[PDF] Top 20 Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation
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Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation
... Two disease-specific PROMs exist for QoL evaluation in inherited ichthyoses: The IQoL-32 [13] which is designed for evaluation of HR-QoL in individuals with ichthyoses; and the Family Burden ... See full document
10
Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review
... every disease or clinical manifestation and allow comparisons between different patient groups or between pa- tients and healthy ...147]. Disease-specific instruments include relevant ... See full document
16
Assessing Health related Quality of Life (HRQoL) in Survivors of Out of Hospital Cardiac Arrest : a systematic review of patient reported outcome measures
... PROM evaluation. Therefore, studies were often judged to be of limited quality per the COSMIN ...The review highlighted a lack of conceptual and empirical research regarding HRQoL assessment in this ... See full document
83
The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research
... of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their ... See full document
27
Patient reported outcome measures in older people with hip fracture : a systematic review of quality and acceptability
... generic measures of health status, quality of life or capability were ...profile measures: the COOP-WONCA Charts [26], Nottingham Health Profile (NHP) [27], Quality of ... See full document
72
Patient reported outcome measures for use in pregnancy and childbirth: a systematic review
... about specific symptoms, such as pain levels, or aspects of their health or health related quality of ...the health outcome to gauge its ...about specific outcomes ... See full document
8
The rheumatoid foot: a systematic literature review of patient-reported outcome measures
... and evaluation of patients with feet with ...every patient with the same set of items irrespec- tive of their RA disease duration, severity and particular ...of disease activity and duration ... See full document
8
<p>Specific Measures of Quality of Life in Patients with Multimorbidity in Primary Healthcare: A Systematic Review on Patient-Reported Outcome Measures’ Adequacy of Measurement</p>
... healthcare, quality of life, and multimorbid- ...as health-related quality of life, since the aim of the review was to include all potentially relevant ... See full document
10
Systematic review of health related quality of life and patient reported outcome measures in Gestational Trophoblastic Disease: A parallel synthesis approach
... Quantitative studies found HRQoL in long-term survivors to be at or above population norms. GTD appeared to have a negative impact on HRQoL where patients experience physical, psychological and social sequelae ... See full document
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Impact of using patient-reported outcome measures in routine clinical care of paediatric patients with chronic conditions: a systematic review protocol
... lower health-related quality of life (HRQOL) and higher utilisation of healthcare ...Integrating Patient-Reported Outcomes Measures (PROMs) in routine clinical care has ... See full document
5
Systematic literature review of patient-reported outcome measures used in assessment and measurement of sleep disorders in chronic obstructive pulmonary disease
... sleep outcome measures that had been used in ...to specific sleep instruments or data indicating that at least one sleep outcome measure had been ...sleep outcome measures was ... See full document
15
Patient-reported outcome measures in patients with peripheral arterial disease: a systematic review of psychometric properties
... available measures, focus groups with clinicians and unstructured in- terviews with patients suggesting positive content ...the reported methodology was rated as good, but construct validity was found to ... See full document
14
Systematic review of patient reported outcome measures (PROMs) for assessing disease activity in rheumatoid arthritis
... assessing disease activity in patients with ...for disease activity assessment. 2 6 We limited the review to studies published in the past 20 years, because these instruments are the most likely to ... See full document
9
The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews
... As many of the facilitators and barriers were identified in several of the reviews across different contexts, the findings may be relevant to other organisations wanting to implement PROMs. That is, organisations need to ... See full document
17
Patients’ perceptions of conservative treatment for a small abdominal aortic aneurysm
... aneurysmal disease, usually by the following metaphor: AAA is “like a bicycle tire with a thin spot or bulge on ...AAA disease and/or treatment options. For example, one patient was unaware of the ... See full document
10
Patient reported outcome measures in patients with peripheral arterial disease: a systematic review of psychometric properties
... this review, the term validation study refers to a study reporting the evaluation of one or more measurement properties of a PROM—including its validity (the degree to which the instrument measures ... See full document
15
The rheumatoid foot: a systematic literature review of patient reported outcome measures
... This systematic review identified 11 PROMs with potential application for the assessment and/or evaluation of the foot with RA, 9 of which are based on CTT and 3 on ...RA ... See full document
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Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review
... of patient-reported outcome measures (PROMs) would improve the quality of care ...of patient- related health outcomes over ... See full document
24
Systematic review of patient reported outcome measures in patients with varicose veins
... new, patient-based outcome measure to evaluate symptoms in patients with community-acquired ...Meaningful Health Outcomes for Children with Neurodisability Using Multiple Methods Including ... See full document
18
Systematic review of patient-reported outcome measures in patients with varicose veins
... not specific for varicose veins and examined chronic venous disease in general were excluded; examples of these are the ChronIc Venous Insufficiency quality of life Questionnaire (CIVIQ) 20 ... See full document
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