ...other registry systems such as PASS Clinical Vascular ...
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