[PDF] Top 20 Sickle Cell Disease: A Question of Equity and Quality
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Sickle Cell Disease: A Question of Equity and Quality
... high- quality care in areas where there is currently no NHLBI- funded SCD ...40 sickle cell treatment centers, as well as to develop educational materials and model protocols for the prevention and ... See full document
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Utility of WHOQOL-BREF in measuring quality of life in Sickle Cell Disease
... with sickle cell disease were administered the questionnaire including demographics, WHOQOL-Bref, Short Form-36 (SF-36), Flanagan's quality of life scale (QOLS) and measures of disease ... See full document
6
Health-related quality of life of adolescents with sickle cell disease in sub-Saharan Africa: a cross-sectional study
... An interviewer administered questionnaire was used to obtain information on the participants and the care- giver’s socio-demographic characteristics (age, gender, date of birth, relationship with child, education, resi- ... See full document
9
Uncovering How Occupational Therapy Could Benefit Individuals Living with Sickle Cell Disease in Ghana, Carolyn D'Olympio
... the disease, and more about how the disease presents itself in the everyday life of ...experience sickle cell disease, what activities it disrupts, and what types of coping methods are ... See full document
10
Specifying sickle cell disease interventions: a study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC)
... This study is timely and important. First, this is a unique opportunity to support a consortium of eight academic sites aiming to improve the quality of life of adolescents and adults with SCD. By doing it ... See full document
6
Management of sickle cell disease: challenges and risks of transfusion
... Homozygous sickle cell (SS) disease is associated with rapid red cell destruction and a tendency to block flow in blood ...red cell destruction increases metabolic demands and folate ... See full document
11
Phenotype and Epidemiological Profile of Children with Sickle Cell Disease Followed Up at the Mother and Child Hospital of N’Djamena
... 3.4. Quality of Follow-Up among Children with Sickle Cell Disease Follow-up was performed on a monthly basis following diagnosis of disease, regardless of age at ... See full document
8
Transition and Sickle Cell Disease
... In developing the appropriate context for a transitional care program for adolescents and young adults with SCD, there exists a limited but growing body of literature from the policy and re- search on youth with special ... See full document
12
Sickle Cell Disease: Prevalence, Clinical Presentation and Prognosis in Tribes; Current Concepts and Unanswered Question
... BACKGROUND: Sickle cell Disease is one of the most common severe monogenic disorder in the ...of Sickle Cell ...of Sickle Cell Disease conducted at Medical College, ... See full document
5
Current challenges in the management of patients with sickle cell disease – A report of the Italian experience
... The use of chronic transfusions (typically given on a monthly basis) to reduce the percentage of HbS in the blood have proven effective in preventing most compli- cations of SCD, including stroke, and in minimizing ... See full document
9
Quality-of-Care Indicators for Children With Sickle Cell Disease
... stem cell transplant; hepatic sequestra- tion; hydroxyurea treatment; immuniza- tion; leg ulcers; neuropsychological eval- uation; osteomyelitis; pain; penicillin prophylaxis; priapism; pulmonary func- tion ... See full document
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A Systematic Review of Pharmacological Therapies for Sickle Cell Disease
... 27.6% SCD patients were depressed and 6.5% had one or the other anxiety disorder. Depressed subjects had pain on significantly more days than non-depressed subjects. It has been concluded that depression and anxiety ... See full document
11
Improving Care for Children With Sickle Cell Disease/Acute Chest Syndrome
... Initial evaluation of guideline usage af- ter implementation of the education initiative revealed a deficit in docu- mentation of both the CRS and pulmo- nary interventions. The second PDSA cycle focused on improving ... See full document
11
Retinopathy Revealing Cerebral Venous Thrombosis in Sickle Cell Disease in Niger
... complication. Sickle cell retinopathy affects young people and its diagnosis is based on a sys- tematic examination of the fundus Bio microscopy and angiography [1] [9] ...of sickle-cell ... See full document
7
STUDIES IN SICKLE CELL DISEASE
... Scattergram correlating specific reaction rate of alkali denaturation. hemoglobin (see text and Table I).[r] ... See full document
12
SICKLE CELL DISEASE: TARGETED PATHWAYS OF ANTISICKLING PRODUCTS
... Sickle cell disease (SCD) is one of the most prevalent hemoglobinopathies ...this disease originated millions of years ago, in the sub-Saharan countries in mid-western Africa, eastern Asia, ... See full document
10
Clinical utility of carotid and transcranial ultrasound in cerebrovascular diseases
... cerebrovascular disease, offer- ing additional findings such as the presence of microembolic signals during transcranial ultrasound (TCD) and identifying patients at high risk of recurrence when critical carotid ... See full document
8
Growth and metabolism in homozygous sickle cell disease
... sickled cell counts (a determinant of haemolysis) (Mason et al, 1982), serum transferrin receptor levels (a measure of erythropoietic activity) (Singhal et al, 1993b) and poorer growth in males (Phebus et al, ... See full document
180
Primary Hyperparathyroidism Mimicking Vaso-occlusive Crises in Sickle Cell Disease
... ized by hyperplasia of parathyroid cells, as well as pitu- itary and pancreatic islet cell neoplasms. MEN-IIA is associated with medullary thyroid carcinoma, pheochro- mocytoma, and, occasionally, ... See full document
5
SICKLE CELL DISEASE- AN AYURVEDIC PERSPECTIVE .......
... of Sickle Cell disease (SCD) each year is a major public health problem in ...be sickle cell trait and sickle cell disease ...this disease is currently not ... See full document
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