[PDF] Top 20 Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health

... from using a framework to conceptualize the process of living with a progressive ...in children and ...the participation of children whose functional well-being is at ...dress ... See full document

... daily functioning (chapter d4 and d5 in the ICF- ...representing participation (chapter d7 to d9) were not equivalent but varied with ten items coded as school education (d820) corresponding to school or ... See full document

... improving quality of life for adult ...Simultaneously, quality of life has become “pathologized,” partly because measurement instruments often contain more negative items than positive ... See full document

... this classification with the other instruments used in the Back School, would verify the validity of a set of categories of ICF in a different ...into health systems and the data can be used by managers, ... See full document

... daily life. The students could better explore this question using all the categories of the classification, especially the components of Activities and Participation and Environmental Factors ... See full document

... World Health Organization Disability Assessment Schedule ...the International Classification of Functioning, Disability and Health ...for health and ... See full document

... and health conditions are included in the participation instruments, relevant information stated in the instructions was also used to identify meaningful concepts, which is a modification to the published ... See full document

... The reason which verifies the differences according to the GMFCS level was that the GMFCS is rapidly being accepted in clinical practice and research [36] and has been reported to be directly related to the limitations ... See full document

... Spinal muscular atrophy (SMA) is another type of paediatric neuromuscular illness, and is a good comparison group for ...however, muscular degeneration occurs at an earlier age and much more ...hand, ... See full document

... The lowest mean scores for the speci fi c items of the PedsQL Generic Core Scales and DMD module scales and the fre- quency of patients reporting “ often ” or “ almost always ” experiencing a speci fi c problem were ... See full document

... and functioning [16]. Examples of PROs include health status, health-related quality of life (HRQoL), treatment satisfaction (TS), level of functioning (FUN) and patient ... See full document

... Regarding the ICF component Body Functions partici- pants reported, apart from obvious aspects (e.g. sensa- tions associated with hearing and vestibular functions), orientation, temperament and personality functions, ... See full document

... Duchenne muscular dystrophy (DMD) is the most com- mon genetic neuromuscular disorder in ...families. Quality of life (QoL) refers to all aspects of life, including ... See full document

... of children and adolescents with DMD, respectively ...in children and adolescents with DMD should not be limited to detecting sleep-related breathing disorders, as other sleep disturbances may be present ... See full document

... Duchenne muscular dystrophy (DMD) is an X-­‐linked recessive neuromuscular disease that is the result of a loss of functional dystrophin, which causes cardiomyocyte fibrosis and death, leading to ... See full document

... The TAAQoL [19] is a multidimensional instrument, with 12 scales: gross motor functioning (e.g. difficulty walking, bending), fine motor functioning (e.g. difficulty cutting papers or opening a can), ... See full document

... The existence and application of a range of different measures to assess function before and after TJR presents a number of challenges. Without consistency across studies, it is hard to compare results or conduct meta- ... See full document

... of children with DMD has been suggested to be the result of the greater proximal than distal weakness, as well as the presence of muscle contrac- tures in the more advanced stages of the disease ...The ... See full document

... Previous researchers have attempted to detect cardiac abnor- malities earlier. A previous study reported that cardiac magnetic resonance imaging (MRI) is useful for identifying subtle myo- cardial dysfunction even if the ... See full document

... bone health specialists involved in the care of patients with DMD by providing specific recommendations to guide clinical ...bone health complications will be mitigated. The goals of optimal bone ... See full document